Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for June 2024

any advice

hi sorry not been around in a while. Has anyone experienced this before - I’ve been told my iron is 2.2 dangerously low and then just left it at that. But my...

hi sorry not been around in a while. Has anyone experienced this before - I’ve b...

Littleoldme31

•1 month ago

6 Replies

Seeking Advice: Non-Medication Methods for Managing Hand Joint Pain Flare-Ups

Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been...

Hello everyone, I'm reaching out to this community for some advice and person...

Sophieeeee

•1 month ago

7 Replies

people with parents of lupus

hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum...

hey!! im a teen living with a mum struggling with lupus + bipolar and i would lo...

b99lover

•1 month ago

2 Replies

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Gulten free diet with lupus

Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested...

Hi just been researching gulten free diet for lupus to help with inflamation. Is...

Flows

•1 month ago

23 Replies

New lupus treatment trial recruiting now

This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE...

This post has been sponsored by Bristol Myers Squibb. A new trial is assessing...

Debbie_kinsey

Administrator•1 month ago

Blackrock 200mg hydroxychloroquine is back in stock

Blackrock’s 200mg hydroxychloroquine tablets are now back in stock in England, Wales, and Scotland. If you need the Blackrock version, you can ask your...

Blackrock’s 200mg hydroxychloroquine tablets are now back in stock in England, W...

Debbie_kinsey

Administrator•1 month ago

4 Replies

Help wanted

Hi all my 13yr old daughter was diagnosed with SLE Lupus about 2yrs ago ( after being treated for almost a year for juvenile arthritis). It's all still very...

Hi all my 13yr old daughter was diagnosed with SLE Lupus about 2yrs ago ( after ...

Bewilderedmu

•1 month ago

11 Replies

Stormy Sunday

As a change from green landscapes, the Round the Island Yacht Race on a stormy Sunday morning offered mainly shades of grey. Still an exhilarating watch...

As a change from green landscapes, the Round the Island Yacht Race on a storm...

IsleofWight1

•1 month ago

5 Replies

cytoplasmic speckled ANA - mean anything to anyone ? Also effect of coming off steroids

I’ve just had some further bloods back which say weak positive cytoplasmic speckled ANA and low complement 4. Does anyone know what the cytoplasmic speckled...

I’ve just had some further bloods back which say weak positive cytoplasmic speck...

Yorkshiremeadows

•1 month ago

6 Replies

We're recruiting for a 12-month Health Information Officer at Lupus UK

We’re recruiting for a Health Information Officer! This is an exciting role where you’ll support the development of high quality, trustworthy, current and...

We’re recruiting for a Health Information Officer! This is an exciting role wh...

Debbie_kinsey

Administrator•1 month ago

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Recommendations for travel insurance.

Good morning everyone. I hope you are well today. Please will someone kindly post recommendations for travel insurance. I have a habit of collecting many...

Good morning everyone. I hope you are well today. Please will someone kindly p...

lupylupus

•1 month ago

21 Replies

SLE & Jaundice Advice

Hi all, Just wanted some advice or point in the right direction from people.. My husband has SLE since 2020 and has been having flare-ups nearly every year...

Hi all, Just wanted some advice or point in the right direction from people.. ...

FS93

•1 month ago

6 Replies

UTI and antibiotic/work advice with methotrexate & Bellimumab

Hi all, Long post warning. Have Lupus SLE for nearly 2 years. Due to UTI symptoms being worse last night phoned 111 for advice and had out of hours appt at...

Hi all, Long post warning. Have Lupus SLE for nearly 2 years. Due to UTI symp...

Lupeyfrou22

•1 month ago

10 Replies

I think I have Lupus but not diagnosed yet

hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue...

hello everyone. I have always been a really active person. I consider myself at...

Zephyrspurple

•1 month ago

8 Replies

Venting about my latest flare

I don't have a question or useful info to share. Just wanted to get this rant off my chest! I've had 3 major flares of lupus since I was diagnosed 7-8 years...

I don't have a question or useful info to share. Just wanted to get this rant of...

lingdings

•1 month ago

5 Replies

undiagnosed, first post and sudden rash

hello all so, I’ve had some joint pain for weeks and generally felt run down and exhausted. Pain became severe on Wednesday and Thursday resulting in GP...

hello all so, I’ve had some joint pain for weeks and generally felt run down an...

PennyRoseFlow

•1 month ago

7 Replies

Glomerulonenephritis

Hi, does anyone have any experience of the above. After almost 2 years of going round in circles , having protein, blood and taking antibiotics it's now come...

Hi, does anyone have any experience of the above. After almost 2 years of going ...

BonnyB

•1 month ago

7 Replies

Hi, looking for information sources if anyone knows of any

I joined here back in 2018 when I was certain my symptoms fit lupus. However a professor of rheumatology disagreed and I’ve since been diagnosed with multiple...

I joined here back in 2018 when I was certain my symptoms fit lupus. However a p...

Loobie72

•1 month ago

7 Replies

ANA test results

Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly...

Hi, I’m reaching out in the hope someone is able to help me translate my ANA b...

PurpleKoala24

•1 month ago

4 Replies

Fibro fog or long Covid?

hi 👋 Hope you’re all doing as well as u can has anyone had both Fibro fog and long covid? I don’t know which is affecting me I have more issues with word...

hi 👋 Hope you’re all doing as well as u can has anyone had both Fibro fog an...

Geeforce99

•1 month ago

7 Replies

Recent diagnosis SLE queries

Hello all I've very recently been diagnosed with Lupus and am yet to begin treatment. I have a few questions if you could be so kind to help me out. ....

Hello all I've very recently been diagnosed with Lupus and am yet to begin trea...

Rajmachawal

•1 month ago

12 Replies

Methylprednisolone: my experience

I just wanted to post my experience of methylprednisolone IV in case it might help someone one day. I was in a big flare so my rheumatologist suggested IV...

I just wanted to post my experience of methylprednisolone IV in case it might he...

Kath1

•1 month ago

4 Replies

Agony and morphine?

Afternoon all, Hope you're all as well as can be, sorry but you've all been so supportive I thought I'd write here again with my ongoing issues. If you have...

Afternoon all, Hope you're all as well as can be, sorry but you've all been so ...

Haylz2109

•1 month ago

5 Replies

Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!

Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online...

Do you live in Northern Ireland and want to get involved in volunteering? The N...

michaellasmith

Administrator•2 months ago

Be the first to reply

allergic reaction to insect bites

Hello, do any of you have a severe reaction to insect bites? I’ve always had a little bit more of a reaction but nothing like this! I recently got bitten, by...

Hello, do any of you have a severe reaction to insect bites? I’ve always had a ...

Laurajoy

•2 months ago

20 Replies

IVF - After a Miscarriage

Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get...

Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester ...

Heal-

•2 months ago

1 Reply

Sunblock prescription problems

I have had Sunsense sunblock on prescription for years now but a good while ago (well over a year easily) now my pharmacy (inhouse pharmacy at my rural GP...

I have had Sunsense sunblock on prescription for years now but a good while ago ...

tcogb

•2 months ago

11 Replies

Itching

Morning everyone, just a quick question. A new rheumatologist is questioning my Sjogrens diagnosis and told me to stop taking Amitryptiline. He thinks that...

Morning everyone, just a quick question. A new rheumatologist is questioning my ...

Mctd

•2 months ago

11 Replies

My big discovery. Sjogren’s UCTD Fibro…

in my constant quest for understanding so I can help myself I have made a big discovery. About 5 years ago I was diagnosed with Sjogren’s and I understood to...

in my constant quest for understanding so I can help myself I have made a big d...

IsleofWight1

•2 months ago

9 Replies

High cholesterol and high TSH with mixed connective tissue disease

Hi. I've been diagnosed with Mixed Connective Tissue Disease. Has anyone else experienced cholesterol going up in tandem with TSH? I also have high blood...

Hi. I've been diagnosed with Mixed Connective Tissue Disease. Has anyone else ex...

MauveMouse

•2 months ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2024

any advice

Seeking Advice: Non-Medication Methods for Managing Hand Joint Pain Flare-Ups

people with parents of lupus

Gulten free diet with lupus

New lupus treatment trial recruiting now

Blackrock 200mg hydroxychloroquine is back in stock

Help wanted

Stormy Sunday

cytoplasmic speckled ANA - mean anything to anyone ? Also effect of coming off steroids

We're recruiting for a 12-month Health Information Officer at Lupus UK

Recommendations for travel insurance.

SLE & Jaundice Advice

UTI and antibiotic/work advice with methotrexate & Bellimumab

I think I have Lupus but not diagnosed yet

Venting about my latest flare

undiagnosed, first post and sudden rash

Glomerulonenephritis

Hi, looking for information sources if anyone knows of any

ANA test results

Fibro fog or long Covid?

Recent diagnosis SLE queries

Methylprednisolone: my experience

Agony and morphine?

Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!

allergic reaction to insect bites

IVF - After a Miscarriage

Sunblock prescription problems

Itching

My big discovery. Sjogren’s UCTD Fibro…

High cholesterol and high TSH with mixed connective tissue disease

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