Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for June 2024

Pneumocystis pneumonia - PCP

I am just making people aware of the above. This is fungi that in a healthy person would resolve in days. However, in immunosuppressed it can be fatal. I have...

I am just making people aware of the above. This is fungi that in a healthy per...

•2 months ago

A good day

Sunday was a relaxing day. I didn’t manage the walk I had planned with 2 good friends , we sat in o one friend’s garden instead, drinking cofffee and having a...

Sunday was a relaxing day. I didn’t manage the walk I had planned with 2 good fr...

•2 months ago

Tacrolimus vs cyclosporin

Hi, I am currently working with my rheumatologist to plan for second pregnancy. My daughter is 3.5 years old and I was on tacrolimus during my pregnancy (I...

Hi, I am currently working with my rheumatologist to plan for second pregnanc...

•2 months ago

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flowers

Hi folks thought I would post this pic of the lupins In my garden, they have self seeded all over the path and look beautiful . An update on me, I’m due to...

Hi folks thought I would post this pic of the lupins In my garden, they have sel...

•2 months ago

fibromyalgia or lupus

hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate...

hi has anyone else been diagnosed with fibromyalgia but you think it’s more like...

•2 months ago

Support groups

There seem to be a lot of people that would lik/benefit from a local lupus support group. Could we use this platform to set up our own informal groups?...

There seem to be a lot of people that would lik/benefit from a local lupus supp...

•2 months ago

Depressing facial rashes/What do you do?

Today I feel very overwhelmed with the uglies of lupus on my face. I’ve begun a flare of my own fault getting maybe 5 minutes of sun. My face is attacked...

Today I feel very overwhelmed with the uglies of lupus on my face. I’ve begun a...

•2 months ago

Equivocal Dsdna

hi, I was diagnosed with SLE in 2022 and have had positive and negative antibody results since this time but my most recent test came back as equivocal which...

hi, I was diagnosed with SLE in 2022 and have had positive and negative antibody...

•2 months ago

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