Back scabs/sores/lesions

[Insomniacette]

Hi folks,

Weird question here... does anyone with lupus or sjogrens get like crusty sores or scabs on their back?

So I've had them for years - ever since hydroxy/diagnosis - and I largely ignored them - not sure why, I guess I felt like I had other priorities in terms of health and didn't want to overwhelm my GP. But they are getting worse now so I figure I should probably do something about it. My back has scarring all over it due to these things. They're literally scabs - I don't know how they form - I'm not scratching!! They're not pussy or like spots - they literally are like scabs/lesions that just appear and then after about a week they flake off leaving me scarred.

Anyhoo... I'm going to ask the GP for a referral to a dermatologist but I figured let me run it past my online Lupus family as there may be some wisdom out there for me. Anyone else got these things? If yes do you know what they are? How do you deal with them?

Sending love to you all!! xxxx

[Spanielmadlady]

Pity you didnt post a pic.i have brown scabs 2 on my temple and several on my back.i had them checked out by dermatologist at drs and they are senile warts.they dont itch or bleed ,dont seem to be made worse by the sun either.every once in a while the top falls off and it starts again. Worth getting them checked out though for your own piece of mind xBig hug insomniacette xxxx 🤗 xxxx

[Cas70]

Hi - I have Discoid Lupus and Sjogren’s. Discoid Lupus causes this encouraged by the dehydration caused by Sjogren’s. I haven’t seen a dermatologist because of lockdown but find exfoliation helps. When I find one on my face I cut a piece of Duck tape and place it on overnight - works a treat !! Good luck

[Insomniacette]

Thank you both! Having looked at discoid pics they do look fairly similar and it sounds like this might be it... Though my back is never exposed to sunshine so go figure! Next stop dermatologist as I can't keep ignoring it forever!! Sorry not to post a pic but really it's so unpleasant looking I thought it best I didn't! xxx

[RachelD1972]

Hi, it sounds like discoid lupus.. pls get it checked out and be prepared that they will probably want to take a skin biopsy. Discoid can be aggravated by uva so wear spf 50.. scarring can be bad so prevention is better. Mine affects my face and scalp. Good luck!

[Insomniacette in reply to RachelD1972]

Thank you so much for the advice! Definitely going to get this sorted - waiting for vaccine two and then I'll get onto it!! xxx

[Krazykat26]

I have subacute cutaneous lupus (SCLE) n I do get similar sounding rash in my back..well all over really except my face!! I'm pretty much rash free at the moment but that's coz I'm on all the strong meds including pred n methotrexate..however I still have a patch on my lower back that is always there n is proving really difficult to shift completely.

There's a great website called DermnetNZ..they have a great variety of rashes on there n u may find your particular kind of rash!! This is what I did n I discovered that yes indeed I'm a typical SCLE patient!! 😱😫

Dermatologist should be able to help u. Please don't worry about posting pics on here..it's helpful for us who have rashes to be able to see the image n identify with similar symptoms. 🌈😽😽Xx

[Insomniacette in reply to Krazykat26]

Thank you Krazykat26 I just spent some time on DermnetNZ - it's bloody brilliant! Thanks so much what a great tool - definitely looking like discoid. Thank you as ever for your help! xxx

[Hidden]

I have chronic stills disease, juvenile arthritis. I do have brown growths on my torso. They are lumpy, scaly and very itchy when they start to appear. Some are sore and irritate if under a bra strap for example. My GP was disinterested and eventually I sought private removal of a few of the worst. They continue to appear and now far to many to consider private treatment as it’s very costly. I feel embarrassed to wear a bikini as a result but unless I get rid of these lockdown extra pounds it won’t fit me anyway! My only suggestion is a very good moisturiser.

[Insomniacette in reply to Hidden]

Thanks Hidden I'm so sorry to hear about your troubles and that you had to resort to private treatment. I know what you mean about the bikini!! I'm in the same boat there!! xxx