Ive been gluten intolerant for about 8 years now and in this last week and on the weekend I was exposed to gluten. I had the most horrendous migraine last night (Sunday) and have noticed my malar and rashes on my arms worsen. I know this isn’t a gluten rash as I usually get little red, raised bumps with my “gluten rash”
The rash on my arms however is the same rash I have on my face and today I’ve noticed it starting to flare up again.
Could there be a link to the gluten?
At one point the suspected I had coeliac disease but, the testing was ruled as inconclusive.
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Penelope-Pipin
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Hi, I have mixed connective tissue disease (lupus/ra/scerderma overlap) and am also a coeliac. I always find that if I get accidentally glutened, once the gluten affects have subsided, the aches and pains in my joints do flare. I usually find that it will last about 5-7 days and then start to settle. I’m sure that as my MCTD and coeliac are both caused because of overactive immune system, they are therefore are connected.
I have SLE, Sjogren's and Coeliac. My blood test was low positive, but my initial small bowel biopsy was inconclusive. It turns out I wasn't eatiing enough gluten at the time. After 2 weeks of a gluten challenge the biopsy was repeated and it was positive. Were you eating enough gluten when you were tested?
I did have very low ferritin levels but I take iron tablets for that now. I definitely think I need to get a retest done I wasn’t happy with the dr I went to see that did my testing he just tested me like I was a number
Hi Penelope. I've avoided gluten for a few years now, though I'm not coeliac. I did notice in the run-up to being diagnosed with lupus that if I ate a large amount of wheat, eg pasta, that I would have carpal tunnel syndrome in the night, caused by swollen joints, and more rheumatic pain on waking. So I imagine it was affecting the lupus. I found once I was on treatment that these symptoms were masked to a large extent, but I figured it was probably best for me to avoid gluten! I've gradually gone further and cut out most grains - found that rice was causing a lot of muscle pain for me. Apparantly there can be a cross-reaction between gluten and the proteins in rice. I do currently eat oats, but I am suspicious as I seem to have more pain in the mornings after eating them... We'll see! Hope you feel better soon from being glutenized. x
Sorry to hear how you feel it’s strange I can always tell when it’s my “gluten cramps” but I’ve been so sick this week. The migraine I had on Sunday really knocked me out one of the worst ! And I’ve noticed that my malar rash is definitely flaring !
Hello I have had to cut out gluten entirely as i get an awful whole body rash like dermatitis hepatiformis if I eat it. It is unbelievably itchy and I have to have IV steroids and antihistamines for it. My other lupus symptoms also get worse. I used to be able to tolerate gluten I'm not sure why it got worse. My coeliac tests were negative despite going back onto gluten first. There is a lot of research going on into the impact of gluten intolerance so hopefully we will get some answers in time.
Thank you so much for this, I feel like I’m not crazy ! And that my symptoms aren’t necessarily in my head been battling with gluten for 7 years now and now the lupus symptoms are a new occurrence just hope I can get to the rheumatologist soon
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