Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2019

Anyone have experience of drinking tamarind tea?

I happened to post a photo of my lupus rash on social media. A Jamaican relative suggested I drink tamarind tea, which is widely used in the caribbean for skin...

I happened to post a photo of my lupus rash on social media. A Jamaican relative...

chocolate_girl73

•5 years ago

3 Replies

Discoloring on fingers from cold, question

Ok so I have tried looking this up and am not sure I understand the difference between Cyanosis and Raynauds; can someone explain this to me? I have always...

Ok so I have tried looking this up and am not sure I understand the difference b...

JennaShi

•5 years ago

5 Replies

Benlysta anyone?

I'm waiting for Benlysta approval. Anyone that has taken this, could you please share any positive and/or negative experience? I'm worried about too much...

I'm waiting for Benlysta approval. Anyone that has taken this, could you please ...

miccika1

•5 years ago

2 Replies

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DLE or SLE

Hello, My first post here, but I’ve already picked up some really useful info. I’d be grateful if I could tell you my situation and maybe get some advice. So...

Hello, My first post here, but I’ve already picked up some really useful info. I...

Barrangary

•5 years ago

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Malar rash??

Might be clutching at straws here but does this look like the start of the lupus rash ? On my cheeks only can’t really see much on my nose I just sort of look...

Might be clutching at straws here but does this look like the start of the lupus...

Aleigh44

•5 years ago

3 Replies

Breast Explant Surgeon Consultation RE: connection to UCTD (more difficult than anticipated)

Hi Everyone, I saw my Onco-plastic Breast Surgeon on Friday about explant. It took me the whole weekend to get over that appointment. And this was not to do...

Hi Everyone, I saw my Onco-plastic Breast Surgeon on Friday about explant. It t...

panda2

•5 years ago

6 Replies

feet feel wet

a weird one but no idea if it's lupus/fibro connected. sometimes when wearing shoes I feel like my foot is wet as if I have stepped in a puddle with a hole in...

a weird one but no idea if it's lupus/fibro connected. sometimes when wearing sh...

suzannah16

•5 years ago

5 Replies

This flare won’t go :-(

Hi all, I hope you don’t mind me having a little moan and a whinge. I was diagnosed with SLE last year and began taking hydroxy since last November. I have...

Hi all, I hope you don’t mind me having a little moan and a whinge. I was diagno...

123MrsG

•5 years ago

3 Replies

AWOL, update as to why

My apologies to everyone for not being around very much atm, but am really very unwell, and have been since last June, and having PE'S in December, and a whole...

My apologies to everyone for not being around very much atm, but am really very ...

LupusKaren

•5 years ago

8 Replies

Latest Test Results

Morning everyone, Since my last post I've been doing some digging and found out I can access my medical files electronically so as you can imagine I jumped at...

Morning everyone, Since my last post I've been doing some digging and found out...

Leenie0811

•5 years ago

11 Replies

Mtx injections

Hi all, I had been taking methotrexate tablets for 5 years and they helped apart from getting severe gastritis. In march my rheumy changed me to mtx...

Hi all, I had been taking methotrexate tablets for 5 years and they helped apart...

ush1401

•5 years ago

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Lupus symptoms?

Hi there, I have been dealing with chronic illness since September 2018 (~8 months). I have not yet been diagnosed, but it has been suggested to me that I...

Hi there, I have been dealing with chronic illness since September 2018 (~8 mont...

eareffuolp

•5 years ago

3 Replies

Restless legs, is this a symptom of lupus?

During this latest flare I have terrible restless legs, is this a symptom of lupus? The pains in my legs have been so bad my sleep has been compromised and...

During this latest flare I have terrible restless legs, is this a symptom of lup...

chocolate_girl73

•5 years ago

10 Replies

Surgery

Surgery over yesterday, getting ready to leave the hospital to go home today!

Tiras

•5 years ago

21 Replies

Sjögrens and Heart Block

I’ve recently been diagnosed with primary Sjögrens and have been experiencing the dry eye, fatigue and small joint pain. Im also B12 and vit D deficient. The...

I’ve recently been diagnosed with primary Sjögrens and have been experiencing th...

L154C0

•5 years ago

4 Replies

I am new here

Hi, I am 35 and i have been suffering from the abdominal pain, my lower back as well as pain when passing urine, went through several test, and stomach scan...

Hi, I am 35 and i have been suffering from the abdominal pain, my lower back as ...

karigos

•5 years ago

3 Replies

Update after my post asking for advice to avoid a flare-up after surgery - my have a learned a lot since then!

Hi all, I thought I drop everyone a line to let you all know what has happened since my op on 27th March...so sorry about the lengthy post but you'll...

Hi all, I thought I drop everyone a line to let you all know what has happened ...

Serser

•5 years ago

9 Replies

Itching hand...Lupus related?

Hi, over the past week my hands or rather my knuckles have become increasingly itchy. They are not red or swollen, like when a flare started, but the itching...

Hi, over the past week my hands or rather my knuckles have become increasingly i...

Jbo16

•5 years ago

10 Replies

After 6 years of pain I'm finally being taken seriously

Im 34 and was passed to a reumatologist in 2017 without any diagnosis. cronic pain kn my ankles and swollen. My mum has RA and sjrogens. About 2 months ago I...

Im 34 and was passed to a reumatologist in 2017 without any diagnosis. cronic pa...

Evainmallorca

•5 years ago

2 Replies

THANK YOU

BIG thank you to everyone Who gave me a welcome to the lupus UK community.

Hidden

•5 years ago

1 Reply

Top 10 ingredients to avoid, Soil Association

I thought those of you with skin sensitivity in particular would find this interesting from the Soil Association magazine Living Earth.

I thought those of you with skin sensitivity in particular would find this inter...

Heatheric

•5 years ago

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Newly diagnosed

I want to apologise before I start in case there are two posts as I have just lost my first one and need to start again. I was diagnosed with SLE three weeks...

I want to apologise before I start in case there are two posts as I have just lo...

Meg52

•5 years ago

12 Replies

Can employer make you reduce working hours

I work 5 days a week term time only. Recent 1 to 1 with boss they said that they would be sending my to occupational health as they think I would be better...

I work 5 days a week term time only. Recent 1 to 1 with boss they said that they...

lilliebetfairies

•5 years ago

8 Replies

Lupus menopause stress hair loss

Hello, Anyone here had any luck with successfully treating hair loss? I lost hair due to lupus which came back whilst on higher dose steroids. Then I lost...

Hello, Anyone here had any luck with successfully treating hair loss? I lost ha...

LilyMistri2

•5 years ago

3 Replies

DR. Visits What?????

Hi to all the lupus gang, I just wanted all your opinions and some experiences when you go to the doctors with written documented symptoms, and you Doc says it...

Hi to all the lupus gang, I just wanted all your opinions and some experiences w...

thestorm

•5 years ago

8 Replies

I'm new to the lupus UK group and would like to say hi to all the luppies

Hi fellow luppies

Hidden

•5 years ago

9 Replies

The lack of bladder control and the need to wee update

Thank you again to this wonderful site, where I gain so much clarity in others sharing similar experiences. I can honestly say I feel my medical anxiety is...

Thank you again to this wonderful site, where I gain so much clarity in others s...

Lisalou19

•5 years ago

21 Replies

Sarcoidosis

Hello. Just wondering if anyone else has Sarcoidosis with their Lupus? It’s hard to know which of these conditions is causing my flare up . I have learnt...

Hello. Just wondering if anyone else has Sarcoidosis with their Lupus? It’s ha...

Hotcatcoco

•5 years ago

1 Reply

OraCoat XyliMelts. Anyone tried them?

While I can keep my Sjögren’s mouth reasonably moist in the day and the various eye potions help my eyes, the worst thing is waking up with a shrivelled mouth...

While I can keep my Sjögren’s mouth reasonably moist in the day and the various ...

Lupiknits

•5 years ago

5 Replies

Lost...

Awaiting diagnostic in the meantime Ive started to be a regular patient in A&E , started to have unusual allergies. My right eye , the sclera was completely...

Awaiting diagnostic in the meantime Ive started to be a regular patient in A&E ,...

Theodora23

•5 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2019

Anyone have experience of drinking tamarind tea?

Discoloring on fingers from cold, question

Benlysta anyone?

DLE or SLE

Malar rash??

Breast Explant Surgeon Consultation RE: connection to UCTD (more difficult than anticipated)

feet feel wet

This flare won’t go :-(

AWOL, update as to why

Latest Test Results

Mtx injections

Lupus symptoms?

Restless legs, is this a symptom of lupus?

Surgery

Sjögrens and Heart Block

I am new here

Update after my post asking for advice to avoid a flare-up after surgery - my have a learned a lot since then!

Itching hand...Lupus related?

After 6 years of pain I'm finally being taken seriously

THANK YOU

Top 10 ingredients to avoid, Soil Association

Newly diagnosed

Can employer make you reduce working hours

Lupus menopause stress hair loss

DR. Visits What?????

I'm new to the lupus UK group and would like to say hi to all the luppies

The lack of bladder control and the need to wee update

Sarcoidosis

OraCoat XyliMelts. Anyone tried them?

Lost...

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