Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,854 members • 28,195 posts

All posts for May 2019

Has anyone experienced a major increase in hair loss from taking azathioprine?

I’m on 50 mg of azathioprine and 10 mg of prednisone. Am I to blame azathioprine alone or the combination?

I’m on 50 mg of azathioprine and 10 mg of prednisone. Am I to blame azathioprine...

Mishycake

•5 years ago

11 Replies

HEADACHES-uggggggggg

so I have to tell you all this one, I went to the ER with sharp chest pains,nausea, dizziness, tingling in my arm,it hurt to breath. The nurse's hooked me up...

so I have to tell you all this one, I went to the ER with sharp chest pains,naus...

thestorm

•5 years ago

12 Replies

Avise test results

Got these test results back and although my titre is now 1:320 homogeneous, I am borderline negative for Anti- DsDna. I will attach tue second page as it has...

Got these test results back and although my titre is now 1:320 homogeneous, I am...

JennaShi

•5 years ago

17 Replies

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Malar Butterfly rash ?

Is this a Malar rash? No diagnosis to date but been under a rheumatologist for ages and I’ve come up with this now just wanted your thoughts x

Is this a Malar rash? No diagnosis to date but been under a rheumatologist for a...

Aleigh44

•5 years ago

7 Replies

Post surgery

After the doctors visit in Birmingham yesterday, I can still only lay around and do my walking. I did get to loose the baggage yesterday, the pathology...

After the doctors visit in Birmingham yesterday, I can still only lay around and...

Tiras

•5 years ago

12 Replies

Nose biopsy anyone?

I know lots of you suffer with various nasal problems and I'm wondering if any of you have had a nasal biopsy? My vasculitis doctor sent me to see a consultant...

I know lots of you suffer with various nasal problems and I'm wondering if any o...

Georgie-girl

•5 years ago

15 Replies

Shoulder pain

Hello everyone it’s been awhile since my last post. Hope all is well. Question has anyone experienced shoulder pain out of nowhere. I woke up one morning and...

Hello everyone it’s been awhile since my last post. Hope all is well. Question h...

faithnhm333

•5 years ago

5 Replies

NO one understands and hub bub.......

Hi my hub friends, so many of us and me, find it hard to just get our concerns and pop-up everyday symptoms across to our Dr.'s and friends family etc, It is a...

Hi my hub friends, so many of us and me, find it hard to just get our concerns a...

thestorm

•5 years ago

2 Replies

ANA titter increasing but Complement C3 high??

Hey guys, I wanted to get some insight from some of you who have a diagnosis of SLE or other CTD’s. Have any of you experienced an elevated (versus decreased)...

Hey guys, I wanted to get some insight from some of you who have a diagnosis of ...

MrsRN

•5 years ago

11 Replies

Does anyone else have thyroid problems with thei uctd/lupus?

My last blood tests in March showed raised thyroid level which have never had before... Due to repeat test early June and am hoping this was a one off! Is it...

My last blood tests in March showed raised thyroid level which have never had be...

Hidden

•5 years ago

1 Reply

I could cry 😢

My friends ❤️ I’ve been for my ent ultra sound scan today of the neck and face and they found nothing and say it could be a sensory issue caused by the brain...

My friends ❤️ I’ve been for my ent ultra sound scan today of the neck and face a...

Buckley123

•5 years ago

33 Replies

Duloxetine?

Hey all So, still waiting on news from Rhumatology, looks like that appointments still a long way off. But positively, lots of other stuff has been happening...

Hey all So, still waiting on news from Rhumatology, looks like that appointments...

Bubble89

•5 years ago

4 Replies

Extreme Sunsensitivity - Can anyone help?

Hi All, I've got a Rheumatology appointment tomorrow and a Dermatology appointment next week. My brand of photosensitivity is a major question. Do any of you...

Hi All, I've got a Rheumatology appointment tomorrow and a Dermatology appointme...

panda2

•5 years ago

47 Replies

Dealing with family/friends/general life whilst investigations are pending - Please help!

Morning Everyone, I really need some advice, I am in the process of testing/reaching a diagnosis and I understand this can be a long one. My journey started...

Morning Everyone, I really need some advice, I am in the process of testing/rea...

Leenie0811

•5 years ago

22 Replies

Results

Got Rituximab in March and when I was at the hospital 2 weeks ago my kidney function was stable and things looking ok, got bloods done then and recieved my...

Got Rituximab in March and when I was at the hospital 2 weeks ago my kidney func...

Hidden

•5 years ago

3 Replies

Lupus and after cancer surgery

Well I made it outside to do some walking on this gorgeous, afternoon! Check on the garden, as if I could do anything if it needed it. I did pull up a few...

Well I made it outside to do some walking on this gorgeous, afternoon! Check ...

Tiras

•5 years ago

15 Replies

Fun? No, no, no

My poor houndrel has an autoimmune condition affecting his eyes. They are better than they were, but it looks to the vet like he’ll be on immunosuppressant...

My poor houndrel has an autoimmune condition affecting his eyes. They are better...

Lupiknits

•5 years ago

11 Replies

Child’s Farm Products

Hello sun avoiders. I’m sitting in the house surfing the web while the sun beats down outside. I’ve just come across an article on Child’s Farm products...

Hello sun avoiders. I’m sitting in the house surfing the web while the sun beat...

Barbara17

•5 years ago

8 Replies

Feel Pants

The days only just begun The sun is shinning and I feel Sad emotional angry fed up miserable 😴😢😢 I hate feeling like this I try so hard to keep smiling I...

The days only just begun The sun is shinning and I feel Sad emotional angry fed...

Hidden

•5 years ago

6 Replies

Sepsis

Hi, I have just come out of hospital following sepsis, secondary to pyelonephritis. I take Azathiaprine amongst other things. I didn’t have any warning signs,...

Hi, I have just come out of hospital following sepsis, secondary to pyelonephrit...

Rubylu

•5 years ago

5 Replies

Help with energy bills?

Hello, i was wondering if anyone knows if there is help with energy costs? Im 33 years old, i claim PIP low amount for Lupus complications and severe raynauds....

Hello, i was wondering if anyone knows if there is help with energy costs? Im 33...

Rach459

•5 years ago

4 Replies

DWP response ?

I am currently going through Tribunal stage for PIP appeal the mandatory decision went in my favour as DWP like to put it ! But I still was not happy with that...

I am currently going through Tribunal stage for PIP appeal the mandatory decisio...

Hidden

•5 years ago

3 Replies

Sjogren Syndrome

Could someone tell me if you know have a right to see an eye specialist if you have Sjogrens Syndrome. I asked my Rheumatologist and was refused saying it...

Could someone tell me if you know have a right to see an eye specialist if you h...

Gillyg

•5 years ago

8 Replies

Rheumatologists are they qualified and trained at all. Totally fed up of dismissive healthcare professionals who clearly don’t have a clue.

I am so sorry I have to vent and rant like a mad woman. Was told by my rheumatologist nurse that I was being treated for lupus which I thought means that’s...

I am so sorry I have to vent and rant like a mad woman. Was told by my rheumatol...

Hidden

•5 years ago

27 Replies

Haematology Appointment- advice please!

I have an appointment with my Haematology Consultant on Thursday and I just wanted to learn from others experiences what I should expect? I haven’t been asked...

I have an appointment with my Haematology Consultant on Thursday and I just want...

Helsbels_

•5 years ago

3 Replies

GP visit - shocked at response

Hello everyone this is my first time posting on this community although I have been reading for advice and info for some time and you are all very helpful. My...

Hello everyone this is my first time posting on this community although I have b...

Happy43

•5 years ago

99 Replies

Acupuncture to reduce inflammation

Hi All I have UCTD and am in the final stages, I HOPE of getting off steroids. I'm down to 1.5mg Pred. It's taken me about 5 years to get to this point so I...

Hi All I have UCTD and am in the final stages, I HOPE of getting off steroids. ...

Joy_1

•5 years ago

7 Replies

The struggle is real

At my last rheumy review, with his new registrar

whisperit

•5 years ago

36 Replies

How do you explain pain😓😌😜

Hi all, here is a web site I am trying to post that may have some heartfelt words to those in your life who may not understand how you feel. I hope everyone...

Hi all, here is a web site I am trying to post that may have some heartfelt word...

thestorm

•5 years ago

4 Replies

Breathing in with pain😢😢😢😢

Hi all, I wanted to know if anyone has trouble breathing with tightness around the muscles of the rib area when we have damp or humid weather. I have seen a...

Hi all, I wanted to know if anyone has trouble breathing with tightness around t...

thestorm

•5 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2019

Has anyone experienced a major increase in hair loss from taking azathioprine?

HEADACHES-uggggggggg

Avise test results

Malar Butterfly rash ?

Post surgery

Nose biopsy anyone?

Shoulder pain

NO one understands and hub bub.......

ANA titter increasing but Complement C3 high??

Does anyone else have thyroid problems with thei uctd/lupus?

I could cry 😢

Duloxetine?

Extreme Sunsensitivity - Can anyone help?

Dealing with family/friends/general life whilst investigations are pending - Please help!

Results

Lupus and after cancer surgery

Fun? No, no, no

Child’s Farm Products

Feel Pants

Sepsis

Help with energy bills?

DWP response ?

Sjogren Syndrome

Rheumatologists are they qualified and trained at all. Totally fed up of dismissive healthcare professionals who clearly don’t have a clue.

Haematology Appointment- advice please!

GP visit - shocked at response

Acupuncture to reduce inflammation

The struggle is real

How do you explain pain😓😌😜

Breathing in with pain😢😢😢😢

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