Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for March 2019

Lupus panel and kidney question

Can Plaquenil cause a normally positive anti-dsdna to be negative? Reason I ask is bc currently I'm in a bad flare. My c3/c4 (c3-61.5, c4-5.1) are low and they...

Can Plaquenil cause a normally positive anti-dsdna to be negative? Reason I ask ...

gonebananas83

•6 years ago

8 Replies

Lymph nodes

Hello all, I had a neck ultrasound today as the rheumatologist referred be due to swollen glands, The one in the side of my neck was measuring 16mm the doctor...

Hello all, I had a neck ultrasound today as the rheumatologist referred be due t...

MidnightMystery

•6 years ago

2 Replies

Pregnancy and Hydroxychoroquine Sulfate (Reconil)

Hi Everyone, Hope you are all feeling well today. I am just new to this group, I specifically look online for people who are on the same journey with me or...

Hi Everyone, Hope you are all feeling well today. I am just new to this group, I...

Hopeful_Carla

•6 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Just a quickie, grateful for life so using a positive mind. My hydroQ was increased to 400mg , weight is falling off is this normal??

I’m not going to moan as I put on so much weight whilst on steroids. Now the weight is dropping off me, I’m constantly on the toilet since I started 400mg 2...

I’m not going to moan as I put on so much weight whilst on steroids. Now the wei...

Lisalou19

•6 years ago

42 Replies

New medicine charges/paying for some medicines.

Thought that I'd post this, I'm just a bit worried that my eye and mouth lube for my sjogrens will be affected.

Thought that I'd post this, I'm just a bit worried that my eye and mouth lube fo...

MissusTee

•6 years ago

4 Replies

Mild SLE travel to Africa with Malarone recommended

I am lucky, my SLE is mild and diagnosed 6 months ago with no organ issues. My body seems to be responding well to my medications (daily 3mg Zamen a...

I am lucky, my SLE is mild and diagnosed 6 months ago with no organ issues. My ...

A00000000012

•6 years ago

3 Replies

Severely dry skin - do others have this, not diagnosed but do have Sjogrens?

Anyone have any ideas about the state of my dreadful skin? Not diagnosed with Lupus but I do have Sjogrens syndrome, recently diagnosed but I reckon I have had...

Anyone have any ideas about the state of my dreadful skin? Not diagnosed with Lu...

lottagelady

•6 years ago

19 Replies

MCTD turned from positive to negative

Just finish with my doctor’s visit. ANA is down and my mixed connective tissue disease marker went from positive to negative. The doctor thinks the hydro...

Just finish with my doctor’s visit. ANA is down and my mixed connective tissue ...

Krock1

•6 years ago

2 Replies

Absolutely flabbergasted. Does anyone else experience problems with repeat persciptions.

So this is the time I absolutely HATE. It's time to collect my monthly medicines. I hate this time as it is rare if I do not have problems being able to get...

So this is the time I absolutely HATE. It's time to collect my monthly medicines...

overnighthearingloss

•6 years ago

16 Replies

Itchy nail bed/cuticles/fingertips

I have suddenly developed hideously itchy fingers around my nails, just below the nail bed and underneath the nail tip. At first I thought it might be a...

I have suddenly developed hideously itchy fingers around my nails, just below th...

Mifford

•6 years ago

20 Replies

SLE and fibromyalgia?

Hey guys so I recently saw a new Rheumatologist and he said that I had both fibromyalgia and SLE. I'm only 20 by the way. So here I am quite baffled about...

Hey guys so I recently saw a new Rheumatologist and he said that I had both fibr...

Stephanie0210

•6 years ago

10 Replies

Tips and Tricks NEEDED

New here, but not new to lupus. I have had it for the last 5 years and doesnt look to be getting any better. I have now found out i am pregnant so need to stop...

New here, but not new to lupus. I have had it for the last 5 years and doesnt lo...

PuddleDuck1206

•6 years ago

5 Replies

Do you really have reflux do you have reoccurring yeast infections And are you taking an anti-inflammatory?

I have been reading all the post about gabapentin meloxicam and reflux. I hope my experience will help in someway years ago I was diagnosed with reflux after...

I have been reading all the post about gabapentin meloxicam and reflux. I hope...

Aneato

•6 years ago

4 Replies

Newbie

Hi, Im new here. I got diagnosed with lupus at 14, and have been dealing with it for the past 13 years. I get the symptoms of rash, joint pain, some kidney...

Hi, Im new here. I got diagnosed with lupus at 14, and have been dealing with it...

skj92

•6 years ago

4 Replies

Pain ANYONE?

Has anyone tried cbd drops?

nanno

•6 years ago

16 Replies

Rash and creepy crawling

I have been struggling with the sensation of bugs crawling on my face and head. It feels like electric shock and white beads fly out. Drs say I'm crazy but...

I have been struggling with the sensation of bugs crawling on my face and head. ...

Lilrosie1

•6 years ago

1 Reply

Disability & free medicine

https://petition.parliament.uk/petitions/249915/sponsors/new?token=fJubMM3lPYpseoHBNCT

https://petition.parliament.uk/petitions/249915/sponsors/new?token=fJubMM3lPYpse...

Zmongo

•6 years ago

6 Replies

Waiting for my little treat bag to turn up to help with extremely dry skin! Especially on my palms of my hands and soles of my feet

I found this by chance, sick of this dryness that causes my skin to split and crack. The reviews on each individual item are really positive. Hopefully I can...

I found this by chance, sick of this dryness that causes my skin to split and cr...

Lisalou19

•6 years ago

55 Replies

Dental care - amazing article.. Ive been doing it ALL wrong...!! Essential reading..

Hi all - just read this amazing article. If, like me, your teeth and mouth are not very happy due to your SLE, Sicca, Sjogrens or just anything.. this article...

Hi all - just read this amazing article. If, like me, your teeth and mouth are n...

DJK99

•6 years ago

12 Replies

POSITIVE ANA but negative antibodies.

Hello there. I have had many symptoms and flares. Went to the GP and bloodwork showed positive ANA homeogenous pattern, but the tier (Antibodies) came back...

Hello there. I have had many symptoms and flares. Went to the GP and bloodwork s...

Kateyes419

•6 years ago

13 Replies

Doctor’s Visit

There is nothing I can add to Laura’s post. These 2 Ladies Shemekia & Teria are absolutely wonderful, caring, & loving people. There is no way I can ever thank...

There is nothing I can add to Laura’s post. These 2 Ladies Shemekia & Teria are ...

Tiras

•6 years ago

16 Replies

Hormonal pills estrogen progestine

Does anyone have experience with birth control pills? I am takin progesterone only 10mg each day and that increased my energy but i still have a flare every...

Does anyone have experience with birth control pills? I am takin progesterone on...

miccika1

•6 years ago

5 Replies

Help create a national register for people with rare rheumatic diseases

Hi everyone, I am sharing this information with you all on behalf of the Rare Auotimmune Rheumatic Diseases Alliance (RAIRDA) - https://rairda.org/ A key...

Hi everyone, I am sharing this information with you all on behalf of the Rare Au...

Paul_Howard

Partner•6 years ago

8 Replies

Cancer With Lupuz

Good Thursday Morning! Having that first cup of coffee this morning! Laura & I have got a long day ahead of us. Today is the appointment with the surgeon about...

Good Thursday Morning! Having that first cup of coffee this morning! Laura & I h...

Tiras

•6 years ago

32 Replies

Help, please

Hi. I don't know if any of you recall my on- going struggle with ill health and a 3 year failure to get a diagnosis but I'm hoping someone can advise me....

Hi. I don't know if any of you recall my on- going struggle with ill health and ...

Suecon

•6 years ago

15 Replies

A photosensitivity question

Hello lovely people, I wondered if anyone can help me to understand photosensitivity a bit better. I always get a rash when I go in the sun if I do not have...

Hello lovely people, I wondered if anyone can help me to understand photosensiti...

123MrsG

•6 years ago

19 Replies

SAHARA DUST

Good day everyone, as you may or may not know but recently there has been sahara dust in the atmosphere. Ever since this has started however, I get pains in my...

Good day everyone, as you may or may not know but recently there has been sahara...

Stephanie0210

•6 years ago

12 Replies

Advice to avoid Lupus flare after surgery please

Hi Everyone, I am due to have a hearing implant fitted in my head/skull next week. I will be put to sleep during the surgery and I'll be able to go home on the...

Hi Everyone, I am due to have a hearing implant fitted in my head/skull next wee...

Serser

•6 years ago

18 Replies

Beauty (lip filler, dermal filler) hair laser anyone had these things done with having lupus?

Has anyone had lip filler or dermal fillers without any problems? I have asked this question before a while back. My consultant has said it is safe but when i...

Has anyone had lip filler or dermal fillers without any problems? I have asked t...

Rach459

•6 years ago

12 Replies

Can I just be 25?

Hello all, I’m new to the community! Ive been diagnosed with MTCD+polymyositis+dermatomyositis since I was 20 years old and many flare ups and hair loss later,...

Hello all, I’m new to the community! Ive been diagnosed with MTCD+polymyositis+d...

Mishycake

•6 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2019

Lupus panel and kidney question

Lymph nodes

Pregnancy and Hydroxychoroquine Sulfate (Reconil)

Just a quickie, grateful for life so using a positive mind. My hydroQ was increased to 400mg , weight is falling off is this normal??

New medicine charges/paying for some medicines.

Mild SLE travel to Africa with Malarone recommended

Severely dry skin - do others have this, not diagnosed but do have Sjogrens?

MCTD turned from positive to negative

Absolutely flabbergasted. Does anyone else experience problems with repeat persciptions.

Itchy nail bed/cuticles/fingertips

SLE and fibromyalgia?

Tips and Tricks NEEDED

Do you really have reflux do you have reoccurring yeast infections And are you taking an anti-inflammatory?

Newbie

Pain ANYONE?

Rash and creepy crawling

Disability & free medicine

Waiting for my little treat bag to turn up to help with extremely dry skin! Especially on my palms of my hands and soles of my feet

Dental care - amazing article.. Ive been doing it ALL wrong...!! Essential reading..

POSITIVE ANA but negative antibodies.

Doctor’s Visit

Hormonal pills estrogen progestine

Help create a national register for people with rare rheumatic diseases

Cancer With Lupuz

Help, please

A photosensitivity question

SAHARA DUST

Advice to avoid Lupus flare after surgery please

Beauty (lip filler, dermal filler) hair laser anyone had these things done with having lupus?

Can I just be 25?

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