Hello lovely people,
I wondered if anyone can help me to understand photosensitivity a bit better.
I always get a rash when I go in the sun if I do not have adequate sun protection on. Since being diagnosed with lupus (or a lupus like mctd) I now understand how important it is to wear a high spf.
I was a bit sceptical when my rheumy suggested I should wear spf 50 all year round on exposed areas though.
In February we had some sunny days and I went out in the sunshine without and spf. The next day I felt a bit achy and my joints were sore. I did not get a rash though. There have been some other sunny days where I haven’t gone outside but I have been in the car or sat inside by a window, and I seem to get flarey symptoms the following day. But I’ve not had a rash.
I always thought that being photosensitive meant you get a rash in the sun. But does it also mean that simply being in the sun can trigger other lupus symptoms?
Since starting hydroxy I’ve been feeling a lot better. I’m four months into the treatment now and although things have been going well, I have started getting flarey symptoms again. I’m wondering if these are just spontaneous symptoms or are actually being triggered by the sun. What does photosensitivity actually mean?