Has any one been mistakenly diagnosed with Lympho... - LUPUS UK

LUPUS UK

32,059 members28,384 posts

Has any one been mistakenly diagnosed with Lymphoma? Or had swollen lymph nodes which were suspected could be Lymphoma?

timmysmom profile image
3 Replies

I was recently diagnosed with Lymphoma after a biopsy of a swollen lymph node. I spent 6 weeks thinking l had cancer & preparing for chemo. I was then told my diagnosis was wrong. I have not been diagnosed with lupus but do have a number of the symptoms & my hematologist says that there's some sort of auto immune problem going on. I also have hypothyroidism. Id be grateful for any feed back.

Written by
timmysmom profile image
timmysmom
To view profiles and participate in discussions please or .
Read more about...
3 Replies
donna profile image
donna

Hi timmysmum ,sorry to hear your having such a worrying time.good news that you haven't lymphoma but you still don't know what's going on...! Did you ever have your thyroid anti bodies checked ?or we're you told you were just hypothyroid? Do you have Hashimotos? Which is autoimmune thyroiditis..Are you treated by your GP or do you visit a endo at the hospital?have you joined thyroiduk HU forum? Which would very helpful . l started my journey with this then the Lupus SLE ,Sjogrens,Hughes,Fibro,and lots of other add ons joined my club ! l am currently suffering with painful enlarged lymph glands in my groins and under arms and have had blood tests . maybe a referral to a rheumatologist would help.?i do hope you get sorted soon bestwishes Donna xx

timmysmom profile image
timmysmom

Thanks for your reply Donna, lm only being treated by gp for hypo thyroid which I was only diagnosed with about 10 weeks ago. I have tested positive for thyroid antibodies. I have seen a Rhumy but she didn't think l had lupus & said she'd see me again in a year which Will b January. My swollen lymph node was not painfully which is one reason why Lymphoma was 1st suspected. Pain generally indicates infection, (but lm no expert). May l ask what the blood tests you said you'd had were for? Hope u get the results you want.x

donna profile image
donna in reply to timmysmom

Hi timmys mom..I'm sorry not to have replied sooner just found you reply....didn't get a notification..

Hope you might be feeling brighter with maybe some answers?

As you have tested pos for thyroid anti bodies you have Hashimotos ( autoimmune thyroiditis) have a google there and search thyroid uk HU forum and thyroiduk.org for info....has a hole bag of symptoms..

I am in a pickle at the moment all my glands are up . My GP ran all FBC and a test which tested or C complement .they came back ok...Then I became very ulcerated down below( again) which along with my ulcerated throat..he thinks I have Behcets syndrome..I seem to tick most boxes and have had to raise my prednisalone ..it's a wait and see game.just another thing to add to my bag of autoimmune stuff. With bestwishes Donna x

Not what you're looking for?

You may also like...

does anyone know where to find a flexible job suitable for people with SLE?

Hello everyone, I hope you all are doing good during this days, I wanted to ask if any of you...

Feelings of disappointment

With having Lupus and a few other conditions, being on steroids and suffering from anxiety and...

Colonoscopy update and thanks

Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep -...

Sun protection. Mineral sun lotion on a budget

Staying protected from UV rays is high on many peoples list this week, with layering and staying...

Opthamology appointment re Hydroxychloroquine

Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m...