Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for February 2016

Any advise please

Went with dad today for results of scan last 3 have been good shrunk by half, stable, stable again - this time the scan showed that the tumour looked like it...

Went with dad today for results of scan last 3 have been good shrunk by half, st...

TERRIpassword

•9 years ago

3 Replies

Giving up!

Hi all! Don't know what I should do after the hospital telling my mum that they are stopping her chemo as it isn't working last week she just seems to have...

Hi all! Don't know what I should do after the hospital telling my mum that they ...

1charliebarney

•9 years ago

4 Replies

Lung Cancer Information Day - Manchester 16th March 2016

Hi Everyone, We are hosting a Lung Cancer Information Day in Manchester on the 16th March 2016 which offers support and information to people affected by lung...

Hi Everyone, We are hosting a Lung Cancer Information Day in Manchester on the ...

InformationTeam

Roy Castle•9 years ago

2 Replies

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Breathing pain

hi everyone over the weekend I experienced pain in my neck throat, diaphragm and the top of my chest. When I took a deep breath it would really hurt and hurt...

hi everyone over the weekend I experienced pain in my neck throat, diaphragm an...

Littleannies

•9 years ago

7 Replies

Breathless

Hi all just finished round 2 of chemo now breathless had ct scan for blood clot on lung also blood test for anaemia all test negative.Has anyone else had this...

Hi all just finished round 2 of chemo now breathless had ct scan for blood clot ...

Newby234

•9 years ago

4 Replies

ALK mutation

Hi, I've just been told I have an ALK mutation. I'm stage 4 lung with mets to spine ,pelvis and liver. I'm waiting for a scan after three sessions of...

Hi, I've just been told I have an ALK mutation. I'm stage 4 lung with mets to sp...

Giblets9

•9 years ago

5 Replies

updates on my husband

well last few weeks have been very stressful,husband came home from his stay in hospital where he had a surgical lung biosy done,came home with a chest drain...

well last few weeks have been very stressful,husband came home from his stay in ...

sue2428

•9 years ago

4 Replies

Diana Valentne

To all Rab's friends on this site. Sadly my lovely lovely husband Rab passed away late on Tuesday night, I just cannot imagine my life without him. Thank you...

To all Rab's friends on this site. Sadly my lovely lovely husband Rab passed aw...

Balquhain

•9 years ago

30 Replies

Update on mums tumour growth NSCLC

Not been a great day again! Consultant said that the scan results were not good & that it's not possible to have anymore radiotherapy because it didn't work...

Not been a great day again! Consultant said that the scan results were not good ...

1charliebarney

•9 years ago

6 Replies

Dad has nsclc!!

Hi all, I'm really new to all this chat room stuff, to be honest never thought I'd be in this situation! 2 weeks ago my world came crashing down, my dad was...

Hi all, I'm really new to all this chat room stuff, to be honest never thought I...

Yvonne84

•9 years ago

20 Replies

Lung Cancer Information Day - Manchester 16th March 2016

Hi Everyone, We are hosting a Lung Cancer Information Day in Manchester on the 16th March 2016 which offers support and information to people affected by lung...

Hi Everyone, We are hosting a Lung Cancer Information Day in Manchester on the ...

InformationTeam

Roy Castle•9 years ago

4 Replies

Experience of Nivolumab?

Hello all We are currently looking for patient experience of Nivolumab. It is currently being evaluated by the Scottish Medicines Consortium. If you have any...

Hello all We are currently looking for patient experience of Nivolumab. It is c...

NicF4

Partner•9 years ago

23 Replies

Tumour has grown!

Hi all! My mum has been in hospital for a week now with chronic diarrhoea caused by chemo. She had a scan on Wednesday. She has had 3 gruelling rounds of...

Hi all! My mum has been in hospital for a week now with chronic diarrhoea caused...

1charliebarney

•9 years ago

4 Replies

PNS paraneoplastic neurological syndromes

Has anyone come across PNS or paraneoplastic neurological syndromes? My husband had a seizure on Monday, has been in hospital since. Unable to move or...

Has anyone come across PNS or paraneoplastic neurological syndromes? My husband ...

Hidden

•9 years ago

2 Replies

Lung pain

I had surgery on my lung in 2014. Had right lower lobe removed and to this day when I cough it hurts really bad. I would like to know if this is normal

I had surgery on my lung in 2014. Had right lower lobe removed and to this day w...

Babygirl50

•9 years ago

4 Replies

Latest X ray results

Well was good news yesterday got the all clear great news little bit concerned saw my original consultant from April 2014 wick was when I was first diagnosed...

Well was good news yesterday got the all clear great news little bit concerned s...

esmaleyla

•9 years ago

6 Replies

Symptoms

Hi everyone, I feel like I'm always on here. My hubby's got sclc right lobe and central lymph nodes. He's had four rounds chemo and a month of radio, lung...

Hi everyone, I feel like I'm always on here. My hubby's got sclc right lobe and ...

battybev

•9 years ago

1 Reply

Chemo Side Effects

Hello all I wonder if anyone can give advise or has gone through anything similar. My mum has a rare NSCLC and has had 2 cycles of carboplatin & pemetrexed....

Hello all I wonder if anyone can give advise or has gone through anything simila...

1charliebarney

•9 years ago

4 Replies

Cannabis oil

Hi everyone I have decided to take cannabis oil and it's the most disgusting thing I have ever had to take, I was wondering if there is anyone else out there...

Hi everyone I have decided to take cannabis oil and it's the most disgusting th...

Littleannies

•9 years ago

27 Replies

Night time breathing

Hi new to lung group, since end of September I have had wheezing and whisling from my nose when laying down at night, plus feels as though I am not breathing...

Hi new to lung group, since end of September I have had wheezing and whisling fr...

Ch43351

•9 years ago

4 Replies

Diana Valentine

As no one will know me let me introduce myself, I am Rab Valentine's wife. Rab was so touched this morning to receive so many replies to his blog, Sadly he...

As no one will know me let me introduce myself, I am Rab Valentine's wife. Rab ...

Balquhain

•9 years ago

19 Replies

Still hurting

Diane I had a reception of May of last year remove tumor and some lymph nodes I have had a lot of back pain rib pain ever since the surgery in my case I had to...

Diane I had a reception of May of last year remove tumor and some lymph nodes I ...

merilee

•9 years ago

3 Replies

Insurance

Hi everyone, its a long story but my husband was diagnosed with sclc last august. To shorten the story we had a few relationship problems prior to this and...

Hi everyone, its a long story but my husband was diagnosed with sclc last augus...

battybev

•9 years ago

2 Replies

Hi, my husband was diagnosed with sclc last august and was told its inoperable. He's hadchemo and radio but is suffering terribly with bre

My husband was diagnosed last august with sclc also in the lymph nodes. Non operable. He has had four rounds of chemo and four weeks if radiotherapy to chest...

My husband was diagnosed last august with sclc also in the lymph nodes. Non oper...

battybev

•9 years ago

9 Replies

Matrix

Has anyone been involved in the matrix trial ? I might be a possible candidate and was wondering if anyone had any advice/ info? Was the treatment worth while?

Has anyone been involved in the matrix trial ? I might be a possible candidate a...

Giblets9

•9 years ago

6 Replies

Been away for a bit but.......

Haven't been on the site for a while as been in and out of hospital, more tests and bloods. Good news is I am stable just now. Only problem is the...

Haven't been on the site for a while as been in and out of hospital, more tests ...

Lainey3615

•9 years ago

4 Replies

dizzie-wh

Re Iressa/Gefitinib. I was diagnosed as stage 4 nsclc with pleural effusion in January 2014.Tested egfr positive following a talc pleurodosis. Have been on...

Re Iressa/Gefitinib. I was diagnosed as stage 4 nsclc with pleural effusion in J...

dizzie-wh

•9 years ago

5 Replies

Rocky road to the end of road.

Well my Roy Castle family and friends it does seem that I have come down the rocky road right to the end of the road rather faster than I imagined or liked. I...

Well my Roy Castle family and friends it does seem that I have come down the roc...

Hidden

•9 years ago

24 Replies

? Brain mets

My mum was treated with chemo/radiation for stage 1b nsclc, adenocarcinoma. Treatment went well and ended in September. A ct scan in November showed the tumour...

My mum was treated with chemo/radiation for stage 1b nsclc, adenocarcinoma. Trea...

em16780

•9 years ago

11 Replies

Lung Cancer Information Day - Liverpool 17th March 2016

Hi Everyone, We are hosting a Lung Cancer Information Day in Liverpool on the 17th March 2016 which offers support and information to people affected by lung...

Hi Everyone, We are hosting a Lung Cancer Information Day in Liverpool on the 1...

InformationTeam

Roy Castle•9 years ago

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Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for February 2016

Any advise please

Giving up!

Lung Cancer Information Day - Manchester 16th March 2016

Breathing pain

Breathless

ALK mutation

updates on my husband

Diana Valentne

Update on mums tumour growth NSCLC

Dad has nsclc!!

Lung Cancer Information Day - Manchester 16th March 2016

Experience of Nivolumab?

Tumour has grown!

PNS paraneoplastic neurological syndromes

Lung pain

Latest X ray results

Symptoms

Chemo Side Effects

Cannabis oil

Night time breathing

Diana Valentine

Still hurting

Insurance

Hi, my husband was diagnosed with sclc last august and was told its inoperable. He's hadchemo and radio but is suffering terribly with bre

Matrix

Been away for a bit but.......

dizzie-wh

Rocky road to the end of road.

? Brain mets

Lung Cancer Information Day - Liverpool 17th March 2016

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