Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,915 members • 3,535 posts

All posts for September 2024

A rare lung cancer

I was diagnosed a lung adenocarcinoma, a RET positive fusion mutation in Januarya2024.Am told its a rare cancer. I would like to chat with anyone else here who...

I was diagnosed a lung adenocarcinoma, a RET positive fusion mutation in January...

•1 day ago

Cough

I have incurable lung cancer and currently undergoing immunotherapy treatment. Am due a ct staging scan on Monday and see the consultant in about 3 weeks. If...

I have incurable lung cancer and currently undergoing immunotherapy treatment. A...

•2 days ago

Mum passed away from extensive stage SCLC - tormented by what ifs

Hi there, wondered if I could ask for your advice please? My Mum passed away at the beginning of September from extensive stage small cell lung cancer. It all...

Hi there, wondered if I could ask for your advice please? My Mum passed away at ...

•5 days ago

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Have you had experience of brain or bone mets?

Hello all, Roy Castle Lung Cancer Foundation are updating our booklets as we do regularly to ensure they keep up with changes in treatment. We are looking...

Hello all, Roy Castle Lung Cancer Foundation are updating our booklets as we ...

Partner•7 days ago

Any advice stage 4 lung cancer

Hi, looking for any advice or suggestions or positive stories to help us. My dad, who is 72 years old, has been on a roller coaster journey in the last couple...

Hi, looking for any advice or suggestions or positive stories to help us. My dad...

•8 days ago

So Fatigued

Hi There, My partner has stage 4 SCLC diagnosed 26th July. It has not responded to first line platinum chemo and has infact got bigger as it is resistant and...

Hi There, My partner has stage 4 SCLC diagnosed 26th July. It has not responded...

•11 days ago

quality of life

I'm very low at the moment because there's not much that Ican do. I long to be out on a clifftop walking. I'd like to be anywhere other than my living...

I'm very low at the moment because there's not much that Ican do. I long to b...

•12 days ago

Advice

Morning everyone, hope we are all keeping well. I have previously posted on here about mum, who has severe COPD and SCLC. She has undergone horrendous chemo...

Morning everyone, hope we are all keeping well. I have previously posted on here...

•18 days ago

Planning Scan

Having the planning scan for the cancer treatment tomorrow, doc assures me it's painless and quick. Anyone have any personal experiences of this scan?

Having the planning scan for the cancer treatment tomorrow, doc assures me it's ...

•18 days ago

Awareness month coming up, would you like to feature?

November is lung cancer awareness month. This a time when the charity tries to raise the profile of lung cancer. If you would be willing to take part please do...

November is lung cancer awareness month. This a time when the charity tries to r...

Partner•22 days ago

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PATIENT EXPERIENCE OF DURVALUMAB (IMFINZI)

Durvalumab (Imfinzi) will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland. The indication this medicine will be assessed...

Durvalumab (Imfinzi) will shortly be assessed by the Scottish Medicine Consortiu...

RoyCastleHelpline

Partner•24 days ago

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Tagrisso and inflammation

I started with an eczema in September 2023. This was the first time I ever had a skin problem. Between Sept to Dec we tried everything to understand why I...

I started with an eczema in September 2023. This was the first time I ever had...

•24 days ago