Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,782 members • 3,466 posts

All posts for October 2017

Help ncslc stage 2a

I was diagnosed stage 2a ncslc and my Dr says 6 cm to our in right lung lobe near chest wall, so I was ordered to do 3 rounds of chemo cicplatain with ampla...

I was diagnosed stage 2a ncslc and my Dr says 6 cm to our in right lung lobe ne...

Lovey1000

•6 years ago

1 Reply

Leg Pain with Chemo

Hello Everyone My dad has started chemo - week one ok but week two onwards he is getting aching legs and knees - anyone else had this? He is on Pemetrexed and...

Hello Everyone My dad has started chemo - week one ok but week two onwards he is...

SJR43

•6 years ago

5 Replies

Proton beam

How do I get proton beam therapy for a cardiac tumour NHS or private ,anyone out there know about this ,my cardiac tumour may get me first so I am keen to...

How do I get proton beam therapy for a cardiac tumour NHS or private ,anyone out...

Hidden

•6 years ago

2 Replies

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Time for my story.

Hi, I've been reading posts on here for a while now but as yet not told my story, so here goes. I had a funny turn about 5 yrs ago and my doctor said it looks...

Hi, I've been reading posts on here for a while now but as yet not told my story...

livvyloot

•6 years ago

5 Replies

Up date lung cancer brain mets

Well what can i say things arnt going well my husband hasnt eaten anything now for 13 days and drinking less and less may be half a cup in total a day .his...

Well what can i say things arnt going well my husband hasnt eaten anything now f...

miasam

•6 years ago

10 Replies

Just so sad

My dad has stage 4 lung cancer. His first line treatment did nothing and was stopped as his kidneys were damaged by it. We have been on a year wait and watch....

My dad has stage 4 lung cancer. His first line treatment did nothing and was sto...

Jill83

•6 years ago

5 Replies

What now mam is nsclc 3a

Mam has finished her chemo and radio treatment ...what now ? Will she have tp have more chemo ? Man is nsclc 3a inoperable

Mam has finished her chemo and radio treatment ...what now ? Will she have tp ha...

Hope1972

•7 years ago

2 Replies

Just live day by day, Life is precious make the most of it, off to Sunshine States for 3 months.

when my husband diagnosed with Stage 3 SCLC T4 N1 , 7 months ago, I thought he could not make it. He had Chemoradiaton, 4 cycle of Chemo and 25 Radiation, and...

when my husband diagnosed with Stage 3 SCLC T4 N1 , 7 months ago, I thought he c...

salakot

•7 years ago

10 Replies

Paraneoplastic neuropathy?

I have been on Gefitinib successfully for 15 months now, but have recently started to experience a sporadic discomfort in my midriff region. It's difficult to...

I have been on Gefitinib successfully for 15 months now, but have recently start...

Neil-SueD

•7 years ago

5 Replies

Switch to maintenance pemetrexed after only four cycles of pemetrexed/cisplatin?

Hi, I would be grateful for any help / experiences of this. Initially my mum and I were told by the oncologist that my mum would receive 4 or 6 cycles if she...

Hi, I would be grateful for any help / experiences of this. Initially my mum a...

Esme85

•7 years ago

5 Replies

Update

The last fortnight has been one I don't wish to repeat. Firstly he was in hospital and diagnosed with a blood clot in his lung and neutrophils. He got home for...

The last fortnight has been one I don't wish to repeat. Firstly he was in hospit...

Dismal

•7 years ago

6 Replies

EGFR Exon 20 mutation NSCLC PATIENTS

Calling all lung cancer patients with an EGFR or HER2 Exon 20 mutation. I have recently enrolled on a clinical trial in the United States which has had some...

Calling all lung cancer patients with an EGFR or HER2 Exon 20 mutation. I have ...

Hillyblue

•7 years ago

1 Reply

Large lump in neck

Hi, my dad has been in remission for 2 years from lung cancer, had chemo then surgery. Last CT in late June was all good so scans moved to every 4 months...

Hi, my dad has been in remission for 2 years from lung cancer, had chemo then su...

Millisa

•7 years ago

10 Replies

What are the most common symptoms of lung cancer?

Hi all, I'm really sorry if I offend anyone with my post. I'm really worried I have lung cancer, basically I've had this cough for around 2/3 years and the...

Hi all, I'm really sorry if I offend anyone with my post. I'm really worried I ...

Benji123

•7 years ago

9 Replies

Living with small cell lung cancer

My husband was diagnosed with small cell lung cancer in June 2016. After ten years of battling with this cruel disease my husbands diagnosis hit us like a...

My husband was diagnosed with small cell lung cancer in June 2016. After ten yea...

Elaine141

•7 years ago

8 Replies

Im date lung cancer brain mets

Well thought id let you know whats happening now as you have been threw most off my journey. My husband has gone down hill a bit he hasnt eaten in 5 days...

Well thought id let you know whats happening now as you have been threw most off...

miasam

•7 years ago

10 Replies

I'm new here...

Hello, I'm a 28 year old female non smoker and was diagnosed with Stage IV ALK-positive non-small cell lung cancer (NSCLC) (Anaplastic Lymphoma Kinase) in...

Hello, I'm a 28 year old female non smoker and was diagnosed with Stage IV ALK-...

ALK-positive89

•7 years ago

9 Replies

Spot1995

Hi ther I have secondary breast cancer I wanted too know has anyone had An oncofocus cancer test

Hi ther I have secondary breast cancer I wanted too know has anyone had An onc...

Spot1995

•7 years ago

3 Replies

Fed up with the nhs

I don't no what to do, ct scan showed lung nodules.why ant they doin anythin. I've bin left for a year in pain.what do I have to do sell my house go private????

I don't no what to do, ct scan showed lung nodules.why ant they doin anythin. I'...

Rockstar662002

•7 years ago

16 Replies

A trial looking at stereotactic ablative radiotherapy for non small cell lung cancer (SARON)

This trial is funded by CRUK, sponsored by UCL and coordinated at UCL Cancer Trials Centre (UCL CTC) in London. We are unable to help advise on individual...

This trial is funded by CRUK, sponsored by UCL and coordinated at UCL Cancer Tri...

OllieScott

•7 years ago

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Looking after someone with Lung Cancer Information Needs Survey

We are looking to produce an information resource for people who look after someone affected by lung cancer. It is your feedback that will inform what are...

We are looking to produce an information resource for people who look after some...

OllieScott

•7 years ago

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Latest part of the lung cancer journey .

Last week got admitted to hospital with another seizure caused ? By brachicardia pulse dropped to 35bpm due to ? Cardiac tumour .Anyway good result I have been...

Last week got admitted to hospital with another seizure caused ? By brachicardia...

Hidden

•7 years ago

3 Replies

Adrenal lesion

Hi. I was diagnosed with right upper lung NSLC last December and had a lobeectory in March. The staging at that point was pT2aN1M0 as it had spread to the...

Hi. I was diagnosed with right upper lung NSLC last December and had a lobeector...

seasidebob

•7 years ago

1 Reply

Sadness

It is with much pain in my heart to say that sclc has beaten my hubby. He fought so hard many times we have been told that he wouldn't be here and that he was...

It is with much pain in my heart to say that sclc has beaten my hubby. He fought...

Jacs55

•7 years ago

10 Replies

Mum has been diagnosed with lung cancer yesterday.

I'm numb with shock and distress! It's been a whirlwind the past two weeks. My mum has been complaining for 12 months with an ache in her back. She visited her...

I'm numb with shock and distress! It's been a whirlwind the past two weeks. My m...

Hopes77

•7 years ago

5 Replies

Crizotinib

Hi everyone I am 55 months non smoker with stage4 NSCC I have been on crizotinib all treatment for 4 weeks. I believe it's got a 60 percent success figure...

Hi everyone I am 55 months non smoker with stage4 NSCC I have been on crizotinib...

Mikest1

•7 years ago

9 Replies

Research to help people living with and beyond cancer – Have your say and help us to improve the lives of people affected by cancer

Are you a cancer patient first diagnosed as an adult? Do you look after or have you looked after people who were first diagnosed with cancer as adults? Are you...

Are you a cancer patient first diagnosed as an adult? Do you look after or have ...

OllieScott

•7 years ago

Be the first to reply

Heart damage by blood clot following chemotherapy

Hello This is my first post My husband had a lobectomy in March followed by 4 cycles of chemotherapy.He was very healthy before the operation and...

Hello This is my first post My husband had a lobectomy in March followed by 4 ...

kennetti

•7 years ago

1 Reply

Hospital

Yesterday was awful. My husband's breathing deteriorated rapidly and he felt awful. I had to leave him at hospital which was so hard. He has a blood clot so I...

Yesterday was awful. My husband's breathing deteriorated rapidly and he felt awf...

Dismal

•7 years ago

5 Replies

Bexsta35

my mum has recently had a left lung lobectomy they removed the tumour it was 6.2 cm, test showed it had not travelled to the lymph nodes. however they have...

my mum has recently had a left lung lobectomy they removed the tumour it was 6.2...

Bexsta35

•7 years ago

1 Reply

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for October 2017

Help ncslc stage 2a

Leg Pain with Chemo

Proton beam

Time for my story.

Up date lung cancer brain mets

Just so sad

What now mam is nsclc 3a

Just live day by day, Life is precious make the most of it, off to Sunshine States for 3 months.

Paraneoplastic neuropathy?

Switch to maintenance pemetrexed after only four cycles of pemetrexed/cisplatin?

Update

EGFR Exon 20 mutation NSCLC PATIENTS

Large lump in neck

What are the most common symptoms of lung cancer?

Living with small cell lung cancer

Im date lung cancer brain mets

I'm new here...

Spot1995

Fed up with the nhs

A trial looking at stereotactic ablative radiotherapy for non small cell lung cancer (SARON)

Looking after someone with Lung Cancer Information Needs Survey

Latest part of the lung cancer journey .

Adrenal lesion

Sadness

Mum has been diagnosed with lung cancer yesterday.

Crizotinib

Research to help people living with and beyond cancer – Have your say and help us to improve the lives of people affected by cancer

Heart damage by blood clot following chemotherapy

Hospital

Bexsta35

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