Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,785 members • 3,467 posts

All posts for April 2021

Time from finishing cycles until scans?

Hi. I was just wondering what the typical sort of time is between finishing chemo cycles and radiotherapy before having scans etc to see how much they’ve...

Hi. I was just wondering what the typical sort of time is between finishing chem...

•3 years ago

Steroid side effects

Hi Has anyone on here experienced bloatness of the face and neck with steroids. My doctor is now starting to ween me off gradually just wondered how long it...

Hi Has anyone on here experienced bloatness of the face and neck with steroids. ...

•3 years ago

Would you like to share your opinions on what NHS lung cancer information is created and shared?

Are you a lung cancer patient or carer who would be interested in joining a patient focus group? The National Lung Cancer Audit (NLCA) is seeking those...

Are you a lung cancer patient or carer who would be interested in joining a pati...

Partner•3 years ago

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Can you share your views on helping people with lung cancer who want to quit smoking?

Hello all We have been approached by Bristol University who are carrying out some research to help people quit smoking. There are 2 ways to get involved: 1....

Hello all We have been approached by Bristol University who are carrying out som...

Partner•3 years ago

Swallowing problems

Hi everyone, My dad has been on intense chemotherapy and radiotherapy for the past 3 weeks. His first week was with chemo and radio and the past 2 weeks has...

Hi everyone, My dad has been on intense chemotherapy and radiotherapy for the pa...

HopefulAnnie101

•3 years ago

Pain similar to sinus trouble.

Hello everyone. I am hoping you might be able to help. I have stage 4 lung cancer and have been having carboplatin chemotherapy and immunotherapy for the...

Hello everyone. I am hoping you might be able to help. I have stage 4 lung canc...

•3 years ago

Upper back pain first symptom?

Did any one else have their first symptom be UPPER BACK PAIN/CHEST PAIN WHEN BREATHING? Don't worry, I am working with my primary care and addressing it this...

Did any one else have their first symptom be UPPER BACK PAIN/CHEST PAIN WHEN BRE...

•3 years ago

Anybody had any of these tests

Hello having to have a load of tests next week MRI Head scan with contrast .Lung function ,Pet ct scan and Eblus camera and another covid swab . Dr did say...

Hello having to have a load of tests next week MRI Head scan with contrast .Lung...

•3 years ago

Does anyone have experience with Immunotherapy Atezolizumab?

Hi, I was diagnosed with LC stage 4 in Dec and had 3 cycles of Gencarbo which sadly did not have any impact. I have limited options available moving forward...

Hi, I was diagnosed with LC stage 4 in Dec and had 3 cycles of Gencarbo which sa...

•3 years ago

Thank you

Thanks for all your support. My friend lost his battle today. It’s been so quick, less than 2 weeks from diagnosis and he is gone. I can’t believe it. His wife...

Thanks for all your support. My friend lost his battle today. It’s been so quick...

•3 years ago

Help to be the voice of Lung Cancer........

Roy Castle Lung Cancer Foundation is a member of an international organisation called the Global Lung Cancer Coalition (GLCC) which aims to be the...

Roy Castle Lung Cancer Foundation is a member of an international organisation c...

•3 years ago

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Some helpful advice

My husband has been diagnosed with lung cancer at a very advanced stage which is also in his chest and lymph nodes diagnosed late February and been told there...

My husband has been diagnosed with lung cancer at a very advanced stage which is...

•3 years ago

I am in my second cycle of Durvalumab and AZD 6738.

I was wondering if anyone else is on this and which side effects they are having. I was given ondansetron for nausea and it caused slight condtapstion. The...

I was wondering if anyone else is on this and which side effects they are having...

•3 years ago

Please be aware

Sorry if this post is upsetting to anyone, but we want to make as many people aware who have morphine and other drugs in the house. As my previous post...

Sorry if this post is upsetting to anyone, but we want to make as many people aw...

•3 years ago

Brain mets

Hi everyone, I just wondered if if you had any tips on dealing with the side effects of SRS. I have 4 very small mets that I’m having treated in one session...

Hi everyone, I just wondered if if you had any tips on dealing with the side eff...

•3 years ago

Update

Hello had to have a Covid swab before the Bronscopy next Wednesday it’s only come back as positive I’m only 8 days out of isolation and knew it would. It’s...

Hello had to have a Covid swab before the Bronscopy next Wednesday it’s only com...

•3 years ago

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Treatment end

So yesterday was advised that scan shows progression in the lung and a liver met. Treatment is not helping so discontinued. Carry on now with palliative care....

So yesterday was advised that scan shows progression in the lung and a liver met...

•3 years ago

Feel helpless

My friend has cancer in both lungs, metastasised to thorax and brain. His left lung has collapsed due to position of tumour and he’s struggling to breathe....

My friend has cancer in both lungs, metastasised to thorax and brain. His left l...

•3 years ago