Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

6,049 members•3,603 posts

All posts for March 2025

still in shock

Ten days ago I believed that my husband aged 73 just had a really bad cough, two days later he had an emergency operation to save his life which meant a stent...

Ten days ago I believed that my husband aged 73 just had a really bad cough, two...

Idontlikeyoghurt

•1 day ago

Neuropathic Pain & Poor A&E Experience

Hi, I was diagnosed with a stage 4 small cell lung cancer in February it had metastasized into 8 areas, I am 58 years old. It was a bit of a shock and it has...

Hi, I was diagnosed with a stage 4 small cell lung cancer in February it had met...

•3 days ago

PATIENT EXPERIENCE OF NTRK FUSION POSITVE LUNG CANCER

We are looking for anyone who would be willing to share their experience of the NTRK fusion positive mutation (Neurotrophic tropomyosin receptor kinase ) who...

We are looking for anyone who would be willing to share their experience of the ...

RoyCastleHelpline

Partner•4 days ago

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When will my dad leave hospital?

Hello, My father was admitted to hospital last Tuesday with high calcium. A CT scan was done and suspected lung cancer that has spread to the liver was...

Hello, My father was admitted to hospital last Tuesday with high calcium. A CT ...

•5 days ago

Father newly diagnosed

hello, my father has recently been diagnosed with lung cancer that has spread to the liver. He is still in hospital with high calcium and diarrhoea. He has...

hello, my father has recently been diagnosed with lung cancer that has spread to...

•5 days ago

Shocked

At the moment still in shock. I’m an artist and I’m used to looking at other people and seeing them however I obviously haven’t seen myself. Outwardly I...

At the moment still in shock. I’m an artist and I’m used to looking at other pe...

•9 days ago

PATIENT EXPERIENCE OF AMIVANTAMAB OR LIVING WITH EGFR EXON 20 MUTATION

Amivantamab (Rybrevant) in combination with carboplatin and pemetrexed, will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS...

Amivantamab (Rybrevant) in combination with carboplatin and pemetrexed, will sho...

RoyCastleHelpline

Partner•10 days ago

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Early stage non-small cell, study request

Share your experience of early-stage non-small cell lung cancer - Have you had surgery or radiotherapy for early-stage non-small cell lung cancer within the...

Share your experience of early-stage non-small cell lung cancer - Have you had ...

Partner•14 days ago

Cancer now in Liver

I’ve had a number of trials, mainly focusing on my right lung. However after a CT Scan then a Liver MRI which showed the cancer had spread to the liver. What...

I’ve had a number of trials, mainly focusing on my right lung. However after a C...

•17 days ago

Looking for information & support north London?

Hello all A gentle reminder our next Information Day takes place on Wednesday 19th March, SandyLodge Golf club, HA6 2DJ. The event is being run with the...

Hello all A gentle reminder our next Information Day takes place on Wednesday...

Partner•20 days ago

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Neuroendocrine carcinoid tumour- NHS v Private query

hello all, I am new here, having had a lung Lobectomy for a typical carcinoid tumour a month ago. My diagnosis was a bit disjointed- I am lucky enough to have...

hello all, I am new here, having had a lung Lobectomy for a typical carcinoid tu...

•21 days ago

HER 2 lung cancer

Hi Does anyone have the HER 2 mutation and if so other than the standard treatment for NSCLC have you been offered anything that targets the HER2 mutation?...

Hi Does anyone have the HER 2 mutation and if so other than the standard treatm...

•25 days ago

LUNG CANCER SURGERY - ONLINE SUPPORT GROUP

We have a new Lung Cancer Surgery support group starting next week, Tuesday 11th of March. The group will be held over Zoom and last for an hour, 7-8pm. If...

We have a new Lung Cancer Surgery support group starting next week, Tuesday 11th...

ConnectRoyCastle

Administrator•27 days ago