Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,782 members • 3,466 posts

All posts for July 2021

Stitch taken out from drain

After having my stitches out from my drain site , I coughed and fluid shot out , I had a sore breastbone, which has now eased ,I’m presuming because of a build...

After having my stitches out from my drain site , I coughed and fluid shot out ,...

•3 years ago

Good News and Bad News

Saw my oncologist the other day good news the Radiotherapy worked and killed the cancer in my central chest. Bad news cancer has spread to other lymph nodes in...

Saw my oncologist the other day good news the Radiotherapy worked and killed the...

•3 years ago

Enlarged lymph node

Hi, I had NSCLC in my right lower lobe last July and had thoracic surgery to remove the lobe. Fortunately, I didn’t require further treatment as it had been...

Hi, I had NSCLC in my right lower lobe last July and had thoracic surgery to rem...

•3 years ago

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Looking for others going through similar

Hi I am been diagnoses with small cell lung cancer, possible in the brain as well just waiting on scan wondering if there are others on here with similar or...

Hi I am been diagnoses with small cell lung cancer, possible in the brain as wel...

•3 years ago

Hot weather and breathing

Hubby struggling to breath in heat. Any ideas? He is Stage 4 NSCLC for 18 months and not currently on treatment but left lung collapsed so working on 1 only...

Hubby struggling to breath in heat. Any ideas? He is Stage 4 NSCLC for 18 mon...

•3 years ago

SRS hair loss

Hi everyone. I had SRS to four small brain mets just over 3 months ago. I started to lose some hair several weeks after but 3 months later it’s still falling...

Hi everyone. I had SRS to four small brain mets just over 3 months ago. I starte...

•3 years ago

Follow up from yesterday

So thank you to everyone for replying to my first post We’ve been today for the biopsy which went well and the consultant came to see us, it’s already at T4...

So thank you to everyone for replying to my first post We’ve been today for th...

•3 years ago

Any advice appreciated

Hello I’m writing on behalf of my mum and just to gain some advice from others really So this has happened very quickly she only had an X-ray last week then...

Hello I’m writing on behalf of my mum and just to gain some advice from others ...

•3 years ago

Newly diagnosed

Hello I have just been diagnosed with non small cell adeno carcinoma.. right lung .. I have a biopsy set for Monday and a meeting with the oncologist NHS on...

Hello I have just been diagnosed with non small cell adeno carcinoma.. right lu...

purpleorchid123

•3 years ago

PVL1 Tests are 100% Good - What does this mean?

Told today at my Chemo session that the PVL1 tests are back & 100% good. Will this help in future treatment?

Told today at my Chemo session that the PVL1 tests are back & 100% good. Will th...

•3 years ago

Travel insurance post lung cancer treatment

Boring practical question to lighten the mood. Any lung cancer survivors out there struggle getting travel insurance, or is it not factored in? Thanks guys

Boring practical question to lighten the mood. Any lung cancer survivors out the...

•3 years ago

Wheezing chest after eating

Hello all, I’m 10 months in remission following Stage 3 NSCLC, lobectomy and chemo. I’ve been in good health but over the last week I’ve developed a real,...

Hello all, I’m 10 months in remission following Stage 3 NSCLC, lobectomy and che...

•3 years ago

Dose reduction, advice please?

Hello I was just wondering if anyone has had a dose reduction from Ceritinib? I have been taking it successfully for 2 and a half years on the full dose of...

Hello I was just wondering if anyone has had a dose reduction from Ceritinib? I ...

•3 years ago

GemCarbo Chemo - Positive Side Effect

I have NSC cancer in left Lung, think it's stage 3. I'm on GemCarbo Chemo, at end of 2nd out of 3 cycles. My cough & bringing up Phlegm has greatly reduced...

I have NSC cancer in left Lung, think it's stage 3. I'm on GemCarbo Chemo, at e...

•3 years ago

Ps

Continuing on from my last post I gave EGFR but read one of notes that says I have PD-L1 does anybody know anything about it

Continuing on from my last post I gave EGFR but read one of notes that says I ha...

•3 years ago

Rash

Hi Iv been on 50mg afatinib now for 14 months though I struggle with the rash Iv got antibiotics if it gets too bad just wondering if if ever settles on it’s...

Hi Iv been on 50mg afatinib now for 14 months though I struggle with the rash Iv...

•3 years ago