Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,778 members • 3,464 posts

All posts for October 2019

Scan verdict, reason to be positive?!

So mum got her results today. She’s been on pem / carb chemo for 3 infusions and the doctor wasn’t happy with the progress. He didn’t say that it had spread to...

So mum got her results today. She’s been on pem / carb chemo for 3 infusions and...

•4 years ago

Media interest illness and difficulty with finances

We have been approached by a UK wide free paper. They are doing a series of articles on financial difficulties. They wish to interview someone who has had...

We have been approached by a UK wide free paper. They are doing a series of arti...

Partner•4 years ago

ALK positive - Alectinib or Crizotinib?

Hello! My mum has been newly diagnosed as having ALK positive lung cancer, with brain mets. The NHS oncologist we are seeing wants to prescribe Crizotinib but...

Hello! My mum has been newly diagnosed as having ALK positive lung cancer, with ...

snoopycapricorn

•4 years ago

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Scanxiety is definitely real!!

Hi there, so mum has the results of her first CT scan very soon. We are terrified. She seems well and has no new symptoms or worsening. No obvious reasons to...

Hi there, so mum has the results of her first CT scan very soon. We are terrifie...

•4 years ago

Drug Submission time again. We are looking to speak to anyone who has experience of Loratinib (Lorviqua)

lorlatinib (Lorviqua) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHSScotland, and to invite you to provide a Patient Group...

lorlatinib (Lorviqua) will shortly be assessed by the Scottish Medicines Consort...

Partner•4 years ago

Hi had my results today, just need a bit of radiotherapy, on my ribs.

hi everyone hope your all coping ok and believing 100% you'll beat it, I had my results this morning, and I explained to my new oncologist I'd been having a...

hi everyone hope your all coping ok and believing 100% you'll beat it, I had my ...

•5 years ago

Cranial Radiotherapy

Hello there!!! My dear mum has / had stage 4 small cell lung cancer.. She has had all her chemo and due to the cancer shrinking so much, they aren’t doing...

Hello there!!! My dear mum has / had stage 4 small cell lung cancer.. She has ...

•5 years ago

Some advice on how to approach day to day events whilst going through chemo.

So mum has her scan tomorrow and we find out after her next oncologist appointment whether the chemo is working. I’m hopeful and praying that it’s working....

So mum has her scan tomorrow and we find out after her next oncologist appointme...

•5 years ago

Christmas warning for UK residents.

Please tell your friends and families.

Please tell your friends and families.

•5 years ago

STOPTOBER ..... DAY 9

Just a reminder to any members who are still smoking , Stoptober is aimed at helping people stop smoking within 28 days. This can be found on the N.H.S.site....

Just a reminder to any members who are still smoking , Stoptober is aimed at hel...

•5 years ago

Nerve pain

3weeks since my lobectomy and numbness and nerve pain pretty bad. Taking 10mg Amitriptiline once a day but not helping at all . Can anyone give my advice to...

3weeks since my lobectomy and numbness and nerve pain pretty bad. Taking 10mg Am...

•5 years ago

Ct chest scan

Is it normal to have to wait 4 months for ct scan. Had chest infection in May..xray showed white shadow on left lung.. Which I was told was infection.. Was...

Is it normal to have to wait 4 months for ct scan. Had chest infection in May..x...

•5 years ago

How many bumps are on this road again???

Admitted to hospital with what I thought was a chest infection and bad reaction to antibiotics on Monday - turns out I have 2 sites of Mets on the brain....

Admitted to hospital with what I thought was a chest infection and bad reaction ...

•5 years ago

Media/ Pharmaceutical request

We are looking for someone in Scotland who would be willing to talk about either their experience of pembrolizumab, or if no experience of immunotherapy the...

We are looking for someone in Scotland who would be willing to talk about either...

Partner•5 years ago

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1 year on with Stage 3b

Well thought it was time to update on my strange year of Lung Cancer. What a year it has been I was diagnosed 1year today and thank god I was diagnosed and...

Well thought it was time to update on my strange year of Lung Cancer. What a yea...

•5 years ago