Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,778 members • 3,464 posts

All posts for January 2020

No Appetite no energy is this normal

Hi My Mum was diagnosed with Stg 3 lung cancer in October, she had 5 days of radiotherapy in November and apart from that on no medication or not getting any...

Hi My Mum was diagnosed with Stg 3 lung cancer in October, she had 5 days of rad...

•4 years ago

Anyone been given a 2nd go at Immunotherapy?

My husband was given 4 lots of immunotherapy as his first line treatment which they stopped & transferred him on to chemo as they said it wasn't working. He...

My husband was given 4 lots of immunotherapy as his first line treatment which t...

•4 years ago

Next ALK Positive UK meeting

Anyone who is ALK Positive, or their family member or friend is are welcome.

Anyone who is ALK Positive, or their family member or friend is are welcome.

•4 years ago

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cancer in the lining of my brain

hi everyone just giving you my latest update, and despite this I'm still feeling so positive despite my oncologist thinking I'm now on the back straight of my...

hi everyone just giving you my latest update, and despite this I'm still feeling...

•4 years ago

Pemetrexed caused kidney injury

My husband had 6 months of immunotherapy which didn't work. Then 6 rounds of carboplatin and pemetrexed followed by maintenance pemetrexed. The long term use...

My husband had 6 months of immunotherapy which didn't work. Then 6 rounds of car...

•4 years ago

Stay positive

Just wanted to say it’s been 9 yrs since I was diagnosed with stage 4 lung cancer, I’ve had chemotherapy twice, radiotherapy to lymph glands to chest wall and...

Just wanted to say it’s been 9 yrs since I was diagnosed with stage 4 lung cance...

•4 years ago

Sleep

Anyone else wide awake at 4 or5 every morning, I get out of bed so that I don’t disturb my wife , I have stage 2 Copd as well as stage 4nscc . I would be...

Anyone else wide awake at 4 or5 every morning, I get out of bed so that I don’t ...

•4 years ago

Photodynamic therapy

Anyone experienced PDT photodynamic therapy for lung cancer of the BRONCHI? I have just undergone the treatment at wythenshawe hospital. Cathy

Anyone experienced PDT photodynamic therapy for lung cancer of the BRONCHI? I ha...

•4 years ago

Post op complications and concerns

Good Morning I was diagnosed with adenocarcinoma in my right lung in June 2019 and had a thoracotomy to remove it ( a 10cm tumour) and the right lower lobe in...

Good Morning I was diagnosed with adenocarcinoma in my right lung in June 2019 ...

•4 years ago

More questions - Bone metastases

Hello again, I hope it's ok to ask this here. Is there anyone around who has experienced bone metastasis. I'm getting some weird sensations and before I get...

Hello again, I hope it's ok to ask this here. Is there anyone around who has ex...

•4 years ago

Some good news!

I feel it important to share the good news, mums appointment went really well. Keytruda has worked and the tumour has had significant reduction in size. So...

I feel it important to share the good news, mums appointment went really well. K...

•4 years ago

Dipnech

Hi.i have had a lobectomy ti remove small cancerous tumour They have found evidence of Dipnech too but I'm not sure what this is or how it will affect me Has...

Hi.i have had a lobectomy ti remove small cancerous tumour They have found evide...

•4 years ago

Protocol; genetic testing

Hello it's me again! I hope so many questions is not bothering anyone. I have an active mind, especially since having seen so many things overlooked in the...

Hello it's me again! I hope so many questions is not bothering anyone. I have ...

•4 years ago

Vomiting and sickness on keytruda?

Has anyone had the above? Mum seems to get it suddenly and it’s only happened a handful of times since November. She also has a bowel condition so we’re aware...

Has anyone had the above? Mum seems to get it suddenly and it’s only happened a ...

•4 years ago

Two Primary Cancers at the Same Time

Hi, I'm new here and this is my first post. I have been diagnosed with two primary nsclc cancers in both my left and right lungs. They have been caught early...

Hi, I'm new here and this is my first post. I have been diagnosed with two prima...

•4 years ago

Inconclusive CT-scan and X-ray results

Whilst currently experiencing rib pain, occasional back discomfort and loss of appetite, the team of experts are struggling to diagnose my X-ray and CT scans....

Whilst currently experiencing rib pain, occasional back discomfort and loss of a...

•4 years ago

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My Dad

Hi all, thanks ever so much for all the previous advice, helpful words and encouragement. I'm sorry to not have replied yet. It's been hectic. I've made it...

Hi all, thanks ever so much for all the previous advice, helpful words and encou...

•4 years ago

Goodbye and thank you

Hi everyone I am sorry to say that my husband died 10 days ago. We knew it was our last Christmas together and he was home on Christmas day which was what he...

Hi everyone I am sorry to say that my husband died 10 days ago. We knew it was ...

•4 years ago

Sclc complications

my mum was diagnosed with SCLC on 11th Oct had her first cycle of chemo carboplatin and eptoposide on 21st oct none since due to sickness diarrhoea then chest...

my mum was diagnosed with SCLC on 11th Oct had her first cycle of chemo carbopla...

•4 years ago

Sclc complications

my mum was diagnosed with SCLC on 11th Oct had her first cycle of chemo carboplatin and eptoposide on 21st oct none since due to sickness diarrhoea then chest...

my mum was diagnosed with SCLC on 11th Oct had her first cycle of chemo carbopla...

•4 years ago

Be the first to reply

Sclc complications

my mum was diagnosed with SCLC on 11th Oct had her first cycle of chemo carboplatin and eptoposide on 21st oct none since due to sickness diarrhoea then chest...

my mum was diagnosed with SCLC on 11th Oct had her first cycle of chemo carbopla...

•4 years ago

Be the first to reply

Holiday insurance

I am having immunotherapy for melanoma. I am cancer free now but my insurance company won’t insure me. Can anyone recommend an insurance company. I’ve heard...

I am having immunotherapy for melanoma. I am cancer free now but my insurance co...

•4 years ago