Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,782 members • 3,467 posts

All posts for September 2017

Treatment results

Hi all, My mum has recently gone through 6 rounds of chemo and 6 weeks of chest radiotherapy, followed by 2 weeks of brain radiotherapy - for small cell...

Hi all, My mum has recently gone through 6 rounds of chemo and 6 weeks of che...

Saddolly

•7 years ago

4 Replies

Sleep

Just want share a positive thought ,I am now on 2mg of Dexamethasone daily and slept last night for a whole 51/2hours .Feeling like a human being at last...

Just want share a positive thought ,I am now on 2mg of Dexamethasone daily and s...

Hidden

•7 years ago

5 Replies

Rare Cancer

I had a removal of what was supposed to be a large cyst, In May this year. In June I I was told that following Thoracotomy for right upper lung lobe removal....

I had a removal of what was supposed to be a large cyst, In May this year. In Ju...

Daisy47

•7 years ago

4 Replies

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Oncologist appt

We've been to see moms oncologist today , she's halfway through her chemo and the results from her scan were positive in the sense that the cancer has reduced...

We've been to see moms oncologist today , she's halfway through her chemo and th...

Chap-man

•7 years ago

2 Replies

Looking for Help!

I’m not sure where to post this information, but thought that I would start here to try and gain a better understanding of what is happening to me and to seek...

I’m not sure where to post this information, but thought that I would start here...

dscontroller

•7 years ago

8 Replies

Chemotherapy

So today was my husband's third chemotherapy. He's coping well with very few side effects. The staff are lovely and care for both of us. This week is also the...

So today was my husband's third chemotherapy. He's coping well with very few sid...

Dismal

•7 years ago

14 Replies

Small Cell Lung Cancer

My mom was diagnosed with small cell lung cancer in January this year. T4 N2 M0 - stage 3b. She was given 6 doses of Carboplatin on a 3 weekly cycle....

My mom was diagnosed with small cell lung cancer in January this year. T4 N2 M0...

karenmarriott99

•7 years ago

3 Replies

Car fumes - potentially cause of Lung Cancer

Yesterday I received my 2nd dose of Chemo for Lung Cancer. Originally it was diagnosed as “small cell lung cancer” after I’d had a bronchopathy biopsy. It's a...

Yesterday I received my 2nd dose of Chemo for Lung Cancer. Originally it was di...

Sandals

•7 years ago

9 Replies

Drugs

Well here is a daft thing I did yesterday ,I have not been sleeping at all well since on dexamethasone and yesterday I was falling asleep at 7.30pm so decided...

Well here is a daft thing I did yesterday ,I have not been sleeping at all well ...

Hidden

•7 years ago

2 Replies

Despair

My husband has small cell lung cancer. We have always known that this fight would be tough but nothing has prepared us for what we have been through. None of...

My husband has small cell lung cancer. We have always known that this fight woul...

Jacs55

•7 years ago

13 Replies

Shadow on lung, changeable emotions since.

Hello. My husband, 77, has been seeing a gastrologist to try to alleviate stomach problems which caused him to lose almost 2 stone in 10 months, as he doesn't...

Hello. My husband, 77, has been seeing a gastrologist to try to alleviate stomac...

Hidden

•7 years ago

2 Replies

Whats happening now lung cancer brain mets

I put up before what was happening with my husband he had palitive radiotherapy on his head then they started to take him off the steroids which has been going...

I put up before what was happening with my husband he had palitive radiotherapy ...

miasam

•7 years ago

23 Replies

No hope and we don't understand why

Well, fully armed with all the information about lung cancer protocols etc, we returned to see the Oncologist this week. We had such a bizarre conversation...

Well, fully armed with all the information about lung cancer protocols etc, we r...

alice111

•7 years ago

3 Replies

ALK positive new treatment approved in UK

I have just seen this link on another website. Alectinib can be accessed in the U.K. Good news...

I have just seen this link on another website. Alectinib can be accessed in the ...

Bow-19

•7 years ago

7 Replies

Lung mass

My first time posting but just looking for any advice please,, ok so little back story I'm asthmatic and also told borderline COPD I'm 43 year old female and...

My first time posting but just looking for any advice please,, ok so little back...

Nikkibelg

•7 years ago

5 Replies

Good news

So my husband saw his oncologist today. The X-Ray he had after only the first chemotherapy shows a reduction in the size of the tumour in his lung. Can't quite...

So my husband saw his oncologist today. The X-Ray he had after only the first ch...

Dismal

•7 years ago

4 Replies

Lung cancer

Hi I have had lower lobe of lung removed due to cancer in 20015 and finished chemo in 2015. I am having so much pain in my feet doctors have given me...

Hi I have had lower lobe of lung removed due to cancer in 20015 and finished che...

Liliananne

•7 years ago

1 Reply

Second opinion advice

Has anyone used the services of Harley Street Concierge for a 2nd opinion? My husband is not being offered any treatment although he is fit and well at the...

Has anyone used the services of Harley Street Concierge for a 2nd opinion? My hu...

alice111

•7 years ago

8 Replies

ALK experience?

Hello all I am taking part in a meeting next Thursday (28th) on ALK+ lung cancer. If anyone would be willing to share a bit about how they, or someone they...

Hello all I am taking part in a meeting next Thursday (28th) on ALK+ lung cance...

LorraineD

Partner•7 years ago

1 Reply

Normal life has resumed!

I've not written for a while which is a positive thing! I'm stage 2 adenocarcinoma having had lobectomy July 16 and completed chemo November 16. Back at work...

I've not written for a while which is a positive thing! I'm stage 2 adenocarcino...

Jackie46

•7 years ago

7 Replies

Neil, not Sue!

Hi, my name is Neil, but you'll see "Sue_D". That's the missus - love her - who set up the link to the Roy Castle site. There are some great posts here and if...

Hi, my name is Neil, but you'll see "Sue_D". That's the missus - love her - who ...

Neil-SueD

•7 years ago

2 Replies

Question re: decision to stop mum's treatment

Hi everyone, I'm looking for some advice relating to my mum's diagnosis of stage 4 non-small cell lung cancer, if possible. She was diagnosed in February 2016...

Hi everyone, I'm looking for some advice relating to my mum's diagnosis of stage...

Manfrenjensen

•7 years ago

10 Replies

Lung Cancer and New Carpets

Just thought I would tell you about our experience. We bought a new carpet and due to the smell from the carpet and the filaments that came off the carpet both...

Just thought I would tell you about our experience. We bought a new carpet and d...

Bow-19

•7 years ago

11 Replies

Dizziness

I have a problem with permanent dizziness. I have lung cancer so have been on chemotherapy but the "dizzies" started before my last chemo and my oncologist...

I have a problem with permanent dizziness. I have lung cancer so have been on ch...

lilwil

•7 years ago

4 Replies

Positive news

Went to see my husbands oncologist Monday following the recent CT scan. We both went in with intrepidation but the news was fantastic. The tumour has shrunk...

Went to see my husbands oncologist Monday following the recent CT scan. We both ...

CaroleH1949

•7 years ago

15 Replies

Another hospital stay

Back in hospital escorted by an amazing city centre GP who insisted on getting me in ,only went to get results of 24hr tape which was showing heart rate...

Back in hospital escorted by an amazing city centre GP who insisted on getting m...

Hidden

•7 years ago

6 Replies

NSCLC Immunotherapy

Hello does anyone have any info on starting Immunotherapy where there has been progression after carboplatin chemo? Particularly where someone has picked up...

Hello does anyone have any info on starting Immunotherapy where there has been p...

MissyD1

•7 years ago

8 Replies

Define palliative chemo

Can anyone please explain what it means or what happens with palliative chemo when it's been offered ?

Can anyone please explain what it means or what happens with palliative chemo wh...

Chap-man

•7 years ago

6 Replies

Anxious and uncertain

My mum has sclc. And to cut it short... has been told she has now 2 months left to live. At what point do I get McMillan involved in care? I don't want to...

My mum has sclc. And to cut it short... has been told she has now 2 months left ...

Becks1

•7 years ago

5 Replies

Lung cancer with brain mets update

I have been on here a few times had lots off help and advice from you all my husband has had the 5 treatments off pallitive radiotherapy on his brain 4 weeks...

I have been on here a few times had lots off help and advice from you all my hus...

miasam

•7 years ago

21 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for September 2017

Treatment results

Sleep

Rare Cancer

Oncologist appt

Looking for Help!

Chemotherapy

Small Cell Lung Cancer

Car fumes - potentially cause of Lung Cancer

Drugs

Despair

Shadow on lung, changeable emotions since.

Whats happening now lung cancer brain mets

No hope and we don't understand why

ALK positive new treatment approved in UK

Lung mass

Good news

Lung cancer

Second opinion advice

ALK experience?

Normal life has resumed!

Neil, not Sue!

Question re: decision to stop mum's treatment

Lung Cancer and New Carpets

Dizziness

Positive news

Another hospital stay

NSCLC Immunotherapy

Define palliative chemo

Anxious and uncertain

Lung cancer with brain mets update

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