Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,790 members • 3,469 posts

All posts for August 2020

Lung cancer chemo resistant

Thanks for letting me join. I had 4 rounds of carboplatin with keytruda and 1 infusion of keytruda alone. Had a scan and my cancer is resistant to the chemo....

Thanks for letting me join. I had 4 rounds of carboplatin with keytruda and 1 in...

•4 years ago

Worried about PET scan results

I had a PET scan about three weeks ago as I have three nodules on my right lung, they were all 6mm but one has grown by 1mm, therefore I had to have a PET...

I had a PET scan about three weeks ago as I have three nodules on my right lung,...

•4 years ago

LIVE CHAT now closed1-2 PM TUESDAY 25TH AUGUST 2020. PLEASE POST QUESTIONS BELOW .

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesday 25th August at 1pm. This service is available to those with lung cancer,...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesd...

RoyCastleHelpline

Partner•4 years ago

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What and how to trust the Keytruda is the right drug

I have stage IV Lung Cancer and found out when a tumor showed up on my Left hip and could not walk. It was tested and was (+) for cancer which spread from my...

I have stage IV Lung Cancer and found out when a tumor showed up on my Left hip ...

•4 years ago

End of Life Care

Not a subject any of us want to hear but, I kept asking the hospital, lung cancer specialist nurses whether my husband was at end of life care & was...

Not a subject any of us want to hear but, I kept asking the hospital, lung cance...

•4 years ago

Live Chat Now open 2-3pm CLOSED

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

RoyCastleHelpline

Partner•4 years ago

Advice for carers

Mum is starting on third line Docetaxel. She has the cough, on steroids for it, but otherwise still looking seemingly ok, albeit a little more tired which...

Mum is starting on third line Docetaxel. She has the cough, on steroids for it, ...

•4 years ago

Cavitating lesion

I had a lobectomy 9 years ago and (foolishly) thought I would have no more problems as all my scans since surgery have been clear. Breathing has always been a...

I had a lobectomy 9 years ago and (foolishly) thought I would have no more probl...

•4 years ago

Right lung removed

Hi, looking for some advice from anyone who has also had a lung removed. I had my right lung removed 13 weeks ago, should I still be experiencing days of...

Hi, looking for some advice from anyone who has also had a lung removed. I had ...

•4 years ago

confused

hi everyone my name is glynis i was diagnosed with lung cancer at the end of january i dont have cancer in the lung i have it in the pleural linning of the...

hi everyone my name is glynis i was diagnosed with lung cancer at the end of jan...

•4 years ago

Steroids causing coughing to worsen?

My mum is starting her taxodere/Docetaxel treatment tomorrow. She’s been given steroids to take before she’s goes in. Since taking them her cough immediately...

My mum is starting her taxodere/Docetaxel treatment tomorrow. She’s been given s...

•4 years ago

Crusty eyebrows

I used nivea face wipes and it’s burnt my face a week on my face is clearing except the T zones are still red but removing my eyebrow gel has Left them all red...

I used nivea face wipes and it’s burnt my face a week on my face is clearing exc...

•4 years ago

Skin rash

Hi I was diagnosed with stage 4 lung cancer in February and I am now taking afatinib and the tumour has shrunk thank goodness tho now after all this time my...

Hi I was diagnosed with stage 4 lung cancer in February and I am now taking afat...

•4 years ago

Digestion

Hi everyone. I am 18 months post left lower lobectomy. Does anyone have digestion problems since their op? I also have a pain breathing in on the side of my...

Hi everyone. I am 18 months post left lower lobectomy. Does anyone have digest...

•4 years ago

Mixed response

Hi everybody. So I’ve been having immunotherapy every 3 weeks. I’ve had 2 up to now, due my 3rd on Friday. I had a CT scan on Tuesday, the results come...

Hi everybody. So I’ve been having immunotherapy every 3 weeks. I’ve had 2 up t...

•4 years ago

Not good news 👎

Mums doctor phoned to say the immunotherapy isn’t working anymore. After two really positive scans, one substantial shrink, the second stable, we were hoping...

Mums doctor phoned to say the immunotherapy isn’t working anymore. After two rea...

•4 years ago

LIVE CHAT OPEN 2-3 PM TUESDAY 11TH AUGUST 2020. PLEASE POST QUESTIONS BELOW DURING THIS HOUR.

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesday 11th August at 2pm. This service is available to those with lung cancer,...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesd...

RoyCastleHelpline

Partner•4 years ago

Live Chat Now closed 04/08/2020 2-3pm

Next Live Chat Tuesday 11th August 2pm - 3pm

Next Live Chat Tuesday 11th August 2pm - 3pm

RoyCastleHelpline

Partner•4 years ago

Be the first to reply

Live Chat open 2-3pm today, Tuesday 4th August 2020. Post questions below.

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesday 4th August at 2pm. This service is available to those with lung cancer,...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesd...

RoyCastleHelpline

Partner•4 years ago

Be the first to reply

Any suggestions for combatting muscle weakness please?

Since I last posted a tumour was discovered in my brain making me wobbly on foot and sick. I had a course of radiotherapy on it and the situation is improving...

Since I last posted a tumour was discovered in my brain making me wobbly on foot...

•4 years ago

How long can dexamethasone help with lung cancer

My Dad has lung cancer tumour top of left lung and lymph involvement at windpipe. Was unwell 8 weeks ago looked like he would die. Put onto dexamethasone 8...

My Dad has lung cancer tumour top of left lung and lymph involvement at windpip...

•4 years ago

Lung cancer spread to bowel?

Hi... me again... So: Dad had upper right lobectomy December 2019 (T1C L0). There has been question about mediastinal lymph nodes since August 2019 but 4...

Hi... me again... So: Dad had upper right lobectomy December 2019 (T1C L0). The...

•4 years ago

Advice welcome

Hi everyone, I'm new here and hoping to gain some advice and strength from others in similar situations. My boyfriend has Stage IV non-small cell lung cancer...

Hi everyone, I'm new here and hoping to gain some advice and strength from othe...

•4 years ago