Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,777 members • 3,464 posts

All posts for May 2019

Update on Mum

Hospital appointment today. The oncologist showed us mums X-ray from March and the one taken yesterday which showed no change, which was great. Been taking...

Hospital appointment today. The oncologist showed us mums X-ray from March and t...

Loki19

•5 years ago

5 Replies

Etopiside anaphylaxis shock

Hello! My mum is on her second cycle of chemo. First cycle went really well, but yesterday she reacted badly to the Etopiside infusion. She could not breath...

Hello! My mum is on her second cycle of chemo. First cycle went really well, bu...

Emkins

•5 years ago

4 Replies

No biopsy possible

Hi there. I just wondered if there is anyone out there who has not been able to give biopsy tissue because the tumour(s) were either inaccessible or were...

Hi there. I just wondered if there is anyone out there who has not been able to ...

ferntreegully

•5 years ago

5 Replies

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Non-smoking fit lady with NSCLC

Writing on behalf of my partner, she's 48 and has never smoked and doesn't drink, she's very fit and eats healthily.... Diagnosed with NSCLC 2 weeks ago and...

Writing on behalf of my partner, she's 48 and has never smoked and doesn't drink...

GaryNR14

•5 years ago

14 Replies

Right upper lobe cancer & pulmonary fibrosis

Hello, I was just wondering if anyone has any experience with lung cancer and pulmonary fibrosis. My Gran was diagnosed with pulmonary fibrosis last august and...

Hello, I was just wondering if anyone has any experience with lung cancer and pu...

Hidden

•5 years ago

2 Replies

Target Therapy for NSCLC stage 3 with EGFR mutation ?

My husband recently had results confirming the re-occurrence of his lung cancer. As a second line treatment he is being offered a target treatment. His...

My husband recently had results confirming the re-occurrence of his lung cancer....

e-priestman

•5 years ago

3 Replies

Lung cancer stage 4

My husband has lung cancer stage 4. He has been on a drug called Iressa for 5 weeks which he has to take 1 a day. Has anybody else taken this and what was the...

My husband has lung cancer stage 4. He has been on a drug called Iressa for 5 we...

Motherbird

•5 years ago

5 Replies

Waiting repeat CT scan for lung nodule

Hi, I had a CT scan for heart issues and they found a lung nodule - 8mm in the left upper lobe. Dr rang and said he wasnt unduly concerned but wanted to...

Hi, I had a CT scan for heart issues and they found a lung nodule - 8mm in the ...

Hidden

•5 years ago

8 Replies

Waiting for results of Lung Biopsy - Scared!

I'm a newbie! Would love some reassurance or to hear from those who've been through similar. I've been getting recurrent chest infections the last few years...

I'm a newbie! Would love some reassurance or to hear from those who've been thr...

Savanna01

•5 years ago

11 Replies

Stage 4 NSCLC with metatasis to brain

Hi Someone really close to me has been diagnosed in April with lung cancer that had spread to the brain. We are in complete shock. As this is stage 4 it’s non...

Hi Someone really close to me has been diagnosed in April with lung cancer that ...

Chipmonk23

•5 years ago

22 Replies

Crizotinib

Hi iv just started on crizotinib on a trial and at the moment on cyclizine for sickness...Just woundering if anyone has any views comments help ect on...

Hi iv just started on crizotinib on a trial and at the moment on cyclizine for s...

Wiseowl1

•5 years ago

20 Replies

Finally a diagnosis

Mum has lung cancer absolutely devastated but keeping positive. It’s stage IV as it’s spread to her spine so unable to be cured. Initially told mum would need...

Mum has lung cancer absolutely devastated but keeping positive. It’s stage IV as...

Loki19

•5 years ago

5 Replies

immununotherapy/chemo treatment

Is there anybody out there receiving Pembrolizumab/Pemetrexed on 3 weekly cycle - I would be very interested to learn of any side effects that they might be...

Is there anybody out there receiving Pembrolizumab/Pemetrexed on 3 weekly cycle ...

orienteering

•5 years ago

1 Reply

A typical carcinoid net's syndrome etc

After coughing up a lot of phlegm in hospital whilst been treated for a leg ulcer which wouldn't heal. Two very junior doctors still doing their rotation, who...

After coughing up a lot of phlegm in hospital whilst been treated for a leg ulce...

Loramay

•5 years ago

2 Replies

Secondary Cancers

Hi, it’s been a while since I posted, my Mum was diagnosed with SCLC a year ago she had chemo and successfully it shrunk, we then went for check ups, it had...

Hi, it’s been a while since I posted, my Mum was diagnosed with SCLC a year ago ...

Tracyd02

•5 years ago

2 Replies

Extending the two years on Pembrolizumab

As far as I can see the last posts on the above subject were 8 months ago at which point there was a petition being drawn up and requests made to the RCLCF to...

As far as I can see the last posts on the above subject were 8 months ago at whi...

Manninmaid

•5 years ago

10 Replies

Targeted therapy working beyond expectations

Hi everyone. I just wanted to share my good news today. I have had results from my CT scan which show no visible tumours in my lungs. I am currently taking...

Hi everyone. I just wanted to share my good news today. I have had results from ...

BellaBe

•5 years ago

20 Replies

Pain following Lobectomy

Hi, I have recently had a left upper lobectomy. I just wanted to know how long I will have the pain. Painkillers keep pain at bay most of the time, but at...

Hi, I have recently had a left upper lobectomy. I just wanted to know how long I...

Kenzie123

•5 years ago

9 Replies

Unbearable wait.

Hi everyone I'm new here. My sister in law was diagnosed with lung cancer 7 weeks ago. Pleural fluid results came back inconclusive so she had biopsy 10 days...

Hi everyone I'm new here. My sister in law was diagnosed with lung cancer 7 week...

F3spyder

•5 years ago

13 Replies

Just need hope

So my dad started is immune therapy Friday to hopefully slow down his stage 3b cancer that’s spread to 3 lymph nodes so far he seems absolutely fine atm , just...

So my dad started is immune therapy Friday to hopefully slow down his stage 3b c...

NRd19

•5 years ago

6 Replies

NSCLC operated in March, starting chemotherapy on Monday

Hello, I'm new here. I'm about to start chemotherapy this Monday using Cisplatin and Alimta. I had a 5 cm adenocarcinoma removed from my lung during an upper...

Hello, I'm new here. I'm about to start chemotherapy this Monday using Cisplati...

lucanus15

•5 years ago

18 Replies

Finally a consultants appointment

So since 26th March we finally have an appointment with either mums consultant or a member of the thoracic team. Really hoping after all of this time we get a...

So since 26th March we finally have an appointment with either mums consultant o...

Loki19

•5 years ago

7 Replies

So worried and scared :-(

My mum has recently been diagnosed with nsclc in her left lung. We get the results of her pet and markers tomorrow. I’m so worried and scared. We are all...

My mum has recently been diagnosed with nsclc in her left lung. We get the resul...

Daisy_Chain_12345

•5 years ago

12 Replies

Still No Treatment for SCLC

I posted on here ages ago, with the sad diagnosis of my mum’s sclc. Due to several administrative errors, she still hasn’t started treatment and it’s now gone...

I posted on here ages ago, with the sad diagnosis of my mum’s sclc. Due to sever...

Emkins

•5 years ago

13 Replies

Delayed nausea and vomiting after chemo

My husband started carboplatin and pemetrexed for NSCLC 4 days ago. He is now feeling very sick and vomiting. He's not bringing much up as he can hardly eat....

My husband started carboplatin and pemetrexed for NSCLC 4 days ago. He is now fe...

Goingcuckoo

•5 years ago

6 Replies

Good News

Just had result of CT scan on lungs, clear, now 4 years since op, so pleased.

Tina60

•5 years ago

13 Replies

Hair loss fom Tarceva

Ive been on Tarceva for almost 6 years and have lost all my Hair good thing I have thé face for short haïr. I hot m'y haïr in early match and it has not grown...

Ive been on Tarceva for almost 6 years and have lost all my Hair good thing I ha...

kc8e22009

•5 years ago

1 Reply

Just need hope

So we finally got back from hospital for dads blood markers , we have been told that he can have this immune therapy, so good news out of a bad situation, they...

So we finally got back from hospital for dads blood markers , we have been told ...

NRd19

•5 years ago

16 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for May 2019

Update on Mum

Etopiside anaphylaxis shock

No biopsy possible

Non-smoking fit lady with NSCLC

Right upper lobe cancer & pulmonary fibrosis

Target Therapy for NSCLC stage 3 with EGFR mutation ?

Lung cancer stage 4

Waiting repeat CT scan for lung nodule

Waiting for results of Lung Biopsy - Scared!

Stage 4 NSCLC with metatasis to brain

Crizotinib

Finally a diagnosis

immununotherapy/chemo treatment

A typical carcinoid net's syndrome etc

Secondary Cancers

Extending the two years on Pembrolizumab

Targeted therapy working beyond expectations

Pain following Lobectomy

Unbearable wait.

Just need hope

NSCLC operated in March, starting chemotherapy on Monday

Finally a consultants appointment

So worried and scared :-(

Still No Treatment for SCLC

Delayed nausea and vomiting after chemo

Good News

Hair loss fom Tarceva

Just need hope

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