Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,785 members • 3,467 posts

All posts for May 2022

Stage 4 lung cancer but its my legs that are causing problems

I was diagnosed with stage 4 lug cancer2 years ago. My cancer either briefly responded or didn't respond at all to the variety of treatments given but I am...

I was diagnosed with stage 4 lug cancer2 years ago. My cancer either briefly res...

sally70

•2 years ago

9 Replies

Thank you for all the support.

Hi all. I wanted to say thank you so much to everybody who have supported me on this forum. You are all going through your difficult times but still found time...

Hi all. I wanted to say thank you so much to everybody who have supported me on ...

Danni54

•2 years ago

4 Replies

Proposed Increase in Dexamethasone Dosage for a Brain Tumour

I'm currently on four 2 mg tablets per day, they are planning to increase this to aid my walking and mobility . What are the likely impacts/short or long term...

I'm currently on four 2 mg tablets per day, they are planning to increase this t...

Beatless

•2 years ago

4 Replies

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Small cell lung cancer

Is there anyone with stage 4 small cell who would like a chat, it's very lonely place on your own, I'm currently on 2nd line Topotecan is there anyone else on...

Is there anyone with stage 4 small cell who would like a chat, it's very lonely ...

Teddysmates

•2 years ago

12 Replies

Reposted -- I case my post did not get through -- Rejected for Stereotactic Brain Therapy

Went to Addenbrookes Friday for consideration for Stereotactic Brain Therapy, unfortunately I was rejected as I can't walk well enough. Have been put onto...

Went to Addenbrookes Friday for consideration for Stereotactic Brain Therapy, un...

Beatless

•2 years ago

9 Replies

Advice

I have just been diagnosed with lung cancer, I had no symptoms and haven’t been unwell. I went to the Gp after developing a wheeze as I thought I had asthma. I...

I have just been diagnosed with lung cancer, I had no symptoms and haven’t been ...

Hidden

•2 years ago

10 Replies

Travel insurance

Travel insurance advice

Hidden

•2 years ago

3 Replies

Another Brain Met

I had two brain mets from my lung cancer and radiotherapy got rid of them. I have just had another scan to check progress and it seems another small one has...

I had two brain mets from my lung cancer and radiotherapy got rid of them. I hav...

Tike3

•2 years ago

17 Replies

My brother

Hi - me again - in a mild state of panic. My brother had a lung drain assessment this morning- his cough is horrific & he’s in a lot of pain in his chest. His...

Hi - me again - in a mild state of panic. My brother had a lung drain assessment...

Brianderrick12

•2 years ago

4 Replies

I keep going to sleep!

Got Brain cancer, waiting for treatment, but I keep falling asleep. Is this normal?

Got Brain cancer, waiting for treatment, but I keep falling asleep. Is this norm...

Beatless

•2 years ago

2 Replies

Worry wart

Good Morning All , I started my Eligard ( 6 month )on Dec.9 2021, Zytiga ,(250mg ) Prednisone ( 5 mg) on a low fat breakfast on Feb. 1 2022. My Testosterone...

Good Morning All , I started my Eligard ( 6 month )on Dec.9 2021, Zytiga ,(250mg...

reconjj

•2 years ago

3 Replies

Brain mets

Hi everyone, Since my last post, my dad was recovering from treatment and doing really well. He’s recently been struggling with headaches and nausea so...

Hi everyone, Since my last post, my dad was recovering from treatment and doing ...

HopefulAnnie101

•2 years ago

13 Replies

Tired and miserable with bladder problems. Side effect of Tagrisso.

I have been taking antibiotics for what I thought was a very bad urine infection that I could not shift. I have been referred to the urology department of the...

I have been taking antibiotics for what I thought was a very bad urine infection...

sally70

•2 years ago

10 Replies

My brother

Hi everyone - we're just starting out on this journey & trying to stay calm. My brother is 61 - under investigation since January - in that time it just feels...

Hi everyone - we're just starting out on this journey & trying to stay calm. My ...

Brianderrick12

•2 years ago

16 Replies

What is Stereotactic Radio Surgery & some information please?

I think I'm going to be offered this at Addenbrooks for Brain Cancer. Questions are:- How many sessions require? Do you stay in hospital? Is it a hard...

I think I'm going to be offered this at Addenbrooks for Brain Cancer. Questions ...

Beatless

•2 years ago

9 Replies

post treatment

It's now 3 weeks since my radiotherapy treatment ended and i understand that the treatment continues to work. When i have my next appointment at the hospital i...

It's now 3 weeks since my radiotherapy treatment ended and i understand that the...

arthurpops

•2 years ago

1 Reply

Missed Chemotherapy Sessions

I had my first two chemotherapy sessions in early March, the second two had to be delayed due to diverticulitis caused by my immunotherapy I had in September....

I had my first two chemotherapy sessions in early March, the second two had to b...

Tike3

•2 years ago

8 Replies

Lung cancer ?

Hello everyone I wanted to know if anyone else has experienced this, I have recently had my biopsy, getting my results tomorow however I have seen a letter...

Hello everyone I wanted to know if anyone else has experienced this, I have rece...

Valentina_22

•2 years ago

6 Replies

Cruise insurance

Hi there We were thinking of going on a cruise but the insurance costs more than the cruise itself I was quoted £1500 Is there anybody who has a recommendation...

Hi there We were thinking of going on a cruise but the insurance costs more than...

Rusty821

•2 years ago

14 Replies

Need morning help - advise

Lung cancer has gone to brain leaving my right side very disabled. I'm looking for morning help on washing/dressing. Advise please on how to get the help I...

Lung cancer has gone to brain leaving my right side very disabled. I'm looking ...

Beatless

•2 years ago

20 Replies

Neurological problems related to lung cancer

Hi, I'm new here and I wondered if any can help. Has anyone had Neurological problems that is linked the lung cancer? I am having severe speech problems /...

Hi, I'm new here and I wondered if any can help. Has anyone had Neurological pro...

LottyLisa

•2 years ago

8 Replies

INSOMNIA

Has anyone experienced insomnia post surgery for a Lobectomy

Queenie49

•2 years ago

2 Replies

NSCLC again 18 months after radical radiotherapy. Oncologist says it appears to be the same cancer as before.

Hi all On behalf of my 81 yr old dad. Due to its location, he can’t have the new small tumour removed. He previously had 6 weeks radical radiotherapy and...

Hi all On behalf of my 81 yr old dad. Due to its location, he can’t have the new...

M123456789

•2 years ago

1 Reply

Has anyone been involved in a clinical trial with osmertinib? It’s an option for my dad or have chemo/radiotherapy concurrently.

My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He’s a non smoker and we need to choose between chemo/ radio then surgery or a...

My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He...

Jaynelovestravel

•2 years ago

2 Replies

Cruise

Has anybody been on a cruise while on targeted therapy

Rusty821

•2 years ago

11 Replies

Another 'alternative' therapy: phenothiazines (Phenergan)

2 years ago, when I was diagnosed with Stage 4 adenocarcinoma, a friend pointed me towards...

2 years ago, when I was diagnosed with Stage 4 adenocarcinoma, a friend pointed ...

pt45

•2 years ago

5 Replies

Side effects

Has anyone had side effects with immunotherapy

Red58

•2 years ago

17 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for May 2022

Stage 4 lung cancer but its my legs that are causing problems

Thank you for all the support.

Proposed Increase in Dexamethasone Dosage for a Brain Tumour

Small cell lung cancer

Reposted -- I case my post did not get through -- Rejected for Stereotactic Brain Therapy

Advice

Travel insurance

Another Brain Met

My brother

I keep going to sleep!

Worry wart

Brain mets

Tired and miserable with bladder problems. Side effect of Tagrisso.

My brother

What is Stereotactic Radio Surgery & some information please?

post treatment

Missed Chemotherapy Sessions

Lung cancer ?

Cruise insurance

Need morning help - advise

Neurological problems related to lung cancer

INSOMNIA

NSCLC again 18 months after radical radiotherapy. Oncologist says it appears to be the same cancer as before.

Has anyone been involved in a clinical trial with osmertinib? It’s an option for my dad or have chemo/radiotherapy concurrently.

Cruise

Another 'alternative' therapy: phenothiazines (Phenergan)

Side effects

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