Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for February 2021

Fatigue

My mum has terrible fatigue to the point that she couldn’t move out of bed this morning. She eventually got up and has taken it very slow and easy all day, but...

My mum has terrible fatigue to the point that she couldn’t move out of bed this ...

flatterycat

•4 years ago

7 Replies

Mum - second-line treatment

Hello My mum has NSCLC grade 3b and is now moving to second-line treatment after the immunotherapy/chemo combination failed to work after an initial good...

Hello My mum has NSCLC grade 3b and is now moving to second-line treatment afte...

flatterycat

•4 years ago

6 Replies

Do you want to have a friendly chat to a researcher about your experiences?

[We're still recruiting to this study in case there are any new members or people who still wanted to take part] Were you diagnosed with lung cancer within the...

[We're still recruiting to this study in case there are any new members or peopl...

georgiabellblack

•4 years ago

4 Replies

Want to take advantage of all our features? Just log in!

PET scan / Cancer has returned

At the end of 2019 I stopped immunotherapy and all was quite well with my lung cancer. I was left with a 19mm tumour that was "inactive" the cancer had gone...

At the end of 2019 I stopped immunotherapy and all was quite well with my lung c...

Ollie13

•4 years ago

3 Replies

Thank you so much for all the kind replies

I haven´t been able to visit the forum over the last two weeks as my husband had now had his first chemotherapy treatment. I wanted to say a big thank you to...

I haven´t been able to visit the forum over the last two weeks as my husband had...

yellowtulip55

•4 years ago

5 Replies

Brain Mets

Hi everyone, I just wondered if anyone had any idea if you have brain mets and you have ALK+ lung cancer is your chances of a longer survival improved? My lung...

Hi everyone, I just wondered if anyone had any idea if you have brain mets and y...

BellaBe

•4 years ago

14 Replies

Live chat Now closed

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

RoyCastleHelpline

Partner•4 years ago

1 Reply

Thoracic window

Hello there. Not been on here for a while. Following a nine year history of lung cancer and pneumonectomy I unfortunately had to have clagetts procedure last...

Hello there. Not been on here for a while. Following a nine year history of lung...

Lifesab

•4 years ago

4 Replies

Docetaxel

Anyone have any experience of this?

mundy

•4 years ago

1 Reply

Shoulder problems & numbness down arm & hand?

Hi Just over 6yrs ago had a lower lobectomy for adenocarcinoma stage 1b. As I was younger than normal & non smoker I still get followed up by my consultant...

Hi Just over 6yrs ago had a lower lobectomy for adenocarcinoma stage 1b. As I wa...

Jmc8

•4 years ago

6 Replies

Makeup

Hi there Can anybody recommend a makeup that is suitable for rash prone skin I am on afatinib 50mg and have a red face at the moment 🙈though I won’t wear...

Hi there Can anybody recommend a makeup that is suitable for rash prone skin I a...

Rusty821

•4 years ago

1 Reply

Live chat Now closed

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

NicF4

Partner•4 years ago

1 Reply

Snoring louder than Concord!

I have stage 4 NSCLC. However but I’m snoring very loudly that is disturbing my wife’s sleep. Does have anyone have advice? Thanks for your time. God Bless...

I have stage 4 NSCLC. However but I’m snoring very loudly that is disturbing my ...

ParchWoody

•4 years ago

4 Replies

COVID-19 Vaccine and Chemotherapy

Just an update. I had my first COVID-19 O-AV vaccine a week last Saturday. Though the following 24hrs I had a slight reaction of a little temperature rise and...

Just an update. I had my first COVID-19 O-AV vaccine a week last Saturday. Thou...

ParchWoody

•4 years ago

1 Reply

Treating side effects of treatment of increased dose of Tagrisso

have been diagnosed with non-small cell Lungcance in 2016 Oct. It was stage 4 metastatis. It had spread to leisons in brain and pervic area and some lymph...

have been diagnosed with non-small cell Lungcance in 2016 Oct. It was stage 4 m...

rhine2

•4 years ago

1 Reply

Stage 4 metastasis

Hi, Hope everyone is still kicking cancer butt. I was on on last week talking about my mums diagnosis . She has stage 4 adenocarcinoma with mets on her spine...

Hi, Hope everyone is still kicking cancer butt. I was on on last week talking ...

Hidden

•4 years ago

9 Replies

Rash

Thankyou

Rusty821

•4 years ago

Be the first to reply

Opportunity to take part in quality of life research....

I've been asked to circulate the following to UK lung cancer patients to help influence a new survivorship questionnaire of several cancers including lung......

I've been asked to circulate the following to UK lung cancer patients to help in...

JanetteR57

•4 years ago

Be the first to reply

Rash

I’m on afatibib 50mg and have managed to keep on top of rash on my arms and legs but I seem to have got a reaction on my face and eyebrows and nose it’s very...

I’m on afatibib 50mg and have managed to keep on top of rash on my arms and legs...

Rusty821

•4 years ago

1 Reply

Face rash

Hi I’m on afatinib 50mg have been ok but Iv got a rash on my face nose is blocked and eyebrows all dried up I look like Iv be burned any ideas how to relieve...

Hi I’m on afatinib 50mg have been ok but Iv got a rash on my face nose is blocke...

Rusty821

•4 years ago

8 Replies

Live Chat Now Closed 11-12pm

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

NicF4

Partner•4 years ago

1 Reply

Do you want to be part of our next campaign?

Hello all, We are currently planning for our next campaign to launch in April. We hope to feature some people who had an early diagnosis of lung cancer. You...

Hello all, We are currently planning for our next campaign to launch in April. ...

LorraineD

Partner•4 years ago

4 Replies

Targeted therapy and Covid vaccine

Hi everyone. Is there anyone on a targeted therapy that has had the Covid vaccine? I’m not sure if you’re allowed to have one if you’re in treatment with...

Hi everyone. Is there anyone on a targeted therapy that has had the Covid vaccin...

BellaBe

•4 years ago

8 Replies

Looking for some advice Type 1 diabetic fighting stage 4 lung cancer

Hi, My mum has recently been diagnosed with stage 4 lung cancer which she has secondary cancer masses in her ,adrenal glands spine and iliac bone. She is a...

Hi, My mum has recently been diagnosed with stage 4 lung cancer which she has se...

Hidden

•4 years ago

13 Replies

Consultant Meeting with Mum

So My Mum had her appointment today. It was horrible because I knew something was up when we were put in a room and the doctor attended with the nurse. He has...

So My Mum had her appointment today. It was horrible because I knew something wa...

flatterycat

•4 years ago

24 Replies

COVID-19 Vaccine and Chemotherapy

Guys just wondering if anyone has had a Covid-19 vaccine and on Chemo? How have you felt? Any side effects? I’m on a trail chemo and my oncologist said go...

Guys just wondering if anyone has had a Covid-19 vaccine and on Chemo? How have ...

ParchWoody

•4 years ago

5 Replies

Hoping for some advice

My husband has been living with NSCLC for two years now. He has fared quite well but unfortunately when he was taking Keytruda immunotherapy he developed...

My husband has been living with NSCLC for two years now. He has fared quite well...

yellowtulip55

•4 years ago

11 Replies

What next?

Hello My mum was diagnosed with NSCLC last April. She had three rounds of keytruda along with two chemos and after her first scan, it showed a good reduction...

Hello My mum was diagnosed with NSCLC last April. She had three rounds of keytru...

flatterycat

•4 years ago

18 Replies

LIVE CHAT * NEW TIME* TUESDAY 9TH FEBRUARY 11AM-MIDDAY

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesday 9th February between 11-12am. This service is available to those with lung...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesd...

RoyCastleHelpline

Partner•4 years ago

Be the first to reply

LIVE CHAT NOW CLOSED* 1pm-2pm

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

RoyCastleHelpline

Partner•4 years ago

Be the first to reply

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for February 2021

Fatigue

Mum - second-line treatment

Do you want to have a friendly chat to a researcher about your experiences?

PET scan / Cancer has returned

Thank you so much for all the kind replies

Brain Mets

Live chat Now closed

Thoracic window

Docetaxel

Shoulder problems & numbness down arm & hand?

Makeup

Live chat Now closed

Snoring louder than Concord!

COVID-19 Vaccine and Chemotherapy

Treating side effects of treatment of increased dose of Tagrisso

Stage 4 metastasis

Rash

Opportunity to take part in quality of life research....

Rash

Face rash

Live Chat Now Closed 11-12pm

Do you want to be part of our next campaign?

Targeted therapy and Covid vaccine

Looking for some advice Type 1 diabetic fighting stage 4 lung cancer

Consultant Meeting with Mum

COVID-19 Vaccine and Chemotherapy

Hoping for some advice

What next?

LIVE CHAT * NEW TIME* TUESDAY 9TH FEBRUARY 11AM-MIDDAY

LIVE CHAT NOW CLOSED* 1pm-2pm

Search posts

Pinned Posts

Latest poll

Do you have experience of small cell lung cancer? Would you accept a brief spell in hospital to monitor side effects for a new treatment?

Topics

Archive

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for February 2021

Fatigue

Mum - second-line treatment

Do you want to have a friendly chat to a researcher about your experiences?

PET scan / Cancer has returned

Thank you so much for all the kind replies

Brain Mets

Live chat *Now closed*

Thoracic window

Docetaxel

Shoulder problems & numbness down arm & hand?

Makeup

Live chat *Now closed*

Snoring louder than Concord!

COVID-19 Vaccine and Chemotherapy

Treating side effects of treatment of increased dose of Tagrisso

Stage 4 metastasis

Rash

Opportunity to take part in quality of life research....

Rash

Face rash

Live Chat *Now Closed* 11-12pm

Do you want to be part of our next campaign?

Targeted therapy and Covid vaccine

Looking for some advice Type 1 diabetic fighting stage 4 lung cancer

Consultant Meeting with Mum

COVID-19 Vaccine and Chemotherapy

Hoping for some advice

What next?

LIVE CHAT * NEW TIME* TUESDAY 9TH FEBRUARY 11AM-MIDDAY

LIVE CHAT NOW CLOSED* 1pm-2pm

Search posts

Pinned Posts

Latest poll

Do you have experience of small cell lung cancer? Would you accept a brief spell in hospital to monitor side effects for a new treatment?

Topics

Archive

Live chat Now closed

Live chat Now closed

Live Chat Now Closed 11-12pm