Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for October 2020

My Mum

Hello It’s been a long time since I last posted. My mum was diagnosed with NSLC stage 3b at the start of lockdown. She was put on immunotherapy (even though...

Hello It’s been a long time since I last posted. My mum was diagnosed with NSLC ...

flatterycat

•4 years ago

7 Replies

Update - Immunotherapy treatment

Its been a while since my last post, since my partner was diagnosed with incurable lung cancer with spread to an adrenal gland. I've thought long and hard...

Its been a while since my last post, since my partner was diagnosed with incurab...

Kayben21

•4 years ago

15 Replies

Not sure if I should be worried?

Hi, I’m hoping for anyone’s thoughts on this matter. I am stage 4 ALK+ and have been on Ceritinib for 2 years now which is working well. I have CT scans every...

Hi, I’m hoping for anyone’s thoughts on this matter. I am stage 4 ALK+ and have ...

BellaBe

•4 years ago

1 Reply

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Dealing with the next chapter.

It’s been a week since we found out that mums treatment wasn’t working. She made the decision that she wouldn’t try a fourth option as it could prove more...

It’s been a week since we found out that mums treatment wasn’t working. She made...

LewLew19

•4 years ago

6 Replies

Live Chat Now Closed

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

NicF4

Partner•4 years ago

1 Reply

Pleural effusion drying up

I'm new here, so I hope this makes sense. When first diagnosed with there was a lot of fluid in my pleural cavity, and a catheter was inserted. To start with I...

I'm new here, so I hope this makes sense. When first diagnosed with there was a ...

pt45

•4 years ago

9 Replies

sweating a lot!

Hi everyone, I'm hoping someone might be able to give me some guidance. I am sweating profusely multiple times a day. It's as if I stepped out of a shower....

Hi everyone, I'm hoping someone might be able to give me some guidance. I am sw...

Dariada

•4 years ago

8 Replies

Advice on respiratory issues.

Hi all. I recently had a chest x ray in September, a mid way request as my scan is not due until February. It was fine. However I have noticed that...

Hi all. I recently had a chest x ray in September, a mid way request as my scan...

Benjy2018

•4 years ago

5 Replies

Have you recently been diagnosed with lung cancer?

Were you diagnosed with lung cancer within the last 12 months? Have your say about your experiences in the PEARL study - a research programme led by UCL...

Were you diagnosed with lung cancer within the last 12 months? Have your say abo...

georgiabellblack

•4 years ago

13 Replies

pembrolizumab - stopping after 2 years

I am stopping pembrolizumab after being on it for 2 years, any advise on how it feels when you stop, side affects etc?

I am stopping pembrolizumab after being on it for 2 years, any advise on how it ...

Shads71

•4 years ago

4 Replies

Update

Mum saw the doctor today, they’ve paused the chemo and want to deal with the blood clot as she said that was more dangerous that the cancer at the moment and...

Mum saw the doctor today, they’ve paused the chemo and want to deal with the blo...

LewLew19

•4 years ago

5 Replies

My First Post.

Latest meeting today with my consultant after my biopsy last week.Not good,could have been worse I suppose at least I have choices of treatments.Next step is...

Latest meeting today with my consultant after my biopsy last week.Not good,could...

BayMagic

•4 years ago

4 Replies

Nervous

Hi All My three month check is tomorrow l feel well, my lobectomy back in March went well .I was lucky no further treatment, However l am still anxious...

Hi All My three month check is tomorrow l feel well, my lobectomy back in March ...

Guardamar

•4 years ago

5 Replies

Post op back home after segmentectomy

The strong painkillers post surgery sent me loopy. I imagined I’d got Covid, would be isolated & may never see family again. I’m now down to just 4 hourly...

The strong painkillers post surgery sent me loopy. I imagined I’d got Covid, wou...

MsPJ

•4 years ago

3 Replies

Chemo regime

Hi my husband started his treatment yesterday, just wondering if anyone has ever had chemo for 4 days then a break for 3 days and the another day of chemo, all...

Hi my husband started his treatment yesterday, just wondering if anyone has ever...

Coorslight

•4 years ago

2 Replies

Live Chat Now Closed

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

NicF4

Partner•4 years ago

1 Reply

How long before you take next step?

I just recently learned that I have a 5.9 mm nodule in the lower left quadrant of my lung. They are saying to wait six months for another scan. Is this too...

I just recently learned that I have a 5.9 mm nodule in the lower left quadrant o...

Feelinblue

•4 years ago

2 Replies

Blood clot on scan!

So we had an out of the blue call today from the doctors office and they said that they’d spotted a blood clot. We’re not sure exactly where but they did not...

So we had an out of the blue call today from the doctors office and they said th...

LewLew19

•4 years ago

3 Replies

Peg feeding

Hi my dad has recently been diagnosed with central lung cancer he has spoken to his dietitian and they have told him he will need a peg fitted this is all new...

Hi my dad has recently been diagnosed with central lung cancer he has spoken to ...

Daughterofafigher

•4 years ago

4 Replies

Anxious

I’m due to have my PET scan next Tuesday and I’m starting to get anxious about what it will reveal? I know there is a 2cm mass, just terrified more will show...

I’m due to have my PET scan next Tuesday and I’m starting to get anxious about w...

Kbucie

•4 years ago

7 Replies

Lung cancer treatment

Hi My father has squamous cell carcinoma T4 N0 M0 on upper right lung. Can’t have surgery due to location and can’t have chemo due to MRI brain showing some...

Hi My father has squamous cell carcinoma T4 N0 M0 on upper right lung. Can’t hav...

M123456789

•4 years ago

4 Replies

Cancer of Unknown primary

Hi My husband was recently diagnosed with advanced spine mestases from unknown primary cancer. Just wondering if there is anybody else in this situation ....

Hi My husband was recently diagnosed with advanced spine mestases from unknown ...

greaney

•4 years ago

3 Replies

LIVE CHAT NOW CLOSED

Our live chat is now closed, however if you wish to direct any queries to us you can either post these through health unlocked or email us at...

Our live chat is now closed, however if you wish to direct any queries to us you...

RoyCastleHelpline

Partner•4 years ago

2 Replies

LIVE CHAT TODAY 6TH OCTOBER 12.30-13.30

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesday 6th October at 12.30-13.30 This service is available to those with lung...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesd...

RoyCastleHelpline

Partner•4 years ago

1 Reply

Comfort at last!

I had a vats lobectomy over 18months ago and thankfully all well so far (apart from having treatment for anal cancer this year) but I digress. Wearing a bra...

I had a vats lobectomy over 18months ago and thankfully all well so far (apart f...

Mauranne

•4 years ago

2 Replies

Update

Update my husband has had pet scan and Mri brain and no spread he has been offered radical treatment, chemotherapy and radiotherapy at the same time we are so...

Update my husband has had pet scan and Mri brain and no spread he has been offer...

Coorslight

•4 years ago

8 Replies

Treatment experiences in 2020 - we would like to hear from you, please

Hello all We are asking for help from you in sharing your experience, confidentially, about lung cancer in 2020. We are running a survey on how contacting your...

Hello all We are asking for help from you in sharing your experience, confidenti...

LorraineD

Partner•4 years ago

Be the first to reply

Frustrating wait times...

Mum has been doing very well on chemo. Her cough is significantly better and we’re really hoping that the treatment is working. Oddly her cough and...

Mum has been doing very well on chemo. Her cough is significantly better and we’...

LewLew19

•4 years ago

6 Replies

Looking for hope?🤗

Hi everyone, I’m new to this group and not too sure how it works?! I was diagnosed at the end of September and I just feel like my world has imploded. Im only...

Hi everyone, I’m new to this group and not too sure how it works?! I was diagnos...

Kbucie

•4 years ago

24 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for October 2020

My Mum

Update - Immunotherapy treatment

Not sure if I should be worried?

Dealing with the next chapter.

Live Chat Now Closed

Pleural effusion drying up

sweating a lot!

Advice on respiratory issues.

Have you recently been diagnosed with lung cancer?

pembrolizumab - stopping after 2 years

Update

My First Post.

Nervous

Post op back home after segmentectomy

Chemo regime

Live Chat Now Closed

How long before you take next step?

Blood clot on scan!

Peg feeding

Anxious

Lung cancer treatment

Cancer of Unknown primary

LIVE CHAT NOW CLOSED

LIVE CHAT TODAY 6TH OCTOBER 12.30-13.30

Comfort at last!

Update

Treatment experiences in 2020 - we would like to hear from you, please

Frustrating wait times...

Looking for hope?🤗

Search posts

Pinned Posts

Latest poll

Do you have experience of small cell lung cancer? Would you accept a brief spell in hospital to monitor side effects for a new treatment?

Topics

Archive

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for October 2020

My Mum

Update - Immunotherapy treatment

Not sure if I should be worried?

Dealing with the next chapter.

Live Chat *Now Closed*

Pleural effusion drying up

sweating a lot!

Advice on respiratory issues.

Have you recently been diagnosed with lung cancer?

pembrolizumab - stopping after 2 years

Update

My First Post.

Nervous

Post op back home after segmentectomy

Chemo regime

Live Chat *Now Closed *

How long before you take next step?

Blood clot on scan!

Peg feeding

Anxious

Lung cancer treatment

Cancer of Unknown primary

LIVE CHAT NOW CLOSED

LIVE CHAT TODAY 6TH OCTOBER 12.30-13.30

Comfort at last!

Update

Treatment experiences in 2020 - we would like to hear from you, please

Frustrating wait times...

Looking for hope?🤗

Search posts

Pinned Posts

Latest poll

Do you have experience of small cell lung cancer? Would you accept a brief spell in hospital to monitor side effects for a new treatment?

Topics

Archive

Live Chat Now Closed

Live Chat Now Closed