Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for June 2023

First week done

So after a lot of stress and going from stage 2b to stage 3 my first week of chemoradiotherapy has finished, weekend off before vinorelbine capsules Monday and...

So after a lot of stress and going from stage 2b to stage 3 my first week of che...

•1 year ago

Queries made with NHS

Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we were told that it had been confirmed to us at a meeting on 11/11/21. but the...

Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we ...

•1 year ago

Liquid biopsy

Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory...

Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. W...

•1 year ago

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Right mix of cough/pain relief meds .. ?

Dad's not doing well at thd mo. I've posted in other questions that he has Stage4, is on immuno & is struggling with severe tiredness esp at the mo. To...

Dad's not doing well at thd mo. I've posted in other questions that he has Stage...

•1 year ago

Any tips pls ..? Dad's really tired of is cough - that's now a mix of dry (mainly) and some mucous

Hi, the mucous is not really coming out now. But the dry cough is new. The hospital checked for an infection (given the dry cough), but didn't spot anything...

Hi, the mucous is not really coming out now. But the dry cough is new. The hospi...

•1 year ago

squamous cell lung cancer

I was diagnosed with squamous cell lung cancer in January 2023. I am stage 1B T2 n0M0. I had a right upper lobe lobectomy Feb 2023. I don’t hear much about...

I was diagnosed with squamous cell lung cancer in January 2023. I am stage 1B T...

•1 year ago

Amivantanab

I am on amivantamab which is now an approved drug in US and marketed as Rybervant. I’ve been in it for 15 months and just recently have had an uptick in my...

I am on amivantamab which is now an approved drug in US and marketed as Ryberva...

•1 year ago

sad news

I was going through my husbands iPad and knew he came to this site for support. Dave unfortunately passed away on Dec 19th, his health deteriorated very...

I was going through my husbands iPad and knew he came to this site for support. ...

•1 year ago

Tagrisso and hair thinning

Hi, I have stage 4 cancer diagnosed in May 2021, I have been taking Tagrisso since July 2021 and apart from a really bad skin reaction in the first weeks have...

Hi, I have stage 4 cancer diagnosed in May 2021, I have been taking Tagrisso sin...

•1 year ago

No oncologist in Highlands, treatment delays.

On the same week I read of increased focusing on good cancer care, I get a letter from the hospital saying the oncologist has left and they have been unable to...

On the same week I read of increased focusing on good cancer care, I get a lette...

•1 year ago

Update on my palliative care

I was taken ill last week. Unable to keep anything down which prevented my oral pain relief being effective. I rang the palliative nurses who told me to call...

I was taken ill last week. Unable to keep anything down which prevented my oral ...

•1 year ago

Clinical trial for Mesothelioma patients

This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option...

This is a stage 1 trial for patients who have Mesothelioma with a pleural effus...

RoyCastleHelpline

Partner•1 year ago

Be the first to reply

A Trial of amivantamab lazertinib

Is anyone on a trail of amivantamab, lazertinib and osimertinib for non small cell lung cancer? If you are would like to share? Many thanks Richard

Is anyone on a trail of amivantamab, lazertinib and osimertinib for non small c...

•1 year ago

BIOMARKER TESTING

My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I...

My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemothe...

•1 year ago

Second opinion

Does anyone know the best way to get a second opinion? I have lost all confidence in the Hospital I am under. There is a catalogue failures and...

Does anyone know the best way to get a second opinion? I have lost all confidenc...

TheScriptgirl79

•1 year ago

NEW SUPPORT GROUPS!!

ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY GENETIC MUTATION LUNG CANCER - We are looking for people...

ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY GENET...

ConnectRoyCastle

Administrator•1 year ago

Treatment plan

Hi, could anyone tell me if this amount of chemo sounds right as all posts I read are more, I have stage 2b nsclc adenocarcinoma, plan is 6 weeks radiaton with...

Hi, could anyone tell me if this amount of chemo sounds right as all posts I rea...

•1 year ago

Spiculated nodule found on right lung on post chemotherapy scan after lobectomy on left lung in December 2022.

Hello everyone, Has anyone undergone a lobectomy and four cycles of chemo to find that there is another suspicious nodule on the opposite lung. If so,what...

Hello everyone, Has anyone undergone a lobectomy and four cycles of chemo to fi...

•1 year ago

Any tips pls ..? Dad's really tired of the immuno he's on and the chest therapy he does (to release mucous build up)

Dad feels very tired at the mo.He's in-between immuno sessions & doing daily chest therapy (himself) to release the mucous build up. When he doesn't do it, it...

Dad feels very tired at the mo.He's in-between immuno sessions & doing daily che...

•1 year ago

Spirometry test

Sorry for what is a bit of a stupid, long and rambling post, I had lung function test back in April, stupidly didn't know you were not supposed to smoke before...

Sorry for what is a bit of a stupid, long and rambling post, I had lung function...

•1 year ago

Thoughts on bilobectomy

Hi, I'm new to this and wondering if anyone has had anything similar. I was diagnosed with t2b n1 m0 adenocarcinoma lung cancer, the affected lymph node looks...

Hi, I'm new to this and wondering if anyone has had anything similar. I was diag...

•1 year ago