Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for September 2023

The Journey Begins 7th August 2023

Nasty cough with shortness of breath , Local GP suspected chest infection, prescribed antibiotics and chest x ray, this picked up a issue so had chest CT......

Nasty cough with shortness of breath , Local GP suspected chest infection, presc...

Beatthisthing2023

•1 year ago

Excessive weight gain after lower lobectomy

Hi everyone, Since I'd a lower left lobectomy last Nov 2022 I've noticed a gradual increase in my weight. I was 9st 12 Ibs & now I'm 10st 12 Ibs. This notable...

Hi everyone, Since I'd a lower left lobectomy last Nov 2022 I've noticed a gradu...

•1 year ago

post surgery recovery

I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph...

I had lung surgery five weeks ago, lower left hand lobe The tumour was remove...

•1 year ago

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ASK THE NURSE HELPLINE OPEN TODAY 0900-1700 MONDAY 25TH SEPTEMBER 2023

It is a public holiday in Scotland today for the September weekend, however our ask the nurse helpline is open for the whole of the UK : hours 0900 -1700 or...

It is a public holiday in Scotland today for the September weekend, however our ...

RoyCastleHelpline

Partner•1 year ago

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Do I still say I have cancer?

I had the upper left lobe of my lung (that's a mouthful) removed in February. The tumour was crimping a pulmonary artery and when examining the removed bit it...

I had the upper left lobe of my lung (that's a mouthful) removed in February. T...

•1 year ago

Adding your voice to research the easy way

Making sure the digital diary is user-friendly is extremely important. The free app 'Your Health Companion' is quick and simple to sign-up and takes just...

Making sure the digital diary is user-friendly is extremely important. The free ...

YourHealthCompanion

•1 year ago

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Genetic Mutation Specific Support

GENETIC MUTATION SUPPORT GROUP There are still spaces on our Genetic Mutation group that will take pplace online over Zoom this evening....

GENETIC MUTATION SUPPORT GROUP There are still spaces on our Genetic Mutation ...

ConnectRoyCastle

Administrator•1 year ago

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Have you had experience of EGFR+ ?

The charity has had a request from a pharmaceutical company currently seeking the views of people with lung cancer. Share your experience of living with...

The charity has had a request from a pharmaceutical company currently seeking th...

Partner•1 year ago

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Information Days for patients and carers

Hello community members, An update on some opportunities that might be of interest. On Monday 25th September we have an Information Day in Basingstoke,...

Hello community members, An update on some opportunities that might be of int...

Partner•1 year ago

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Still have shortness of breath from lobectomy in May

I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I still have a little shortness of breath left over from my lobectomy. Is this...

I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I stil...

•1 year ago

Posting links to online lung cancer events

Hi everyone I'm posting links to some online events for lung cancer patients and carers that may be of interest to you. They are run by US organisations but...

Hi everyone I'm posting links to some online events for lung cancer patients and...

•1 year ago

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So scared after CT scan showed shadow on lung

Hello. I was referred for a chest CT scan by my endocrinologist (I have Graves Disease) following a really bad cough which didn’t clear for 8 weeks or so back...

Hello. I was referred for a chest CT scan by my endocrinologist (I have Graves ...

•1 year ago

SUV 2.0

Anyone have a PET scan light up s/p initial surgery (5 years ago R LL lobectomy and R UL wedge both stage 1 NSCLC) and it NOT be a recurrance? Been a long few...

Anyone have a PET scan light up s/p initial surgery (5 years ago R LL lobectomy ...

•1 year ago

Non small cell carcinoma in lung.

I have recently been diagnosed with non small cell carcinoma of the lung by the Royal Brompton. They sent a letter to my GP requesting an urgent 2 week...

I have recently been diagnosed with non small cell carcinoma of the lung by the ...

•1 year ago

GENETIC MUTATION SUPPORT GROUP

THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING! If you have a genetically mutated lung cancer and wish to take part in a group that...

THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING! If you have a genetically m...

ConnectRoyCastle

Administrator•1 year ago

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Large right lobe upper lobe mass

Hello, I was wondering if anyone had as the post says, a large right lobe upper lobe mass? This is what they have just found with my mum. She’s had quite a bit...

Hello, I was wondering if anyone had as the post says, a large right lobe upper ...

•1 year ago

Immunotherapy.

It wasn't me but my husband.he started this journey 21 months ago.He was on keytruda every 3 weeks from Feb 22 until May 23. ..the side effects for him was...

It wasn't me but my husband.he started this journey 21 months ago.He was on key...

•1 year ago

LUNG CANCER TREATMENT SUPPORT

NEW ONLINE SUPPORT GROUP STARTING UP!! This new support group is aimed at those in active treatment whatever that may be, surgery, chemo,...

NEW ONLINE SUPPORT GROUP STARTING UP!! This new support group is aimed at those...

ConnectRoyCastle

Administrator•1 year ago

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Would you like to get more involved?

Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and...

Hello community members, Roy Castle Lung Cancer Foundation often get asked fo...

Partner•1 year ago

GET INVOLVED! - Lung Cancer Support

This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and...

This is the week that a new round of our groups kick starts. If you are thinking...

ConnectRoyCastle

Administrator•1 year ago

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Patchy Ground Glass

6/28 - Per my cardiologists I had a Calcium Score done to measure my cardiac risk. I found out that my score was Zero (best you can get), but they found...

6/28 - Per my cardiologists I had a Calcium Score done to measure my cardiac ...

•1 year ago