Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for January 2021

New chemo

Now I am to have Docetaxel and Ninedanib Has anybody any stories to tell of this combination?

Now I am to have Docetaxel and Ninedanib Has anybody any stories to tell of thi...

•4 years ago

COVID POSITIVE TEST 😥

I have been taking part in ONS survey where you take part for 1 year getting monthly tests for Covid. Well I had my test on Wednesday and they phoned me this...

I have been taking part in ONS survey where you take part for 1 year getting m...

•4 years ago

How can we best help with phone and digital support?

Hello forum members Roy Castle Lung Cancer Foundation is currently developing our support for people with lung cancer. Our L-Can service plans started before...

Hello forum members Roy Castle Lung Cancer Foundation is currently developing ou...

Partner•4 years ago

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Information please

I've just been diagnosed with non mucious invasive adenocarcinoma after a lobectomy, i can't seen to find simple information about this type of cancer, any...

I've just been diagnosed with non mucious invasive adenocarcinoma after a lobect...

•4 years ago

Here we go again!

Had 2 thirds of my right lung removed in June (followed by Chemo & Radiotherapy). Latest scan shows that the cancer is back along the "Cut" where the left the...

Had 2 thirds of my right lung removed in June (followed by Chemo & Radiotherapy)...

•4 years ago

Mum is exhausted

Hi, my mum is really struggling with exhaustion. She has stage IV lung cancer and had to stop chemo/ immuno treatment last year due to progression. However,...

Hi, my mum is really struggling with exhaustion. She has stage IV lung cancer a...

•4 years ago

I keep hope alive

I was diagnosed as lung adenocarcinoma stage 4 with EGFR in september 2020 and keep on taking erlotinib. I am ok so far. Thanks god.

I was diagnosed as lung adenocarcinoma stage 4 with EGFR in september 2020 and k...

•4 years ago

Live chat * Now closed* 1-2pm

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

Partner•4 years ago

What next?

Treatment discontinued - no longer working More radiotherapy for bone secondaries as they are getting more and more painful No trials available for me...

Treatment discontinued - no longer working More radiotherapy for bone secondarie...

•4 years ago

Recovering after infection

My mum has completed her treatment for small cell lung cancer, about 3 weeks after her radiotherapy finished she took a severe pneumonia and was hospitalised...

My mum has completed her treatment for small cell lung cancer, about 3 weeks aft...

•4 years ago

CBD oil? - does anyone have any recommendations for a CBD oil

CBD oil? - does anyone have any recommendations for a CBD oil to use for stage 4 lung cancer (with brain mets - leptomeningeal disease) - I am in remission...

CBD oil? - does anyone have any recommendations for a CBD oil to use for stage ...

•4 years ago

Would you like to have a friendly chat with a UCL researcher about your experiences of being diagnosed with lung cancer?

[Happy New Year everyone. We're still recruiting to this study in case there are any new members or people who still wanted to take part] Were you...

[Happy New Year everyone. We're still recruiting to this study in case there are...

georgiabellblack

•4 years ago

Complications 6 months after bilobectomy

Hi all, I had my bilobectomy 6 months ago and based on a CT scan done just before xmas my oncologist says there is something along the where they did the cut...

Hi all, I had my bilobectomy 6 months ago and based on a CT scan done just befo...

•4 years ago

Live chat Now closed 1-2pm

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

Partner•4 years ago

Does it come back

Small cell lung cancer gone for the last 4 years, will it return?

Small cell lung cancer gone for the last 4 years, will it return?

•4 years ago

Palliative care

I have stage 4 nsclc diagnosed in March 2020. Over last 6 weeks have been in hospital 3 times and am in at the moment. Been told no further treatment and...

I have stage 4 nsclc diagnosed in March 2020. Over last 6 weeks have been in hos...

•4 years ago

Adjuvant Tagrisso for stage 3A lung cancer

My EGFR adenocarcinoma exon 19 lung cancer is currently in remission after chemo radiation/ wedge resection and adjuvant chemo. Last treatment in June 2020. I...

My EGFR adenocarcinoma exon 19 lung cancer is currently in remission after chemo...

•4 years ago

Bronchorrhea

My adenocarcinoma is causing me to cough up lots of watery fluid and breathlessness. My oncologist has suggested Buscopan usually for IBS to try to help dry...

My adenocarcinoma is causing me to cough up lots of watery fluid and breathlessn...

•4 years ago

Stage 4 central mediastinal mass

After a lobectomy 3 years ago, I now have a stage 4 central mediastinal mass. No reoccurrence in the lung or spread to other organs. I have been told that...

After a lobectomy 3 years ago, I now have a stage 4 central mediastinal mass. N...

•4 years ago