Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for August 2019

Lung cancer mets to eye

Hi I was diagnosed with Stage 4 NSCLC two and half years ago non smoker Had chemo Then Pemexetred maintenance for 10 months Then Palbociclib for 5 months This...

Hi I was diagnosed with Stage 4 NSCLC two and half years ago non smoker Had che...

•5 years ago

1st Immuno treatment

Sitting in a comfy chair having my twice delayed first treatment. All going well so far! I was discharged from hospital a week last Monday and finished the...

Sitting in a comfy chair having my twice delayed first treatment. All going well...

•5 years ago

Don’t know where to turn

My dad has been diagnosed with terminal lung cancer he’s 90, he just sits in a chair all day because he can’t breathe but no one is helping us, we’ve asked for...

My dad has been diagnosed with terminal lung cancer he’s 90, he just sits in a c...

•5 years ago

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Cycle One Done - This has been the toughest week!

This is a long post - please accept my apologies in advance. Cycle one effectively done (next week chemo free just consultant follow up). Week started Monday...

This is a long post - please accept my apologies in advance. Cycle one effective...

•5 years ago

CBD Oil

Hi has anyone used CBD oil to help with lung cancer and side effects of treatment? If so how has it helped? I am talking about the sort you can buy in Holland...

Hi has anyone used CBD oil to help with lung cancer and side effects of treatmen...

•5 years ago

Sticky eyes on chemo

Hi My husband has now had his 6th course of Carboplatin and Pemetrexed and is due to carry on with maintenance Pemetrexed. He started to get sticky eyes (not...

Hi My husband has now had his 6th course of Carboplatin and Pemetrexed and is du...

•5 years ago

Question please

I'm on pembrolizumab and doing well. These past couple of weeks when I have been sitting down for a period of time, when I get up to walk my heels are very...

I'm on pembrolizumab and doing well. These past couple of weeks when I have been...

•5 years ago

Treatment Delayed

Hi everyone I was due to start immunotherapy last Wednesday but woke with a fever and breathlessness. The GP sent me to hospital where I was admitted with...

Hi everyone I was due to start immunotherapy last Wednesday but woke with a feve...

•5 years ago

I’m disappointed at not having targeted therapy!

So I had the results back and Ive been scheduled to start chemo in 2 weeks. I must admit I’m a bit disappointed at not being able to have the targeted therapy....

So I had the results back and Ive been scheduled to start chemo in 2 weeks. I mu...

•5 years ago

Hiccups after chemotherapy

My husband started chemotherapy with immunotherapy on Monday. With it he had to take dexamethasone steroids and has had hiccups ever since. He had chemotherapy...

My husband started chemotherapy with immunotherapy on Monday. With it he had to ...

•5 years ago

Do you want to share your experience of diagnosis and treatment with NICE?

Hello all We have been approached by NICE, a body of NHS England looking for some feedback on those who have been through treatment in the last 3 years. Below...

Hello all We have been approached by NICE, a body of NHS England looking for som...

Partner•5 years ago

Why CT scan not pet scan?

Good evening to all. I have a quick question please. As you may know, I finished 4 rounds of Cisplatin Alimta three weeks ago, following on from a lobectomy...

Good evening to all. I have a quick question please. As you may know, I finish...

•5 years ago

Approved for Immunotherapy

Hi all I met with the oncologist on Thursday who informed me the Health Board has approved for me to be treated with immunotherapy. I start treatment on Weds...

Hi all I met with the oncologist on Thursday who informed me the Health Board ha...

•5 years ago

Non small cell stage 4 with spread to lymph and adrenal

Hello, well the title says it all really. Recently diagnosed. However I feel well, no weight loss (in fact weight gain) the only symptom a slight cough. My...

Hello, well the title says it all really. Recently diagnosed. However I feel wel...

•5 years ago

Cancer Nurse Specialist and Thoracic Nurse Specialist

Hi all - I'm not sure if everybody likehere in Bristol (the Bristol Royal Infirmary to be exact) having already had curative resection of LLL lobectomy I,...

Hi all - I'm not sure if everybody likehere in Bristol (the Bristol Royal Infi...

•5 years ago

Chemo Starts Next Tuesday - Cisplatin and Vinorelbine

Saw the Consultant two weeks ago and introductory meeting today where all the gorey and not so gorey details were explained. I will be completing 4 21 day...

Saw the Consultant two weeks ago and introductory meeting today where all the go...

•5 years ago

Ketunda side effects

Has anyone else experienced aching limbs ?due to Keytunda immunotherapy and if so how long did it last ,its driving me crackers .I have had a few side effects...

Has anyone else experienced aching limbs ?due to Keytunda immunotherapy and if s...

•5 years ago

My cancer is back.

As I previously reported in earlier posts I was an am a pneumonectomy survivor, having required surgery due to lung cancer (left lung) During the latter part...

As I previously reported in earlier posts I was an am a pneumonectomy survivor, ...

•5 years ago

Rapid Diagnostic Clinics proposal for 2020:

I have read and researched all the information I can on this NHS/NICE/Government proposed system to be incorporated in 2020 (being tested out and assessed...

I have read and researched all the information I can on this NHS/NICE/Government...

•5 years ago

Travel Insurance with the Post Office

Hi All I have no idea what the premiums would be or what, if any, limitations applied on the policy terms, but for UK residents, the Post Office offers travel...

Hi All I have no idea what the premiums would be or what, if any, limitations ap...

•5 years ago

Life insurance

Life insurance for terminal illness I a while ago had ask about insurance company not paying out and a lady whose husband had same illness as my wife said for...

Life insurance for terminal illness I a while ago had ask about insurance compan...

•5 years ago

Second Opinion

Morning, My sister got an NHS referral from her GP in Devon and we had her Fast Tracked to the Specialist Unit in Wythenshaw near Manchester. Saw two...

Morning, My sister got an NHS referral from her GP in Devon and we had her Fa...

•5 years ago