Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for August 2018

Any suggestions for coping with uncertainty during diagnosis?

I wanted to say thank you to everyone who replied to my last post. It was really helpful for my appointment yesterday. I spoke to a nice locum doctor a few...

I wanted to say thank you to everyone who replied to my last post. It was really...

Lavender-Flowers

•6 years ago

Stage 3B Lung Cancer. What kind of results to expect after chemo

Hello, My mom was diagnosed with stage 3B Lung cancer back in May. This cancer is a reoccurrence, she has had two partial lobectomy’s back in 2011/2012. She is...

Hello, My mom was diagnosed with stage 3B Lung cancer back in May. This cancer i...

•6 years ago

Breast cancer radiation as a long term cause of primary lung cancer?

I'm new here, aged 60 and a never smoker (excepting for one instance of smoking a hookah/shisha as a 60th birthday lark in a Moroccan nightclub 8 months ago...

I'm new here, aged 60 and a never smoker (excepting for one instance of smoking ...

•6 years ago

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Cancer came back

After lung cancer removal of right upper lobe middle lobe plus 6 weeks of radiation and 6 months of chemo treatment I had CT scan normal but a week went by I’m...

After lung cancer removal of right upper lobe middle lobe plus 6 weeks of radiat...

•6 years ago

Pembrolizumab

People, like myself who are receiving Pembrolizumab are now approaching the 2 year deadline and are getting very concerned about what happens next. I thought...

People, like myself who are receiving Pembrolizumab are now approaching the 2 ye...

•6 years ago

Brain radiation

My doctors tell me I need brain radiation , they tell me the small cell cancer I have my run up to the brain Any advice

My doctors tell me I need brain radiation , they tell me the small cell cancer I...

•6 years ago

Lung cancer

Hi my name is Sue had lung cancer in 2010:had half of my lung remove had nothing but chest infection since

Hi my name is Sue had lung cancer in 2010:had half of my lung remove had nothing...

•6 years ago

Pembro continuing after 2 years?

Hi I will have been on Pembrolizumanb for 2 years in December. I am doing very well on it and have been stable all the time with only small side effects. I am...

Hi I will have been on Pembrolizumanb for 2 years in December. I am doing very w...

•6 years ago

ITV clip re attending a healthy lung check up in Liverpool

Hi I volunteer to help out with cancer policy locally and nationally. One initiative I am involved in is the Liverpool Healthy Lung project. There was a short...

Hi I volunteer to help out with cancer policy locally and nationally. One initia...

•6 years ago

Anyone on Tecentriq? ( Atezolizumab)

Hi All, Today my husband had his first infusion of Tecentriq. I wondered if anyone on the site was on this drug and how they are doing? Thank you x

Hi All, Today my husband had his first infusion of Tecentriq. I wondered if any...

•6 years ago

Hospital and operation

Going in hospital sunday operation monday to remove half my lung and old tb scar. Doctors do not know if this is early cancer or not cancer at all. I have had...

Going in hospital sunday operation monday to remove half my lung and old tb scar...

jckjanetrosalin

•6 years ago

Newbie: Undiagnosed with 3 Months Chest Pain

Hi, I’m new here and wanted to ask for advice about 3 months of chest pain and if anyone could offer advice - what would you do? Sorry for the long post but...

Hi, I’m new here and wanted to ask for advice about 3 months of chest pain and i...

Lavender-Flowers

•6 years ago

Stage 4 but very relaxed all of a sudden

Stage 4 diagnosis....feeling better than ever.....? So my dad got a stage 4 diagnosis out of the blue 2 weeks ago. He is elderly and am sure he has not...

Stage 4 diagnosis....feeling better than ever.....? So my dad got a stage 4 diag...

•6 years ago

Compassionate/ named patient access

Does anyone have any experience regarding gaining access to Lorlatinib or Entrectinib on compassionate / named patient basis? Unable to fulfil criteria for...

Does anyone have any experience regarding gaining access to Lorlatinib or Entrec...

•6 years ago

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Wheeze & cough for 2 years - I fear lung cancer!

Hi all Long story but here goes., firstly I apologize for posting in this forum however I feel I might get more insight here as I am really scared. Developed...

Hi all Long story but here goes., firstly I apologize for posting in this forum...

•6 years ago

Module found 90 days after lobectomy

9x11 mm module found after 6 months of chemo and a middle and upper lobe removal in Dec 2017, also 30 shots of radiation. Normal 90 day ct scan and a module...

9x11 mm module found after 6 months of chemo and a middle and upper lobe removal...

•6 years ago

New patient

Just been diagnosed with lung cancer......due to meet and have tests with the surgical team.......any questions you wished you’d asked at this first meeting?...

Just been diagnosed with lung cancer......due to meet and have tests with the su...

•6 years ago

EARLY DETECTION WORKS

Hello all, my occasional post on HealthUnlocked - is just to take heed of the advice about getting checked out when you find you have annoying coughs, sore...

Hello all, my occasional post on HealthUnlocked - is just to take heed of the ad...

•6 years ago

National Lung Cancer Audit patient booklet survey

In September 2017, National Lung Cancer Audit (NLCA) team released their first patient information booklet (with 2015 data) and in March 2018 they released...

In September 2017, National Lung Cancer Audit (NLCA) team released their first p...

•6 years ago

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Pemetrexed seems not to work

Ceritinib was amazingly successful but pneumonitis meant we had to stop for now. Carb and Pem with 3 cycles of Pem but new brain secondaries. CT body today and...

Ceritinib was amazingly successful but pneumonitis meant we had to stop for now....

•6 years ago

Always crying

Hi my name is Gina i just turned 55 July 21. About 3 years ago, 3 noduals all 3cm were found on my lungs, I just had a new scan and Aug 2nd was told I now have...

Hi my name is Gina i just turned 55 July 21. About 3 years ago, 3 noduals all 3c...

•6 years ago

Loss of my Mum x

My beautiful mum Olive lost her battle with Lung Cancer yesterday. She was one tough cookie and fought until the end. She was such a beautiful character who...

My beautiful mum Olive lost her battle with Lung Cancer yesterday. She was one...

•6 years ago

Lung needle biopsy

after 2 ct scans and a MRE SCAN and a pet scan ..was told that i needed a lung guided needle biopsy so I can kno for sure if cancer ,the person who was gonna...

after 2 ct scans and a MRE SCAN and a pet scan ..was told that i needed a lung...

•6 years ago

Hello

Hi my name is sue and my mum had stage 4squamous cell lung cancer and COPD She has just started her chemo treatment she's having gem carbo more for palliative...

Hi my name is sue and my mum had stage 4squamous cell lung cancer and COPD She ...

•6 years ago

Side effects relating to docetaxel and nintedanib

Good morning all. As you will see from my previous post, my husband had his second dose of this regime two weeks ago. He has had a bad cough and...

Good morning all. As you will see from my previous post, my husband had his sec...

•6 years ago

Keytruda side effects

My husband has had 6 cycles of chemo, 10 treatments of radiations and his bloodwork has always been great through it all. He was sick a lil during the 3rd to...

My husband has had 6 cycles of chemo, 10 treatments of radiations and his bloodw...

•6 years ago