Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,782 members • 3,466 posts

All posts for May 2017

Pembrolizumab; Any success stories being only 20% positive for the mutation?

My husband hasn't had the go ahead yet for this line of treatment but we are not holding our breath either. So far he is getting no treatment at all as the...

My husband hasn't had the go ahead yet for this line of treatment but we are not...

NTu21

•7 years ago

1 Reply

Copd/lung cancer

Is it true this type of patient are poor candidates for surgery? If so what is done to keep patient comfortable etc

Is it true this type of patient are poor candidates for surgery? If so what is ...

Patti72

•7 years ago

6 Replies

Irresa side effect

Taking Irresa tablet for my lung cancer, do anyone have side effects on nail infection?

Taking Irresa tablet for my lung cancer, do anyone have side effects on nail inf...

Irenenoodle

•7 years ago

6 Replies

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Confused :-( - Lung Cancer

We have been on one big emotional rollercoaster!!. My Mum age 57 began back in November she started to get severe pain in her chest, we took her to A&E where...

We have been on one big emotional rollercoaster!!. My Mum age 57 began back in N...

Staceylee

•7 years ago

7 Replies

just found this site so thought id join might help me

h i to all

maureen48

•7 years ago

3 Replies

SCLC & Topotecan

Morning. Has anyone taken oral Topotecan, would like more information on side effects etc.

Morning. Has anyone taken oral Topotecan, would like more information on side e...

Claudia211

•7 years ago

17 Replies

Finally, Irressa.

Hi all, I have had my lastest CT Scan and they say the cancer in my lungs are growing and it's also changed so now they have given me irressa to take last...

Hi all, I have had my lastest CT Scan and they say the cancer in my lungs are gr...

angels5454

•7 years ago

11 Replies

How do you live with terminal lung cancer?

Hi I have been diagnosed with nsclc with brain mets. Have been on Anfatinib for a year, up until now has been really good, however last scan results showed...

Hi I have been diagnosed with nsclc with brain mets. Have been on Anfatinib for ...

Newroad

•7 years ago

8 Replies

Lung cancer

Hi my husband has had a pet scan .awitibg results .he was hospitalized with nvery swollen painful hands. Still suffering is this normal with lung cancer...

Hi my husband has had a pet scan .awitibg results .he was hospitalized with nver...

Hidden

•7 years ago

6 Replies

Skin itch any advice lung cancer

Over a year ago my mum was complaining about itchy skin on legs and torso. After various lotions and potions they eventually sent her to undergo uv...

Over a year ago my mum was complaining about itchy skin on legs and torso. Af...

Hidden

•7 years ago

4 Replies

Lump on chest wall 3 months after surgery!!

I had a lobectomy at the end of February as I had a 5.5cm mass in my middle lobe. After being told by the consultant and surgeon that it was unlikely to be...

I had a lobectomy at the end of February as I had a 5.5cm mass in my middle lobe...

tnbarker1

•7 years ago

1 Reply

Hand and foot syndrome gefitinib

I have been taking gefitinib for over 2 1/2 years. For the last 2 days the soles of my feet have been very sore and bright red. It feels as though I have my...

I have been taking gefitinib for over 2 1/2 years. For the last 2 days the soles...

Readhill

•7 years ago

6 Replies

Mother stage 4 lung and liver cancer

hello, My mother was diagnosed last month with stage 4 lung cancer that has spread to the liver. We will find out on the 18th what the plan is since we have...

hello, My mother was diagnosed last month with stage 4 lung cancer that has spre...

lauriejean123

•7 years ago

4 Replies

Lymph node activity found during lobectomy

Hi all I gave a question that hopefully someone will be able to help with! My mum was told last week that during her right lower lobectomy the surgeon...

Hi all I gave a question that hopefully someone will be able to help with! My mu...

MissyD1

•7 years ago

4 Replies

Update on GemCarbo Side Effects

Hi, Just writing as I'd previously posted asking about people's side effects from this. I start my second cycle on Monday. I'm delighted to say that so far,...

Hi, Just writing as I'd previously posted asking about people's side effects fro...

SAH1

•7 years ago

4 Replies

Life goes on around us while we go through hell. How can we make it bearable?

Hi All I'm supporting my husband with his stage 3 inoperable lung cancer. Recently they told him there is no point in carrying on with chemo because it is...

Hi All I'm supporting my husband with his stage 3 inoperable lung cancer. Recent...

NTu21

•7 years ago

17 Replies

Shortness of Breath??

Hi, i hope someone can clear this up for me. I have been having congested sinus lately and also my nose have been bleeding two to three times a day for the...

Hi, i hope someone can clear this up for me. I have been having congested sinus ...

Sam510

•7 years ago

6 Replies

Living in England and want to raise awareness about lung cancer?

Hello all We have been contacted by the Public Health team in England. We are pleased there is to be a new campaign on health including raising awareness of...

Hello all We have been contacted by the Public Health team in England. We are p...

LorraineD

Partner•7 years ago

6 Replies

Update after mums surgery

So my mum underwent a lobectomy and wedge resection 2 weeks ago. She has since suffered a pneumothorax on the right side due to a chest drain not functioning...

So my mum underwent a lobectomy and wedge resection 2 weeks ago. She has since s...

MissyD1

•7 years ago

6 Replies

Pets

I thought the following information about The Cinnamon Trust may be useful. Alongside the obvious problems and traumas people face, we may not think of the...

I thought the following information about The Cinnamon Trust may be useful. Alo...

Smoke

•7 years ago

2 Replies

Noncurative radio prognosis, (due to previous radio with breast cancer 20+ years ago) targeted/immunotherapy advice please advise, need help

I am writing in relation to my 75 year old mother. She was diagnosed 22/3 with a 5 cm tumour on lung. Pet scan showed chest lymph nodes inflamed failed biopsy...

I am writing in relation to my 75 year old mother. She was diagnosed 22/3 with a...

Hidden

•7 years ago

1 Reply

None Small Cell Cancer

Hello there again everyone, Its Jules here (on behalf of mum). Well all quiet here for mum- just waiting for the so called 'Base-line' assessments on 16th...

Hello there again everyone, Its Jules here (on behalf of mum). Well all quiet h...

Julesgettingthere

•7 years ago

6 Replies

Lost my Mum to Lung Cancer in 2005, now my Dad has been diagnosed with the same

Feeling a little shell shocked this morning, my Dad was diagnosed with Lung Cancer yesterday. We had suspected something was not right, and over the last few...

Feeling a little shell shocked this morning, my Dad was diagnosed with Lung Canc...

Andrew-Stoke-Poges

•7 years ago

5 Replies

Signing out

HI all lovely people ,I am now signing out in case things are grim ,well actually they are grim .Small brain tumour followed by ? Cardiac involvement after...

HI all lovely people ,I am now signing out in case things are grim ,well actuall...

Hidden

•7 years ago

9 Replies

Immuno-therapy Nivolumab & Ipilimumab - update

Hello everyone, Jules here again (on behalf of mum). We went to our appointment today at our local 'Cancer hospital' and its good news - they will take mum...

Hello everyone, Jules here again (on behalf of mum). We went to our appointment...

Julesgettingthere

•7 years ago

8 Replies

Stereotactic radiotherapy

Hi ,Since my recent dramas ,Stereotactic radiotherapy is heading my way high dose one hit .Obviously this is not brilliant so early after curative intent...

Hi ,Since my recent dramas ,Stereotactic radiotherapy is heading my way high dos...

Hidden

•7 years ago

10 Replies

Anyone women had hormone changes?

I've got my biopsy tomorrow so not long now bwfore i find out what tupe and extent on my lung cancer. However, even more scared now as even though I've been...

I've got my biopsy tomorrow so not long now bwfore i find out what tupe and exte...

Hidden

•7 years ago

7 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for May 2017

Pembrolizumab; Any success stories being only 20% positive for the mutation?

Copd/lung cancer

Irresa side effect

Confused :-( - Lung Cancer

just found this site so thought id join might help me

SCLC & Topotecan

Finally, Irressa.

How do you live with terminal lung cancer?

Lung cancer

Skin itch any advice lung cancer

Lump on chest wall 3 months after surgery!!

Hand and foot syndrome gefitinib

Mother stage 4 lung and liver cancer

Lymph node activity found during lobectomy

Update on GemCarbo Side Effects

Life goes on around us while we go through hell. How can we make it bearable?

Shortness of Breath??

Living in England and want to raise awareness about lung cancer?

Update after mums surgery

Pets

Noncurative radio prognosis, (due to previous radio with breast cancer 20+ years ago) targeted/immunotherapy advice please advise, need help

None Small Cell Cancer

Lost my Mum to Lung Cancer in 2005, now my Dad has been diagnosed with the same

Signing out

Immuno-therapy Nivolumab & Ipilimumab - update

Stereotactic radiotherapy

Anyone women had hormone changes?

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