Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,785 members • 3,467 posts

All posts for March 2016

Lung Cancer Information Day - Belfast 19th May 2016

Hi Everyone, We are hosting a Lung Cancer Information Day in Belfast on 19th May 2016 which offers support and information to people affected by lung cancer....

Hi Everyone, We are hosting a Lung Cancer Information Day in Belfast on 19th Ma...

InformationTeam

Roy Castle•8 years ago

2 Replies

Worried

Hi everyone not posted for a while.My husband diagnosed with lung cancer stage3b with mets in lymph node in neck over the weekend the lump in his neck more...

Hi everyone not posted for a while.My husband diagnosed with lung cancer stage3b...

Newby234

•8 years ago

4 Replies

Iressa

Hi my husband has been on Iressa since April last year he is starting to have problems with ingrowing eyelashes and his eyes are very watery. Anybody else...

Hi my husband has been on Iressa since April last year he is starting to have pr...

morrirk121

•8 years ago

4 Replies

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Sharing good news!

I have just had the results of my recent scans and they are all clear again. Huge relief. I was diagnosed in June 2014 with stage IIIb, adenocarcinoma and...

I have just had the results of my recent scans and they are all clear again. Hu...

Janey_H

•8 years ago

14 Replies

Crizotinib (Xalkori)

Have you been prescribed crizotinib? We are looking for patient experiences for crizotinib, if you can help you can post here or private message me. This is...

Have you been prescribed crizotinib? We are looking for patient experiences for...

NicF4

Partner•8 years ago

11 Replies

Non Small Cell Carcinoma Originally....... Neuroligical Pathway NO Gait.........

Hi after recovering from lung cancer 2014 i no longer can walk unaided does anybody have break down of legs..?????

Hi after recovering from lung cancer 2014 i no longer can walk unaided does anyb...

Wenjune

•8 years ago

2 Replies

TLC & Advice Please Throat & Lung Cancer

Hi everybody. My dad is 69. Until last year was fit & active. Young for his age you might say. In March 2015, however, he was diagnosed with cancer of the...

Hi everybody. My dad is 69. Until last year was fit & active. Young for his age ...

Alyaz

•8 years ago

2 Replies

Flu like symptoms

Hi all im hoping someone has had the same, Dad has had 5 chemos will be his 6th on Wednesday, always before on the first or second day of treatment Dad has...

Hi all im hoping someone has had the same, Dad has had 5 chemos will be his 6th ...

frankiedarv

•8 years ago

2 Replies

Info required what next?

Hi my dad has been diagnosed with stage 4 lung cancer, he has had 5 radiotherapy treatments and will see his consultant in 6 weeks.. We have him home but what...

Hi my dad has been diagnosed with stage 4 lung cancer, he has had 5 radiotherapy...

Ahudreddas

•8 years ago

9 Replies

waiting is so hard.

Hi everyone i finished 6 chemo;s and 30 rads for tonsil cancer 2 yrs ago. 3 weeks ago blood in sputum cheast xray, 2 weeks later gp called round said bad news...

Hi everyone i finished 6 chemo;s and 30 rads for tonsil cancer 2 yrs ago. 3 week...

Robertjb

•8 years ago

6 Replies

Thank you - Information Days

I would like to extend a big thank you to all who attended the Information days in Manchester and Liverpool. We really value your support and appreciate all...

I would like to extend a big thank you to all who attended the Information days ...

InformationTeam

Roy Castle•8 years ago

4 Replies

Mets

Can mets disappear completely? or can they only shrink? Chemo has made some shrinkage on my tumours , has anyone gone a long time after chemo before having...

Can mets disappear completely? or can they only shrink? Chemo has made some shri...

Giblets9

•8 years ago

2 Replies

Can you help us in Manchester or Liverpool?

We are having meetings (Information Days) this week in Manchester on Wednesday 16th and Liverpool 17th, can you please share this with anyone you know who...

We are having meetings (Information Days) this week in Manchester on Wednesday 1...

InformationTeam

Roy Castle•8 years ago

Be the first to reply

Inoperable to operable

Hi, I am stage 4 lung cancer with mets I've been on permetexed and cisplatin for nine weeks. I am due one last session then will be put on a drug for ALK...

Hi, I am stage 4 lung cancer with mets I've been on permetexed and cisplatin for...

Giblets9

•8 years ago

4 Replies

Breathing pains

So a couple of weeks ago I was experiencing theses pains in my throat and the middle of my chest, I was taken to hospital for the he second time and more more...

So a couple of weeks ago I was experiencing theses pains in my throat and the mi...

Littleannies

•8 years ago

2 Replies

EGFR mutations??

Is Egfr in the same group as Alk? The oncologist said they tested for egfr, does that mean they would have tested for alk too?

Is Egfr in the same group as Alk? The oncologist said they tested for egfr, does...

em16780

•8 years ago

2 Replies

Frankencence oil, has anyone tried this.

Hi All Has anyone tried Frankencence oil and if so did it help at all and would you recommend this or maybe something different. I have had Chemo and...

Hi All Has anyone tried Frankencence oil and if so did it help at all and would...

grandpavint

•8 years ago

7 Replies

Nivulamb - how do we get it ?

Mum not started treatment as yet , oncologist next week . But diagnosed with nclc advanced to lymph nodes . How do we get on this nivulamb ? Is it only...

Mum not started treatment as yet , oncologist next week . But diagnosed with ncl...

Holly_h78

•8 years ago

4 Replies

Alternative Medicines

Hi All My name is Gary and in August 2012 I was diagnosed with Lung Cancer. I have now had 3 lots of chemo and one lot of Radiotherapy. Not a lot of options...

Hi All My name is Gary and in August 2012 I was diagnosed with Lung Cancer. I h...

grandpavint

•8 years ago

3 Replies

Brain Mets continued

I posted about my mum last month, she had some peripheral neuropathy. Recently she has developed headaches and occasional nausea. She had her mri scan today at...

I posted about my mum last month, she had some peripheral neuropathy. Recently s...

em16780

•8 years ago

17 Replies

Can you help us in Manchester or Liverpool?

We are having meetings (Information Days) next week in Manchester on Wednesday 16th and Liverpool 17th, can you please share this with anyone you know who...

We are having meetings (Information Days) next week in Manchester on Wednesday ...

LorraineD

Partner•8 years ago

Be the first to reply

Worried

Hi just wondering if this has happened to anyone else I had my right lung removed last year due to having lung cancer & 2 years ago both my husband and dad had...

Hi just wondering if this has happened to anyone else I had my right lung remove...

racytracy

•8 years ago

6 Replies

Update on my mum from Jo

I'd like to thank you all for your kind advice & good wishes! It breaks my heart to tell you all that my beautiful Mum passed away at 10am yesterday morning! I...

I'd like to thank you all for your kind advice & good wishes! It breaks my heart...

1charliebarney

•8 years ago

6 Replies

nivolumba expanded access programme

My dad has just been told today that they will offer him the nivolumba expanded access programme - has anyone been on this ??? xx

My dad has just been told today that they will offer him the nivolumba expanded ...

TERRIpassword

•8 years ago

8 Replies

Lung Cancer Information Day - Manchester 16th March 2016

Hi Everyone, We are hosting a Lung Cancer Information Day in Manchester on the 16th March 2016 which offers support and information to people affected by lung...

Hi Everyone, We are hosting a Lung Cancer Information Day in Manchester on the ...

InformationTeam

Roy Castle•8 years ago

Be the first to reply

Update on my mum

Hi all My mum is deteriorating fast! She got rushed to hospital on Saturday as she was totally out of it & was in a lot of pain. They said that her level of...

Hi all My mum is deteriorating fast! She got rushed to hospital on Saturday as s...

1charliebarney

•8 years ago

16 Replies

Lung Cancer Information Day - Liverpool 17th March 2016

Hi Everyone, We are hosting a Lung Cancer Information Day in Liverpool on the 17th March 2016 which offers support and information to people affected by lung...

Hi Everyone, We are hosting a Lung Cancer Information Day in Liverpool on the 1...

InformationTeam

Roy Castle•8 years ago

2 Replies

Update on my dad

Okay so here is my update, for those who dont know I care for my wonderful Dad, we found it he had incurable lung cancer in about November and he started Chemo...

Okay so here is my update, for those who dont know I care for my wonderful Dad, ...

frankiedarv

•8 years ago

8 Replies

Chemo

Hi all , but if a random strange question here, can u eat custard while having chemo? We saw dads chemo nurse yesterday and she went through a load of food not...

Hi all , but if a random strange question here, can u eat custard while having c...

Yvonne84

•8 years ago

10 Replies

RET amplification

Does anyone have a RET mutation? My husband tested positive for that mutation.

JanRucci

•8 years ago

3 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for March 2016

Lung Cancer Information Day - Belfast 19th May 2016

Worried

Iressa

Sharing good news!

Crizotinib (Xalkori)

Non Small Cell Carcinoma Originally....... Neuroligical Pathway NO Gait.........

TLC & Advice Please Throat & Lung Cancer

Flu like symptoms

Info required what next?

waiting is so hard.

Thank you - Information Days

Mets

Can you help us in Manchester or Liverpool?

Inoperable to operable

Breathing pains

EGFR mutations??

Frankencence oil, has anyone tried this.

Nivulamb - how do we get it ?

Alternative Medicines

Brain Mets continued

Can you help us in Manchester or Liverpool?

Worried

Update on my mum from Jo

nivolumba expanded access programme

Lung Cancer Information Day - Manchester 16th March 2016

Update on my mum

Lung Cancer Information Day - Liverpool 17th March 2016

Update on my dad

Chemo

RET amplification

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