Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,783 members • 3,467 posts

All posts for April 2022

Our Ask the Nurse service is closed Monday 3rd May 2022 and will resume services on Tuesday 4th May 2022

Our Ask the nurse service is closed Monday 3rd May 2022, and will resume services on Tuesday 4th May 2022. You can email ask the nurse at...

Our Ask the nurse service is closed Monday 3rd May 2022, and will resume service...

RoyCastleHelpline

Partner•2 years ago

Be the first to reply

CBD OIL

Just read an article about an 80 year old lady who had stage 4 lung cancer and took liquid CBD oil daily, and refused all treatment. The tumour disappeared. Is...

Just read an article about an 80 year old lady who had stage 4 lung cancer and t...

Tike3

•2 years ago

15 Replies

Does My Husband Have Chemo Brain?

My husband finished chemotherapy on the 9th April and for the past two weeks has been very confused. He remembers things such as my name, his kid's names, date...

My husband finished chemotherapy on the 9th April and for the past two weeks has...

Texas22

•2 years ago

2 Replies

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post radiotherapy treatment

I have just finished 20 fractions of radiotherapy and am now struggling with the heartburn like side effects. Was wondering what are the best medicines or...

I have just finished 20 fractions of radiotherapy and am now struggling with the...

arthurpops

•2 years ago

3 Replies

Lung cancer

Hello I am 31 and I live In London, I had liver cancer a few years ago but now I have been told I could have lung cancer. I am terribly upset and feel very...

Hello I am 31 and I live In London, I had liver cancer a few years ago but now ...

Valentina_22

•2 years ago

9 Replies

Lung cancer

Hello I had liver cancer in 2018 and have now be told I have nodules in my lungs which have grown from to another 5 in the same of a few months. I was told...

Hello I had liver cancer in 2018 and have now be told I have nodules in my lung...

Valentina_22

•2 years ago

9 Replies

Patient experience of Atezolizumab (Tecentriq)

Atezolizumab (Tecentriq) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHSScotland, and we have been invited to provide a...

Atezolizumab (Tecentriq) will shortly be assessed by the Scottish Medicines Cons...

NicF4

Partner•2 years ago

9 Replies

Patient experience of Bronchoscopy

We are being asked to submit on behalf of patients on a potential new drug for Bronchoscopy. We therefore need to hear about patients experiences of...

We are being asked to submit on behalf of patients on a potential new drug for B...

NicF4

Partner•2 years ago

8 Replies

Immunotherapy Side Effect

Had full course of immunotherapy last September but unfortunately was unsuccessful and planned to start chemotherapy. In February I became unwell with bowel...

Had full course of immunotherapy last September but unfortunately was unsuccessf...

Tike3

•2 years ago

6 Replies

Tagisso side effects

I would welcome any help from my friends on Health Unlocked. 2 weeks ago I was started on Tagrisso which I was told had only a very limited chance of making a...

I would welcome any help from my friends on Health Unlocked. 2 weeks ago I was s...

sally70

•2 years ago

14 Replies

Our ask the nurse service is closed Friday 15th and Monday 18th April

Our Ask the Nurse service is not available over the Easter public holiday 15th – 18th April. You can send an email to lungcancerhelp@roycastle.org and we will...

Our Ask the Nurse service is not available over the Easter public holiday 15th –...

RoyCastleHelpline

Partner•2 years ago

11 Replies

Have experienced weight loss with advanced (stage 4) non-small cell lung cancer?

Hello all Roy Castle Lung Cancer Foundation is supporting a group of UK doctors and researcher working with the Advanced Clinical company to develop a trial on...

Hello all Roy Castle Lung Cancer Foundation is supporting a group of UK doctors ...

LorraineD

Partner•2 years ago

2 Replies

Yes it's the wrong forum but need to post! - Brain Cancer

Recently had all clear for for cancer. But today told I have brain cancer. Shock! Appointment being booked with Oncologist but advise please:- What do I ask...

Recently had all clear for for cancer. But today told I have brain cancer. Shock...

Beatless

•2 years ago

16 Replies

Query about lung infection and sore shoulder.

Are any of you really sick when you have a lung infection? I was supposed to get antibiotics today but they didn't come and I have been violently sick, have a...

Are any of you really sick when you have a lung infection? I was supposed to get...

Danni54

•2 years ago

21 Replies

Worrying times

Hi all, new here so thought I should set the ball rolling on this journey many of us are on. I am yet to receive a formal diagnosis but have been told I have a...

Hi all, new here so thought I should set the ball rolling on this journey many o...

Janehead

•2 years ago

12 Replies

My dad’s diagnosis stage 3a adenocarcinoma. Feel 💔

My dad finally has his lung cancer diagnosis after two months of tests. It’s stage 3a adenocarcinoma. Waiting for the treatment plan with the oncologist to...

My dad finally has his lung cancer diagnosis after two months of tests. It’s sta...

Jaynelovestravel

•2 years ago

9 Replies

Update

My wife Stage 4 lung cancer, spread to liver and bones. Was admitted to hospital yesterday in terrible pain for days. NO treatments (radiation for bones,...

My wife Stage 4 lung cancer, spread to liver and bones. Was admitted to hospital...

Enair

•2 years ago

4 Replies

Lung infections after Lobectomy?

Hi all. Reading what you are all going through makes me feel a bit dubious about posting here again. I have had the most amazing support from people on this...

Hi all. Reading what you are all going through makes me feel a bit dubious about...

Danni54

•2 years ago

23 Replies

ANXIOUS ABOUT THE COST OF LIVING? CHANNEL 4 LOOKING TO INTERVIEW ANYONE WITH CANCER

We have been contacted by Channel 4 news, who are looking to talk to someone who is facing serious illness or disease, and the impact on the rising cost of...

We have been contacted by Channel 4 news, who are looking to talk to someone who...

RoyCastleHelpline

Partner•2 years ago

Be the first to reply

TEN YEAR CANCER PLAN, YOUR THOUGHTS ON THIS, DEADLINE 8TH APRIL

The NHS has an ambitious 10 year plan to improve how they diagnose and treat cancers. This is a great opportunity to express your views and comments on this....

The NHS has an ambitious 10 year plan to improve how they diagnose and treat can...

RoyCastleHelpline

Partner•2 years ago

Be the first to reply

Still in shock,

Hello, the above says it all. Last October my husband of 30+ years went out to play table tennis and never came back. Long story short, an undiagnosed heart...

Hello, the above says it all. Last October my husband of 30+ years went out to ...

Red00

•2 years ago

11 Replies

Prendnisoline

Treatment stop while on prendnisolone for month start at ten a day reduce every three days till one a day feel dizzy n weak is this normal

Treatment stop while on prendnisolone for month start at ten a day reduce every ...

Red58

•2 years ago

6 Replies

Anybody else had spread to eye orbit

Hi, just wondering if anybody has had lung cancer spread to their eye orbit. I had already got mets to spine, hip and femur. Everything responded really...

Hi, just wondering if anybody has had lung cancer spread to their eye orbit. I...

Appletree25

•2 years ago

14 Replies

Permetrexed

Anyone have this on its own after receiving cartoplatin and permetrexed. What are the side effects. Been really rough on the duo just wondering it it will be...

Anyone have this on its own after receiving cartoplatin and permetrexed. What ar...

Kathy240

•2 years ago

4 Replies

Help and advice please.

Hello again everyone. I have just started on Tagisso which my doctor said is unlikely to work because my tumour doesn't have the right genetic 'make up'. But...

Hello again everyone. I have just started on Tagisso which my doctor said is unl...

sally70

•2 years ago

2 Replies

lung cancer and secondary. spine cancer

A few weeks ago someone posted a message online which made me think they were in a very similar position to myself and they asked a question which felt very...

A few weeks ago someone posted a message online which made me think they were in...

nantilly

•2 years ago

3 Replies

radiotherapy

I am nearly halfway through a course of radiotherapy with the aim of curing my lung cancer. I was just wondering if anyone else has been in a similar position...

I am nearly halfway through a course of radiotherapy with the aim of curing my l...

arthurpops

•2 years ago

4 Replies

Steriods

I’m off my treatment for four weeks due kidney function on steroids reducing them every three days been taking slight dizzy turns is this normal with steroids...

I’m off my treatment for four weeks due kidney function on steroids reducing the...

Red58

•2 years ago

7 Replies

Finally received results

My wife in (Ontario, Canada ), has results from scans and liver biopsy. Stage 4 lung cancer non small cell that spread to liver and bones. Waiting to meet with...

My wife in (Ontario, Canada ), has results from scans and liver biopsy. Stage 4 ...

Enair

•2 years ago

2 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for April 2022

Our Ask the Nurse service is closed Monday 3rd May 2022 and will resume services on Tuesday 4th May 2022

CBD OIL

Does My Husband Have Chemo Brain?

post radiotherapy treatment

Lung cancer

Lung cancer

Patient experience of Atezolizumab (Tecentriq)

Patient experience of Bronchoscopy

Immunotherapy Side Effect

Tagisso side effects

Our ask the nurse service is closed Friday 15th and Monday 18th April

Have experienced weight loss with advanced (stage 4) non-small cell lung cancer?

Yes it's the wrong forum but need to post! - Brain Cancer

Query about lung infection and sore shoulder.

Worrying times

My dad’s diagnosis stage 3a adenocarcinoma. Feel 💔

Update

Lung infections after Lobectomy?

ANXIOUS ABOUT THE COST OF LIVING? CHANNEL 4 LOOKING TO INTERVIEW ANYONE WITH CANCER

TEN YEAR CANCER PLAN, YOUR THOUGHTS ON THIS, DEADLINE 8TH APRIL

Still in shock,

Prendnisoline

Anybody else had spread to eye orbit

Permetrexed

Help and advice please.

lung cancer and secondary. spine cancer

radiotherapy

Steriods

Finally received results

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