Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,779 members • 3,464 posts

All posts for July 2019

Recommendations for 2nd opinion

Hi all! Can anyone recommend a private top lung oncologist in the UK for a 2nd opinion on a diagnosis please? We have already asked oncologists in Royal...

Hi all! Can anyone recommend a private top lung oncologist in the UK for a 2nd o...

Workaddict58

•5 years ago

6 Replies

MacMillan Populous Ltd Survey working with Quality Health Ltd, Living with Cancer

Hi Just wanted to warn any of you that have received this survey, that, if you complete it on line you get asked additional questions, regarding what...

Hi Just wanted to warn any of you that have received this survey, that, if you ...

Gillo22

•5 years ago

2 Replies

Asbestos & Small Cell Lung Cancer

My wife was diagnosed with SCLC in March 2019. She is now on Palliative Chemo just to give her a bit of extra time. I was also diagnosed with Enlarged Hilar...

My wife was diagnosed with SCLC in March 2019. She is now on Palliative Chemo ju...

Babydolltina

•5 years ago

8 Replies

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Worries re possible genetic predisposition to lung cancer

I have a friend and the females in each generation of her family have developed lung cancer. She and her mother are understandably concerned re their risk and...

I have a friend and the females in each generation of her family have developed ...

Manninmaid

•5 years ago

6 Replies

1sr Appointment with Oncologist

Good evening everyone. Good news - the cancer has not spread beyond my lungs! He thinks Immunotherapy is the best option for me (due to the pneumonia I had in...

Good evening everyone. Good news - the cancer has not spread beyond my lungs! He...

Aamar

•5 years ago

11 Replies

Is cancer hereditary

My dad has lung cancer. I’m now terrified I am going to get it :(

Jill83

•5 years ago

5 Replies

Positive stories please

Has anyone had/got spinal chord compression that is managed for a long time?

Jill83

•5 years ago

Be the first to reply

Chances of developing cancer

My dad has lunch cancer. Caused by mining apparently. But now I’m terrified I am going to get cancer. It’s consuming my thoughts.

My dad has lunch cancer. Caused by mining apparently. But now I’m terrified I a...

Jill83

•5 years ago

6 Replies

How do you cope day to day

My dad has stage 4 lung cancer. No treatment has ever helped him. How as a daughter do you help function. I’ve a baby and 2 year old and I’m struggling to be...

My dad has stage 4 lung cancer. No treatment has ever helped him. How as a daugh...

Jill83

•5 years ago

8 Replies

Lung with brain Mets and not treating

Posted a while ago about dad being diagnosed with stage 4nsclc with Mets to brain. There was hope of immunotherapy being given after initial radiotherapy to...

Posted a while ago about dad being diagnosed with stage 4nsclc with Mets to brai...

Chipmonk23

•5 years ago

17 Replies

TAXOL COMPLETE

I did 3 rounds of Taxol chemo for a lymph node located in my lung area that was a reoccurrence of my cancer, I did a cut 3 weeks ago and no body from my cancer...

I did 3 rounds of Taxol chemo for a lymph node located in my lung area that was ...

Lovey1000

•5 years ago

1 Reply

Adjuvant Chemotherapy

Hi all. I can't seem to find any real details about adjuvant chemotherapy in the UK online. I had a LLL lobectomy on 18th June and I am currently awaiting an...

Hi all. I can't seem to find any real details about adjuvant chemotherapy in th...

SunshineAhead

•5 years ago

11 Replies

Nerve pain after vats Lobectomy

Hi folks- yes I have nerve pain and I’m back to the gp today to get meds to help with the pain. I tried to stop the dihydrocideine but I’m afraid I couldn’t...

Hi folks- yes I have nerve pain and I’m back to the gp today to get meds to help...

AlisonPK

•5 years ago

11 Replies

spireometer

how long do you need to use your spireometer for after lobectomy ?

dogsbody321

•5 years ago

4 Replies

E cig

Hi my name is Alice ,ive been trying to use the ecig for some time now ,because I find it to to much of a fight to give up nicotine from cigarettes ,so I am...

Hi my name is Alice ,ive been trying to use the ecig for some time now ,because ...

Alice70

•5 years ago

5 Replies

Caught a cold, is that bad news?

Hello, again, I posted over the weekend about my fourth round of chemo being cancelled. Fristly thanks for the reassuring replies. Now for another...

Hello, again, I posted over the weekend about my fourth round of chemo being ca...

lucanus15

•5 years ago

2 Replies

Nerve pain after vats Lobectomy

Hi folks- although I got the all clear for the lung cancer I’ve had a swelling under right breast since1st week(now 4 weeks since surgery). Dr thought at first...

Hi folks- although I got the all clear for the lung cancer I’ve had a swelling u...

AlisonPK

•5 years ago

7 Replies

how soon can you lift after lobectomy?

had lobectomy april 11th upper left.healed well .last week lifted my fat dog into car.think iv pulled a muscle in my back very bad pain between shoulder...

had lobectomy april 11th upper left.healed well .last week lifted my fat dog int...

dogsbody321

•5 years ago

2 Replies

Last Cisplatin Alimta postponed

Good evening good people, just a quick question please. I was due my last round of chemo tomorrow and due to low white blood count in Friday's blood test it...

Good evening good people, just a quick question please. I was due my last round ...

lucanus15

•5 years ago

3 Replies

First immunotherapy

I have just had my first dose of Tacentriq and was wondering if anyone else has had this and have they had any side effects. Thanks Alison

I have just had my first dose of Tacentriq and was wondering if anyone else has ...

Alisonrahill

•5 years ago

1 Reply

Post lower right lobectomy I have LPR

Has anyone developed LPR after lung surgery? I have been taking PPI med and Gaviscon Advance for about 7 weeks but still have bouts of hoarse voice,...

Has anyone developed LPR after lung surgery? I have been taking PPI med and Gav...

Mauranne

•5 years ago

4 Replies

Skin Irritation

A friend of mine is a fellow lung cancer patient who has small cell lung cancer and is currently on carboplatin chemotherapy. She has developed a really...

A friend of mine is a fellow lung cancer patient who has small cell lung cancer ...

Manninmaid

•5 years ago

5 Replies

Extreme Tiredness During Day

Hello I have COPD and on Oxygen for activity In 2016 September 12th I had a left lung lobectomy bottom half removed , because of two cancers on lung,...

Hello I have COPD and on Oxygen for activity In 2016 September 12th I had a lef...

Guy59

•5 years ago

3 Replies

Good news

Just got a call from lung nurse that I’m cancer free! No further treatment required after the Lobectomy. I’m still recovering but this makes end seem so much...

Just got a call from lung nurse that I’m cancer free! No further treatment requi...

AlisonPK

•5 years ago

11 Replies

OMG - what a lovely bunch you are

Thank you all for responding to my very wordy post on Sunday. It's amazing what a good off-load and a few tears can achieve. I came home and found it a lot...

Thank you all for responding to my very wordy post on Sunday. It's amazing what ...

Aamar

•5 years ago

3 Replies

PATCH ON LUNG 3

The CT Scan with Biopsy through a needle into the lung was carried out on Tuesday morning and after recovery my wife was allowed home late afternoon, but no...

The CT Scan with Biopsy through a needle into the lung was carried out on Tuesda...

Hidden

•5 years ago

5 Replies

Lung Cancer Awareness Month - share your views?

Following on from our HeadHigh, Face your Fear and Like Me campaigns we are looking for people to take part in our next campaign. If you are living with lung...

Following on from our HeadHigh, Face your Fear and Like Me campaigns we are look...

LorraineD

Partner•5 years ago

2 Replies

Sweeping asbestos under the carpet.

Hello all. Apparently their was a topic of conversation on Sky news the other morning.The subject was whether or not asbestos should be removed from thousands...

Hello all. Apparently their was a topic of conversation on Sky news the other mo...

bobknob51

•5 years ago

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Advice on taking EBUS-TABNA

My pet scan revealed that my right lower lobe apical segment nodule grown to 1.3 cm and uptake SUV max 10.5 They suggested to have endobronchial ultrasound...

My pet scan revealed that my right lower lobe apical segment nodule grown to 1.3...

Ghssan

•5 years ago

5 Replies

New Roy Castle booklets - can you help?

Hello. I am the Information Officer at Roy Castle Lung Cancer Foundation and I am working on two new booklets: - Understanding bone metastases and lung cancer,...

Hello. I am the Information Officer at Roy Castle Lung Cancer Foundation and I a...

Hidden

•5 years ago

9 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for July 2019

Recommendations for 2nd opinion

MacMillan Populous Ltd Survey working with Quality Health Ltd, Living with Cancer

Asbestos & Small Cell Lung Cancer

Worries re possible genetic predisposition to lung cancer

1sr Appointment with Oncologist

Is cancer hereditary

Positive stories please

Chances of developing cancer

How do you cope day to day

Lung with brain Mets and not treating

TAXOL COMPLETE

Adjuvant Chemotherapy

Nerve pain after vats Lobectomy

spireometer

E cig

Caught a cold, is that bad news?

Nerve pain after vats Lobectomy

how soon can you lift after lobectomy?

Last Cisplatin Alimta postponed

First immunotherapy

Post lower right lobectomy I have LPR

Skin Irritation

Extreme Tiredness During Day

Good news

OMG - what a lovely bunch you are

PATCH ON LUNG 3

Lung Cancer Awareness Month - share your views?

Sweeping asbestos under the carpet.

Advice on taking EBUS-TABNA

New Roy Castle booklets - can you help?

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