Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

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Brain Mets

Hi all mom was diagnosed with NSCLC cancer stage 3B in September 2020. She had radiotherapy chemotherapy and immunotherapy and seem to be doing well. Cancer...

Hi all mom was diagnosed with NSCLC cancer stage 3B in September 2020. She had...

Mommyworld

•11 days ago

4 Replies

Gemcarbo

Hi, I'm about to start gemcarbo chemotherapy next week, has anyone else had this and how bad were the side effects? Thanks

Hi, I'm about to start gemcarbo chemotherapy next week, has anyone else had this...

arthurpops

•15 days ago

3 Replies

Body Breathing Session

Our next holistic Body Breathing session will take place on Thursday 14th of November. The session is held over Zoom and lasts for...

Our next holistic Body Breathing session will take place on Thursday 14th of Nov...

ConnectRoyCastle

Administrator•16 days ago

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Docetaxel starting soon for Mum - advice?

Hi There, My mum (stage 4 NSCLC with mets to spine and ribcage, Diagnosed Jan 2024, started treatment March 2024) stopped immunotherapy as it's not...

Hi There, My mum (stage 4 NSCLC with mets to spine and ribcage, Diagnosed Ja...

DaughterofDiane

•17 days ago

5 Replies

Post Radiotherapy

Hi all, Some of you may know my story. My mum completed her radiotherapy on August 15th. Her hair is growing back nicely and today, she was scheduled to have...

Hi all, Some of you may know my story. My mum completed her radiotherapy on Au...

Paulo1976

•23 days ago

4 Replies

Lung Cancer 'Managing through Treatment' Support Sessions.

We are looking to start a new 'Treatment Management' support session. This group will be open to anyone undergoing (or about to undergo) treatments for lung...

We are looking to start a new 'Treatment Management' support session. This group...

ConnectRoyCastle

Administrator•23 days ago

1 Reply

Progression on osimertinib

Hi My mother is diagnosed with Stage 4 Adenocarcinoma Egfr 19exon deletion ,she was on Osimertinib 80mg with good response but recent scans show progression...

Hi My mother is diagnosed with Stage 4 Adenocarcinoma Egfr 19exon deletion ,she ...

mylove12

•25 days ago

3 Replies

Palliative Care

Hi - me again - Just so confused and looking for something positive to cling to. We’ve had a call from the hospital that my brother is being referred for...

Hi - me again - Just so confused and looking for something positive to cling to....

Brianderrick12

•29 days ago

13 Replies

3 years of treatment stage 4

Hi Everyone- hope you’ve all had a good weekend. Just trying to find out what leads up to treatment being stopped ? My brother had an appointment on Friday and...

Hi Everyone- hope you’ve all had a good weekend. Just trying to find out what le...

Brianderrick12

•1 month ago

1 Reply

Recovering from treatment for limited small cell lung cancer

I’m getting near the end of chemo-radiotherapy. It’s the second time I’ve had to through it in the last five years - the last time was for anal cancer - and...

I’m getting near the end of chemo-radiotherapy. It’s the second time I’ve had t...

Warham

•2 months ago

7 Replies

Stage 4 NSCLC

Hi all, Looking for some advice. My mum got diagnosed with Stage 4 in January and started treatment in March. She initially had chemo (Pemexetred and...

Hi all, Looking for some advice. My mum got diagnosed with Stage 4 in Januar...

DaughterofDiane

•2 months ago

7 Replies

Anyone with experience of treatment before or after surgery in Scotland? Are you willing to share your story?

Hello We have had some enquiries from a journalist regarding some potential changes in treatment for lung cancer. If you have had experience of neo or...

Hello We have had some enquiries from a journalist regarding some potential ...

LorraineD

Partner•2 months ago

1 Reply

Mid Stereotactic Radiotherapy treatment

Hi all, I hope you are all all well as possible and staying positive. I am mid way through my 5 treatments and am really tired, my shoulder feels as though...

Hi all, I hope you are all all well as possible and staying positive. I am mid...

SandraLlew

•2 months ago

7 Replies

NSCLC - symptoms when progressed to brain

Mom had nsclc stage 3b diagnosed in Sep 2020. Recently she has become forgetful, pain in the left finger, dropping things etc. Can I ask did anyone have it go...

Mom had nsclc stage 3b diagnosed in Sep 2020. Recently she has become forgetful,...

Mommyworld

•2 months ago

2 Replies

A rare lung cancer

I was diagnosed a lung adenocarcinoma, a RET positive fusion mutation in Januarya2024.Am told its a rare cancer. I would like to chat with anyone else here who...

I was diagnosed a lung adenocarcinoma, a RET positive fusion mutation in January...

Lynx57

•2 months ago

10 Replies

Cough

I have incurable lung cancer and currently undergoing immunotherapy treatment. Am due a ct staging scan on Monday and see the consultant in about 3 weeks. If...

I have incurable lung cancer and currently undergoing immunotherapy treatment. A...

arthurpops

•2 months ago

5 Replies

Mum passed away from extensive stage SCLC - tormented by what ifs

Hi there, wondered if I could ask for your advice please? My Mum passed away at the beginning of September from extensive stage small cell lung cancer. It all...

Hi there, wondered if I could ask for your advice please? My Mum passed away at ...

diond85

•2 months ago

21 Replies

Have you had experience of brain or bone mets?

Hello all, Roy Castle Lung Cancer Foundation are updating our booklets as we do regularly to ensure they keep up with changes in treatment. We are looking...

Hello all, Roy Castle Lung Cancer Foundation are updating our booklets as we ...

LorraineD

Partner•2 months ago

4 Replies

Any advice stage 4 lung cancer

Hi, looking for any advice or suggestions or positive stories to help us. My dad, who is 72 years old, has been on a roller coaster journey in the last couple...

Hi, looking for any advice or suggestions or positive stories to help us. My dad...

Dadsecretary

•2 months ago

2 Replies

So Fatigued

Hi There, My partner has stage 4 SCLC diagnosed 26th July. It has not responded to first line platinum chemo and has infact got bigger as it is resistant and...

Hi There, My partner has stage 4 SCLC diagnosed 26th July. It has not responded...

Alfie2024

•2 months ago

11 Replies

quality of life

I'm very low at the moment because there's not much that Ican do. I long to be out on a clifftop walking. I'd like to be anywhere other than my living...

I'm very low at the moment because there's not much that Ican do. I long to b...

Gingergus

•2 months ago

5 Replies

Advice

Morning everyone, hope we are all keeping well. I have previously posted on here about mum, who has severe COPD and SCLC. She has undergone horrendous chemo...

Morning everyone, hope we are all keeping well. I have previously posted on here...

Paulo1976

•2 months ago

8 Replies

Planning Scan

Having the planning scan for the cancer treatment tomorrow, doc assures me it's painless and quick. Anyone have any personal experiences of this scan?

Having the planning scan for the cancer treatment tomorrow, doc assures me it's ...

SandraLlew

•2 months ago

9 Replies

Awareness month coming up, would you like to feature?

November is lung cancer awareness month. This a time when the charity tries to raise the profile of lung cancer. If you would be willing to take part please do...

November is lung cancer awareness month. This a time when the charity tries to r...

LorraineD

Partner•3 months ago

2 Replies

PATIENT EXPERIENCE OF DURVALUMAB (IMFINZI)

Durvalumab (Imfinzi) will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland. The indication this medicine will be assessed...

Durvalumab (Imfinzi) will shortly be assessed by the Scottish Medicine Consortiu...

RoyCastleHelpline

Partner•3 months ago

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Tagrisso and inflammation

I started with an eczema in September 2023. This was the first time I ever had a skin problem. Between Sept to Dec we tried everything to understand why I...

I started with an eczema in September 2023. This was the first time I ever had...

CAB1968

•3 months ago

2 Replies

Stage 3 curative?

HiMy mum (76 years old with COPD and emphysema) was diagnosed on 17 June with stage 3 nsclc with localised spread to a rib and lymph node. She has her 20th and...

HiMy mum (76 years old with COPD and emphysema) was diagnosed on 17 June with st...

Lesleypod

•3 months ago

4 Replies

biopsy results

I have been diagnosed with Squamous cell lung cancer, I met with the respiratory doctor, who is booking me in for a pneumonectomy, has anyone had this...

I have been diagnosed with Squamous cell lung cancer, I met with the respirator...

Hedgehog43

•3 months ago

8 Replies

Stereotactic Radiotherapy for stage 1 lung cancer

Can anyone tell me what this is like? I have been told I will need 5 treatments over 10 days. South Wales UK

Can anyone tell me what this is like? I have been told I will need 5 treatments ...

SandraLlew

•3 months ago

12 Replies

ASK THE NURSE SERVICE OPEN PH MONDAY 26TH AUGUST

Our Ask the Nurse service is open this coming Public Holiday Monday 26th August. You can contact us on our freephone number on 0800 358 7200 hours...

Our Ask the Nurse service is open this coming Public Holiday Monday 26th August...

RoyCastleHelpline

Partner•3 months ago

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Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

Brain Mets

Gemcarbo

Body Breathing Session

Docetaxel starting soon for Mum - advice?

Post Radiotherapy

Lung Cancer 'Managing through Treatment' Support Sessions.

Progression on osimertinib

Palliative Care

3 years of treatment stage 4

Recovering from treatment for limited small cell lung cancer

Stage 4 NSCLC

Anyone with experience of treatment before or after surgery in Scotland? Are you willing to share your story?

Mid Stereotactic Radiotherapy treatment

NSCLC - symptoms when progressed to brain

A rare lung cancer

Cough

Mum passed away from extensive stage SCLC - tormented by what ifs

Have you had experience of brain or bone mets?

Any advice stage 4 lung cancer

So Fatigued

quality of life

Advice

Planning Scan

Awareness month coming up, would you like to feature?

PATIENT EXPERIENCE OF DURVALUMAB (IMFINZI)

Tagrisso and inflammation

Stage 3 curative?

biopsy results

Stereotactic Radiotherapy for stage 1 lung cancer

ASK THE NURSE SERVICE OPEN PH MONDAY 26TH AUGUST

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