Daisy4711 hours ago
Following my scan 3 weeks ago. My appointment with lung nurse yesterday, has set me on the road to further investigation. I have been clear ...
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ALK Positive on alectinib intro....
Amanda1912a day ago
Hi, I have stage 4 lung cancer with an ALK rearrangement. I’ve been on alectinib since Nov 17. Currently responding to treatment - long may ...
2 Replies4 Likes
Mum's stage 4 diagnosis
Polly2018a day ago
Last Monday my mum was diagnosed with a non-specific stage 4 lung cancer. I say non-specific as the consultant does not want to put her thro...
alice1112 days ago
In December 2011 my husband was diagnosed with early stage NSCLC . He went on to have a lower left lobectomy but adjuvent chemo was not cons...
Dad has advanced Lung Cancer.
rammie65 days ago
I am looking for some advice please. My 79 year old Dad has stage 4 LC which is no longer treatable. One lung has collapsed completely and t...
Aggressive lung cancer and Mets
Hopes776 days ago
I've posted before on here but not for the past 6 weeks.
Recap..my mum then 77yrs was diagnosed with lung cancer and liver cancer with ...
NicF48 days ago
Medicine consortium time again. Looking for any patient and carer experience of Alectininb (Alecensa). please get in contact if you have had...
3 Replies2 Likes
We have been contacted by Boeringer Ingelheim, they are are looking a patient and carer perspective on nutrition.
Boeringer Ingelheim would like to ask participants and their contacts and members for content ideas for recipes and discussion topics
4 Replies2 Likes
Foods to eat to support the fight with lung cancer and brain mets, which is also suitable during chemotherapy
sarah_budden9 days ago
My lovely step dad has suddenly become unwell and diagnosed with squamous cell lung cancer and brain mets. We are devastated. My dad d...
Anyone Know HOW This Work’s
JeffAjaxSmith16 days ago
Turning NEGATVES into positives with immutherpy drugs.
Tremelimumab STORY is quite interesting.
Malignant pleural mesothelioma (MPM) is a rare...
U.K. first meeting for people who have ALK positive mutation lung cancer and or their partners or carers
Bow-1919 days ago
Please see details below. It is being arranged by Debra Montague who is a member of the ALK positive Facebook page and lives in the U.K.
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Immunotherapy after 4 months hasn’t worked any suggestions other than more Chemotherapy?
ParchWoody23 days ago
Please see my previous post.
Immunotherapy after 4 months has worked other more chemo any suggestions?
I was diagnosed with stage 4 NSC/squamous cell lung cancer in Aug 2016 and treated at Clatterbridge Wirral. I Had 6 cycles of chemotherapy ...
Palliative Pain Management Team
Hopes77a month ago
My mum had to have an mri yesterday, she's currently an inpatient in hospital after being reduced to tears due to severe pain in her lower b...
Request from British Lung Foundation
LorraineDa month ago
The Taskforce for Lung Health is a group of organisations and people with an interest in lung health, including lung cancer. We’re working t...
2 Replies1 Like
I'm wondering if you have completed the Lung Cancer Registry Yet?
Surviventhrivea month ago
I wonder if any of you have heard of the Lung Cancer Registry? The Registry is a joint effort of the Bonnie J Addario Lung Cancer Foundation...
5 Replies2 Likes
BRADFORD PATIENT INFORMATION DAY
NicF4a month ago
Friday 4th May 2018 10.00-16.20
Cancer Support Yorkshire
44 Smith lane
A day to provide lung cancer patients and their carers ...
Mom diagnosed stage 4 Undifferentiated carcinoma. Mets through lymph and bones and in spine
Daddyishealinga month ago
I am unfamiliar with lung cancer and I need some help. understanding treatment and the oncologist answer to her that she may live a year pos...
Rejection of Alectinib 1st line
Leslie42a month ago
Shocked to find out yesterday that NICE have rejected. Alectinib as 1st line treatment!!!!
Crazy decision as it crosses the BBB whereas Crixo...
6 Replies2 Likes
JeffAjaxSmitha month ago
Well my dad had other ct scan AND the cancer of the plaura had vanished.
Great news BUT am sure it’s not that great AS my dad as been dischar...
Roll Out National Lung Health Check. A petition by Roy Castle Lung Cancer Foundation aiming to improve early diagnosis
Bow-19a month ago
I thought some people on this page might be interested in signing the petition to help improve early diagnosis rates for people with lung ca...
Interesting Article about drug developments for ALK and EGFR
5 Replies1 Like
Possibility of secondary mutation ?
CCheng8346a month ago
Hi my sister starts Iressa this month a supply of 15 pills for now. Just curious if this medication to be taken indefinitely even if the tum...
4 Replies1 Like
sue24282 months ago
husband starting on docetaxel on monday have read it can cause breathlesness ,worried has he already struggling for breath on very little e...
8 Replies2 Likes
NO Brain Mets
Lovey10002 months ago
After 6months of chemo and my right upper middle and upper lobes removed, i had a pet scan and was told NED. I was referred to another onco...
5 Replies13 Likes
Life after treatment advice
Hopes772 months ago
Hi I am posting this for advice as a carer for my mum.
She has Neuroendocrine cancer in her lung with Mets to her liver.
I've posted before an...
Surgery for stage 4 nsclc
Acb482 months ago
Hi - does anyone have any experience of surgery or radiation for stage 4 nsclc? I have read of some successes o/s. Currently on immunotherap...
2 Replies2 Likes
Healthcare Research Worldwide
NicF42 months ago
Healthcare Research Worldwide is conducting a study in order to develop a support system for patients and carers living with advanced, metas...
UK's N.I.C.E On SHARP End Of Public Roasting.
JeffAjaxSmith2 months ago
my N.I.C.E Reply following my FOI request into perscribing criteria of Alzheimer’s Dementia Patients Suffering From Asbestos Mesothelioma.
Interested in participating in research?
LorraineD2 months ago
Calling all men in the Roy Castle Lung Cancer Foundation Community
We have been approached to help in some research into shedding light on t...
Start a Community