Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

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Vocal chord paralysis following lobectomy

Wondering if anyone has experience of this and has recovered?I had a right upper lobectomy by VATS for an adenocarcinoma and large lymph nodes, one of which...

Wondering if anyone has experience of this and has recovered?I had a right upper...

Rezillo

•2 days ago

2 Replies

New Diagnosis

Hi Thank you for letting us join the forum. My husband was diagnosed with NSCLC adenocarcinomo yesterday. We found the secondary’s in his bones first then...

Hi Thank you for letting us join the forum. My husband was diagnosed with NSCL...

45_942

•3 days ago

11 Replies

Introduction - new member

Hello, First post, not sure what to write really but I figure "hello" is a good start. I'm 59M. You never have to ask a Yorkshireman where he's from... 'cos...

Hello, First post, not sure what to write really but I figure "hello" is a good...

Paul_S

•5 days ago

5 Replies

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Lung cancer & fibrosis

I’ve just had stage 1 cancer removed. Has anyone had this along with fibrosis?

I’ve just had stage 1 cancer removed. Has anyone had this along with fibrosis? ...

9favpeople

•7 days ago

1 Reply

VATS Segmentoctomy - Post op nerve pain and muscle spasms

I had right lung lower lobe segmentectomy three weeks ago and have been experiencing excruciating pain from muscle spasms. This usually happens if I've slept...

I had right lung lower lobe segmentectomy three weeks ago and have been experien...

Trace2025

•7 days ago

8 Replies

Hello

hi all I’m a new member here but I’ve had Stage 4 inoperable and incurable Lung Cancer for 26 months despite having never smoked. I’ve been relatively well...

hi all I’m a new member here but I’ve had Stage 4 inoperable and incurable Lung ...

PinkRottie

•8 days ago

3 Replies

Side effects from tagrisso

hi I was put on tagrisso after lobe removal for non small cell lung cancer I was on them for a few months nose bleeds started a few weeks in then raised...

hi I was put on tagrisso after lobe removal for non small cell lung cancer ...

candycane20

•14 days ago

13 Replies

Hangover

Hello :) Iwas told that it is three yrs since I had my big op to remove various tumours for my colon. I has now metastasized to lung and liver. I am, under the...

Hello :) Iwas told that it is three yrs since I had my big op to remove various ...

JonBechstein

•17 days ago

2 Replies

Tired all the time

Inoperable stage 4 nsclc, diagnosed March 2020. I had combined chemo and immuno at the beginning, I had to come off them at different times because each caused...

Inoperable stage 4 nsclc, diagnosed March 2020. I had combined chemo and immuno ...

Fighting4life

•20 days ago

4 Replies

Afatinib 40mg and swollen lips

Hi all, i have been taken off a target therapy drug called Osimertinib as my cancer has built up a resistance to it after 41/5 years. They are now giving me...

Hi all, i have been taken off a target therapy drug called Osimertinib as my can...

Prundence007

•21 days ago

8 Replies

PATIENT EXPERIENCE OF OSIMERTINIB (TAGRISSO) OR LIVING WITH EGFR POSITIVE NON -SMALL CELL LUNG CANCER

Osimertinib (Tagrisso) in combination with pemetrexed and platinum-based chemotherapy will shortly be assessed by the Scottish Medicines Consortium (SMC)...

Osimertinib (Tagrisso) in combination with pemetrexed and platinum-based chemoth...

RoyCastleHelpline

Partner•21 days ago

5 Replies

Cold weather payment

Hi, Not necessarily health related but wondered if anyone knows the answer. My mum has terminal cancer, in receipt of attendance allowance, graded high. In...

Hi, Not necessarily health related but wondered if anyone knows the answer. My ...

Paulo1976

•24 days ago

2 Replies

COUGH!

Two years since the big op for colorectal cancer, metastasized to liver and lungs. Nothing has developed, beyond miniscule growth, tho my lungs have the...

Two years since the big op for colorectal cancer, metastasized to liver and lung...

JonBechstein

•27 days ago

8 Replies

Good news

Hi all I just had a call saying lymph nodes were not cancerous - such relief, but I feel drained of all energy. Did anyone else react that way? Sandra

Hi all I just had a call saying lymph nodes were not cancerous - such relief, b...

SandraLlew

•1 month ago

8 Replies

I’m pre chemotherapy

I will be starting chemotherapy hopefully within the next couple of weeks. Just wondered from all those out there whilst I know the treatment sounds daunting,...

I will be starting chemotherapy hopefully within the next couple of weeks. Just ...

Sally789

•1 month ago

5 Replies

Pain on movement or always present?

Hi, all. Is your pain always there or does it usually occur with movement, in certain positions etc? Please let me know your experiences. Thanks in...

Hi, all. Is your pain always there or does it usually occur with movement, in...

Arblake80

•1 month ago

6 Replies

Tingling Ribs

I’ve recently started getting a tingling sensation in my ribs whilst sitting, towards the top of them, on the sides I’ve not been diagnosed for anything. ....

I’ve recently started getting a tingling sensation in my ribs whilst sitting, to...

Arblake80

•1 month ago

6 Replies

Results received

further to my previous post, I’ve had my results and the cancer has returned to my lung but, i was given the positive news that I’ve been referred to The...

further to my previous post, I’ve had my results and the cancer has returned to ...

Sally789

•1 month ago

9 Replies

ONLINE SUPPORT!

Our 2025 support sessions are starting back, and this is your sign to get involved. Online support groups can sometimes be off-putting, we like to...

Our 2025 support sessions are starting back, and this is your sign to get inv...

ConnectRoyCastle

Administrator•2 months ago

1 Reply

4th Line Chemotherapy

Happy New Year everyone- I’m supporting my brother - he was diagnosed at stage 4 - he’s entering his fourth year since diagnosis & has had various treatments-...

Happy New Year everyone- I’m supporting my brother - he was diagnosed at stage 4...

Brianderrick12

•2 months ago

6 Replies

PATIENT EXPERIENCE OF ALECTINIB HYDROCHLORIDE (ALECENSA)/ ALK POSITIVE NON SMALL CELL LUNG CANCER

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland The indication this medicine...

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medi...

RoyCastleHelpline

Partner•2 months ago

Be the first to reply

10 months now

Is it just me or do people genuinely feel like enough is enough? It's no longer a case of having strength to carry on rather than do i want to carry on...

Is it just me or do people genuinely feel like enough is enough? It's no longer ...

arthurpops

•2 months ago

9 Replies

How big must a tumour be before decision is taken to treat it.

Left lung lower lobe lesion has grown slowly over a few years and has been classified as a cancerous tumour because of how it presents on scansI have...

Left lung lower lobe lesion has grown slowly over a few years and has been class...

ferntreegully

•2 months ago

4 Replies

feeling down

awaiting diagnosis and fearing the worst! Imagination is going beserk, Any tips for lifting my mood whilst waiting. GP described 2mg Diazepam . I take one at...

awaiting diagnosis and fearing the worst! Imagination is going beserk, Any tips ...

Sally789

•2 months ago

9 Replies

Lung Cancer

The primary cancer has been eradicated, however 3 enlarged lymph nodes have now been found on the scan. This could be due to a cheat infection or it could be...

The primary cancer has been eradicated, however 3 enlarged lymph nodes have now ...

SandraLlew

•2 months ago

16 Replies

ASK THE NURSE CHRISTMAS AND NEW YEAR CLOSING TIMES

Our Ask the nurse helpline support 0800 358 7200 will be closed from: Tuesday 24th December midday and resume back on Monday 30th December...

Our Ask the nurse helpline support 0800 358 7200 will be closed from: Tues...

RoyCastleHelpline

Partner•2 months ago

Be the first to reply

After procedure

Hi, I am going into hospital on Monday to have a lung biopsy done with a tube down my throat and am being put to sleep. I was wondering whether other people...

Hi, I am going into hospital on Monday to have a lung biopsy done with a tube d...

YellowBirdLady

•2 months ago

10 Replies

NSCLC adenocarcinoma. Treatment and surgery. See my blog

High everyone.I named my tumour and gave it its own Facebook page on which I have created a blog. Diagnosed in April 2024 and had treatment followed by...

High everyone.I named my tumour and gave it its own Facebook page on which I hav...

Rezillo

•2 months ago

1 Reply

small cell lung cancer

my daughter has above - does anyone have experience of this? Thanks A worried Mum

my daughter has above - does anyone have experience of this? Thanks A worried ...

SuzyB24

•2 months ago

11 Replies

immunotherapy

just received the news cancer has returned. Next stage is a biopsy to see if I can have immunotherapy. Can anyone report success with this treatment ?

just received the news cancer has returned. Next stage is a biopsy to see if I c...

Sally789

•2 months ago

19 Replies

Write a post or ask a question

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

Vocal chord paralysis following lobectomy

New Diagnosis

Introduction - new member

Lung cancer & fibrosis

VATS Segmentoctomy - Post op nerve pain and muscle spasms

Hello

Side effects from tagrisso

Hangover

Tired all the time

Afatinib 40mg and swollen lips

PATIENT EXPERIENCE OF OSIMERTINIB (TAGRISSO) OR LIVING WITH EGFR POSITIVE NON -SMALL CELL LUNG CANCER

Cold weather payment

COUGH!

Good news

I’m pre chemotherapy

Pain on movement or always present?

Tingling Ribs

Results received

ONLINE SUPPORT!

4th Line Chemotherapy

PATIENT EXPERIENCE OF ALECTINIB HYDROCHLORIDE (ALECENSA)/ ALK POSITIVE NON SMALL CELL LUNG CANCER

10 months now

How big must a tumour be before decision is taken to treat it.

feeling down

Lung Cancer

ASK THE NURSE CHRISTMAS AND NEW YEAR CLOSING TIMES

After procedure

NSCLC adenocarcinoma. Treatment and surgery. See my blog

small cell lung cancer

immunotherapy

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