Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

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Neuropathic Pain & Poor A&E Experience

Hi, I was diagnosed with a stage 4 small cell lung cancer in February it had metastasized into 8 areas, I am 58 years old. It was a bit of a shock and it has...

Hi, I was diagnosed with a stage 4 small cell lung cancer in February it had met...

Skelly1018

•6 hours ago

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PATIENT EXPERIENCE OF NTRK FUSION POSITVE LUNG CANCER

We are looking for anyone who would be willing to share their experience of the NTRK fusion positive mutation (Neurotrophic tropomyosin receptor kinase ) who...

We are looking for anyone who would be willing to share their experience of the ...

RoyCastleHelpline

Partner•19 hours ago

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When will my dad leave hospital?

Hello, My father was admitted to hospital last Tuesday with high calcium. A CT scan was done and suspected lung cancer that has spread to the liver was...

Hello, My father was admitted to hospital last Tuesday with high calcium. A CT ...

Space_cowboy_

•2 days ago

1 Reply

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Father newly diagnosed

hello, my father has recently been diagnosed with lung cancer that has spread to the liver. He is still in hospital with high calcium and diarrhoea. He has...

hello, my father has recently been diagnosed with lung cancer that has spread to...

Space_cowboy_

•2 days ago

5 Replies

Shocked

At the moment still in shock. I’m an artist and I’m used to looking at other people and seeing them however I obviously haven’t seen myself. Outwardly I...

At the moment still in shock. I’m an artist and I’m used to looking at other pe...

Artstars

•6 days ago

8 Replies

PATIENT EXPERIENCE OF AMIVANTAMAB OR LIVING WITH EGFR EXON 20 MUTATION

Amivantamab (Rybrevant) in combination with carboplatin and pemetrexed, will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS...

Amivantamab (Rybrevant) in combination with carboplatin and pemetrexed, will sho...

RoyCastleHelpline

Partner•7 days ago

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Early stage non-small cell, study request

Share your experience of early-stage non-small cell lung cancer - Have you had surgery or radiotherapy for early-stage non-small cell lung cancer within the...

Share your experience of early-stage non-small cell lung cancer - Have you had ...

LorraineD

Partner•11 days ago

1 Reply

Cancer now in Liver

I’ve had a number of trials, mainly focusing on my right lung. However after a CT Scan then a Liver MRI which showed the cancer had spread to the liver. What...

I’ve had a number of trials, mainly focusing on my right lung. However after a C...

ParchWoody

•14 days ago

2 Replies

Looking for information & support north London?

Hello all A gentle reminder our next Information Day takes place on Wednesday 19th March, SandyLodge Golf club, HA6 2DJ. The event is being run with the...

Hello all A gentle reminder our next Information Day takes place on Wednesday...

LorraineD

Partner•17 days ago

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Neuroendocrine carcinoid tumour- NHS v Private query

hello all, I am new here, having had a lung Lobectomy for a typical carcinoid tumour a month ago. My diagnosis was a bit disjointed- I am lucky enough to have...

hello all, I am new here, having had a lung Lobectomy for a typical carcinoid tu...

Chris1802p

•18 days ago

2 Replies

HER 2 lung cancer

Hi Does anyone have the HER 2 mutation and if so other than the standard treatment for NSCLC have you been offered anything that targets the HER2 mutation?...

Hi Does anyone have the HER 2 mutation and if so other than the standard treatm...

anne1

•22 days ago

3 Replies

LUNG CANCER SURGERY - ONLINE SUPPORT GROUP

We have a new Lung Cancer Surgery support group starting next week, Tuesday 11th of March. The group will be held over Zoom and last for an hour, 7-8pm. If...

We have a new Lung Cancer Surgery support group starting next week, Tuesday 11th...

ConnectRoyCastle

Administrator•24 days ago

1 Reply

Travel Insurance

Can anyone recommend a company that will insure people with lung cancer . Tried a few companies but no luck - Thank you

Can anyone recommend a company that will insure people with lung cancer . Tried ...

Sally789

•29 days ago

16 Replies

Positivity through cancer

Hello,I was diagnosed with small cell lung cancer 13months ago .Luckily it is treatable.everything is going ok. But my mental health is really bad at the...

Hello,I was diagnosed with small cell lung cancer 13months ago .Luckily it is tr...

Toptoffee

•30 days ago

8 Replies

Vocal chord paralysis following lobectomy

Wondering if anyone has experience of this and has recovered?I had a right upper lobectomy by VATS for an adenocarcinoma and large lymph nodes, one of which...

Wondering if anyone has experience of this and has recovered?I had a right upper...

Rezillo

•1 month ago

5 Replies

Results Back

UPDATE We have the results back, hubby has T1cN1M1c adenocarcinoma, EGFR mutation and positive for EXON 19 so without treatment 12 months to live, , with the...

UPDATE We have the results back, hubby has T1cN1M1c adenocarcinoma, EGFR mutat...

45_942

•1 month ago

19 Replies

Introduction - new member

Hello, First post, not sure what to write really but I figure "hello" is a good start. I'm 59M. You never have to ask a Yorkshireman where he's from... 'cos...

Hello, First post, not sure what to write really but I figure "hello" is a good...

Paul_S

•1 month ago

5 Replies

Lung cancer & fibrosis

I’ve just had stage 1 cancer removed. Has anyone had this along with fibrosis?

I’ve just had stage 1 cancer removed. Has anyone had this along with fibrosis? ...

9favpeople

•1 month ago

1 Reply

VATS Segmentoctomy - Post op nerve pain and muscle spasms

I had right lung lower lobe segmentectomy three weeks ago and have been experiencing excruciating pain from muscle spasms. This usually happens if I've slept...

I had right lung lower lobe segmentectomy three weeks ago and have been experien...

Trace2025

•1 month ago

8 Replies

Hello

hi all I’m a new member here but I’ve had Stage 4 inoperable and incurable Lung Cancer for 26 months despite having never smoked. I’ve been relatively well...

hi all I’m a new member here but I’ve had Stage 4 inoperable and incurable Lung ...

PinkRottie

•1 month ago

7 Replies

Side effects from tagrisso

hi I was put on tagrisso after lobe removal for non small cell lung cancer I was on them for a few months nose bleeds started a few weeks in then raised...

hi I was put on tagrisso after lobe removal for non small cell lung cancer ...

candycane20

•2 months ago

13 Replies

Hangover

Hello :) Iwas told that it is three yrs since I had my big op to remove various tumours for my colon. I has now metastasized to lung and liver. I am, under the...

Hello :) Iwas told that it is three yrs since I had my big op to remove various ...

JonBechstein

•2 months ago

2 Replies

Tired all the time

Inoperable stage 4 nsclc, diagnosed March 2020. I had combined chemo and immuno at the beginning, I had to come off them at different times because each caused...

Inoperable stage 4 nsclc, diagnosed March 2020. I had combined chemo and immuno ...

Fighting4life

•2 months ago

4 Replies

Afatinib 40mg and swollen lips

Hi all, i have been taken off a target therapy drug called Osimertinib as my cancer has built up a resistance to it after 41/5 years. They are now giving me...

Hi all, i have been taken off a target therapy drug called Osimertinib as my can...

Prundence007

•2 months ago

8 Replies

PATIENT EXPERIENCE OF OSIMERTINIB (TAGRISSO) OR LIVING WITH EGFR POSITIVE NON -SMALL CELL LUNG CANCER

Osimertinib (Tagrisso) in combination with pemetrexed and platinum-based chemotherapy will shortly be assessed by the Scottish Medicines Consortium (SMC)...

Osimertinib (Tagrisso) in combination with pemetrexed and platinum-based chemoth...

RoyCastleHelpline

Partner•2 months ago

5 Replies

Cold weather payment

Hi, Not necessarily health related but wondered if anyone knows the answer. My mum has terminal cancer, in receipt of attendance allowance, graded high. In...

Hi, Not necessarily health related but wondered if anyone knows the answer. My ...

Paulo1976

•2 months ago

2 Replies

COUGH!

Two years since the big op for colorectal cancer, metastasized to liver and lungs. Nothing has developed, beyond miniscule growth, tho my lungs have the...

Two years since the big op for colorectal cancer, metastasized to liver and lung...

JonBechstein

•2 months ago

8 Replies

Good news

Hi all I just had a call saying lymph nodes were not cancerous - such relief, but I feel drained of all energy. Did anyone else react that way? Sandra

Hi all I just had a call saying lymph nodes were not cancerous - such relief, b...

SandraLlew

•2 months ago

8 Replies

I’m pre chemotherapy

I will be starting chemotherapy hopefully within the next couple of weeks. Just wondered from all those out there whilst I know the treatment sounds daunting,...

I will be starting chemotherapy hopefully within the next couple of weeks. Just ...

Sally789

•2 months ago

5 Replies

Pain on movement or always present?

Hi, all. Is your pain always there or does it usually occur with movement, in certain positions etc? Please let me know your experiences. Thanks in...

Hi, all. Is your pain always there or does it usually occur with movement, in...

Arblake80

•2 months ago

6 Replies

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Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

Neuropathic Pain & Poor A&E Experience

PATIENT EXPERIENCE OF NTRK FUSION POSITVE LUNG CANCER

When will my dad leave hospital?

Father newly diagnosed

Shocked

PATIENT EXPERIENCE OF AMIVANTAMAB OR LIVING WITH EGFR EXON 20 MUTATION

Early stage non-small cell, study request

Cancer now in Liver

Looking for information & support north London?

Neuroendocrine carcinoid tumour- NHS v Private query

HER 2 lung cancer

LUNG CANCER SURGERY - ONLINE SUPPORT GROUP

Travel Insurance

Positivity through cancer

Vocal chord paralysis following lobectomy

Results Back

Introduction - new member

Lung cancer & fibrosis

VATS Segmentoctomy - Post op nerve pain and muscle spasms

Hello

Side effects from tagrisso

Hangover

Tired all the time

Afatinib 40mg and swollen lips

PATIENT EXPERIENCE OF OSIMERTINIB (TAGRISSO) OR LIVING WITH EGFR POSITIVE NON -SMALL CELL LUNG CANCER

Cold weather payment

COUGH!

Good news

I’m pre chemotherapy

Pain on movement or always present?

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Do you have experience of small cell lung cancer? Would you accept a brief spell in hospital to monitor side effects for a new treatment?

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