Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

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Pain on movement or always present?

Hi, all. Is your pain always there or does it usually occur with movement, in certain positions etc? Please let me know your experiences. Thanks in...

Hi, all. Is your pain always there or does it usually occur with movement, in...

Arblake80

•18 hours ago

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Tingling Ribs

I’ve recently started getting a tingling sensation in my ribs whilst sitting, towards the top of them, on the sides I’ve not been diagnosed for anything. ....

I’ve recently started getting a tingling sensation in my ribs whilst sitting, to...

Arblake80

•2 days ago

6 Replies

Results received

further to my previous post, I’ve had my results and the cancer has returned to my lung but, i was given the positive news that I’ve been referred to The...

further to my previous post, I’ve had my results and the cancer has returned to ...

Sally789

•10 days ago

9 Replies

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ONLINE SUPPORT!

Our 2025 support sessions are starting back, and this is your sign to get involved. Online support groups can sometimes be off-putting, we like to...

Our 2025 support sessions are starting back, and this is your sign to get inv...

ConnectRoyCastle

Administrator•11 days ago

1 Reply

4th Line Chemotherapy

Happy New Year everyone- I’m supporting my brother - he was diagnosed at stage 4 - he’s entering his fourth year since diagnosis & has had various treatments-...

Happy New Year everyone- I’m supporting my brother - he was diagnosed at stage 4...

Brianderrick12

•12 days ago

6 Replies

PATIENT EXPERIENCE OF ALECTINIB HYDROCHLORIDE (ALECENSA)/ ALK POSITIVE NON SMALL CELL LUNG CANCER

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland The indication this medicine...

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medi...

RoyCastleHelpline

Partner•12 days ago

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10 months now

Is it just me or do people genuinely feel like enough is enough? It's no longer a case of having strength to carry on rather than do i want to carry on...

Is it just me or do people genuinely feel like enough is enough? It's no longer ...

arthurpops

•13 days ago

9 Replies

How big must a tumour be before decision is taken to treat it.

Left lung lower lobe lesion has grown slowly over a few years and has been classified as a cancerous tumour because of how it presents on scansI have...

Left lung lower lobe lesion has grown slowly over a few years and has been class...

ferntreegully

•13 days ago

4 Replies

feeling down

awaiting diagnosis and fearing the worst! Imagination is going beserk, Any tips for lifting my mood whilst waiting. GP described 2mg Diazepam . I take one at...

awaiting diagnosis and fearing the worst! Imagination is going beserk, Any tips ...

Sally789

•22 days ago

9 Replies

Lung Cancer

The primary cancer has been eradicated, however 3 enlarged lymph nodes have now been found on the scan. This could be due to a cheat infection or it could be...

The primary cancer has been eradicated, however 3 enlarged lymph nodes have now ...

SandraLlew

•22 days ago

14 Replies

ASK THE NURSE CHRISTMAS AND NEW YEAR CLOSING TIMES

Our Ask the nurse helpline support 0800 358 7200 will be closed from: Tuesday 24th December midday and resume back on Monday 30th December...

Our Ask the nurse helpline support 0800 358 7200 will be closed from: Tues...

RoyCastleHelpline

Partner•26 days ago

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After procedure

Hi, I am going into hospital on Monday to have a lung biopsy done with a tube down my throat and am being put to sleep. I was wondering whether other people...

Hi, I am going into hospital on Monday to have a lung biopsy done with a tube d...

YellowBirdLady

•29 days ago

10 Replies

NSCLC adenocarcinoma. Treatment and surgery. See my blog

High everyone.I named my tumour and gave it its own Facebook page on which I have created a blog. Diagnosed in April 2024 and had treatment followed by...

High everyone.I named my tumour and gave it its own Facebook page on which I hav...

Rezillo

•29 days ago

1 Reply

small cell lung cancer

my daughter has above - does anyone have experience of this? Thanks A worried Mum

my daughter has above - does anyone have experience of this? Thanks A worried ...

SuzyB24

•30 days ago

11 Replies

immunotherapy

just received the news cancer has returned. Next stage is a biopsy to see if I can have immunotherapy. Can anyone report success with this treatment ?

just received the news cancer has returned. Next stage is a biopsy to see if I c...

Sally789

•1 month ago

19 Replies

PATIENT EXPERIENCE OF ALECTINIB HYDROCHLORIDE (ALECENSA)/ ALK POSITIVE NON SMALL CELL LUNG CANCER

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland The indication this medicine...

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medi...

RoyCastleHelpline

Partner•1 month ago

2 Replies

NSCLC with liver mets

morning First 3 month scan shows Lung tumour shrinking but liver met has increased in size on current treatment. Has anyone else had this where subsequent...

morning First 3 month scan shows Lung tumour shrinking but liver met has incre...

anne1

•1 month ago

1 Reply

Effects of dmard medication after chemo

I have a seronegative version of rheumatoid arthritis . Came off all my medication when I was diagnosed with stage 3 lung cancer in feb 2023 . Had surgery...

I have a seronegative version of rheumatoid arthritis . Came off all my medicat...

MorganCat

•1 month ago

1 Reply

I cannot have immunotherapy

I have stage 3B NSCLC T3/N2/M0 It has spread to 2 lymph nodes, they say inoperable as it is close to heart and other structures. I am due to receive combined...

I have stage 3B NSCLC T3/N2/M0 It has spread to 2 lymph nodes, they say inopera...

Schnozzle

•2 months ago

15 Replies

Struggle

I've just been told my incurable lung cancer is progressing and in truth, I'm struggling to keep going at the moment. Constantly having negative thoughts...

I've just been told my incurable lung cancer is progressing and in truth, I'm st...

arthurpops

•2 months ago

13 Replies

can you help a researcher about remote/decentralised studies and how it feels to be part of that?

I was recently interviewed by Eoin Gamble, a PhD student researcher in Ireland who wants to contact people who have taken part in remote/decentralised studies...

I was recently interviewed by Eoin Gamble, a PhD student researcher in Ireland w...

JanetteR57

•2 months ago

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Brain Mets

Hi all mom was diagnosed with NSCLC cancer stage 3B in September 2020. She had radiotherapy chemotherapy and immunotherapy and seem to be doing well. Cancer...

Hi all mom was diagnosed with NSCLC cancer stage 3B in September 2020. She had...

Mommyworld

•2 months ago

4 Replies

Gemcarbo

Hi, I'm about to start gemcarbo chemotherapy next week, has anyone else had this and how bad were the side effects? Thanks

Hi, I'm about to start gemcarbo chemotherapy next week, has anyone else had this...

arthurpops

•2 months ago

3 Replies

Body Breathing Session

Our next holistic Body Breathing session will take place on Thursday 14th of November. The session is held over Zoom and lasts for...

Our next holistic Body Breathing session will take place on Thursday 14th of Nov...

ConnectRoyCastle

Administrator•2 months ago

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Docetaxel starting soon for Mum - advice?

Hi There, My mum (stage 4 NSCLC with mets to spine and ribcage, Diagnosed Jan 2024, started treatment March 2024) stopped immunotherapy as it's not...

Hi There, My mum (stage 4 NSCLC with mets to spine and ribcage, Diagnosed Ja...

DaughterofDiane

•2 months ago

5 Replies

Post Radiotherapy

Hi all, Some of you may know my story. My mum completed her radiotherapy on August 15th. Her hair is growing back nicely and today, she was scheduled to have...

Hi all, Some of you may know my story. My mum completed her radiotherapy on Au...

Paulo1976

•3 months ago

4 Replies

Lung Cancer 'Managing through Treatment' Support Sessions.

We are looking to start a new 'Treatment Management' support session. This group will be open to anyone undergoing (or about to undergo) treatments for lung...

We are looking to start a new 'Treatment Management' support session. This group...

ConnectRoyCastle

Administrator•3 months ago

1 Reply

Progression on osimertinib

Hi My mother is diagnosed with Stage 4 Adenocarcinoma Egfr 19exon deletion ,she was on Osimertinib 80mg with good response but recent scans show progression...

Hi My mother is diagnosed with Stage 4 Adenocarcinoma Egfr 19exon deletion ,she ...

mylove12

•3 months ago

3 Replies

Palliative Care

Hi - me again - Just so confused and looking for something positive to cling to. We’ve had a call from the hospital that my brother is being referred for...

Hi - me again - Just so confused and looking for something positive to cling to....

Brianderrick12

•3 months ago

13 Replies

3 years of treatment stage 4

Hi Everyone- hope you’ve all had a good weekend. Just trying to find out what leads up to treatment being stopped ? My brother had an appointment on Friday and...

Hi Everyone- hope you’ve all had a good weekend. Just trying to find out what le...

Brianderrick12

•3 months ago

1 Reply

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Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

Pain on movement or always present?

Tingling Ribs

Results received

ONLINE SUPPORT!

4th Line Chemotherapy

PATIENT EXPERIENCE OF ALECTINIB HYDROCHLORIDE (ALECENSA)/ ALK POSITIVE NON SMALL CELL LUNG CANCER

10 months now

How big must a tumour be before decision is taken to treat it.

feeling down

Lung Cancer

ASK THE NURSE CHRISTMAS AND NEW YEAR CLOSING TIMES

After procedure

NSCLC adenocarcinoma. Treatment and surgery. See my blog

small cell lung cancer

immunotherapy

PATIENT EXPERIENCE OF ALECTINIB HYDROCHLORIDE (ALECENSA)/ ALK POSITIVE NON SMALL CELL LUNG CANCER

NSCLC with liver mets

Effects of dmard medication after chemo

I cannot have immunotherapy

Struggle

can you help a researcher about remote/decentralised studies and how it feels to be part of that?

Brain Mets

Gemcarbo

Body Breathing Session

Docetaxel starting soon for Mum - advice?

Post Radiotherapy

Lung Cancer 'Managing through Treatment' Support Sessions.

Progression on osimertinib

Palliative Care

3 years of treatment stage 4

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