Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,448 members • 3,294 posts

Sort posts by:

Second opinion

Does anyone know the best way to get a second opinion? I have lost all confidence in the Hospital I am under. There is a catalogue failures and...

Does anyone know the best way to get a second opinion? I have lost all confidenc...

TheScriptgirl79

•12 hours ago

NEW SUPPORT GROUPS!!

ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY GENETIC MUTATION LUNG CANCER - We are looking for people...

ARE YOU INTERESTED IN GETTING SOME SUPPORT? - NEW GROUPS STARTING IN JULY GENET...

ConnectRoyCastle

Administrator•15 hours ago

Be the first to reply

Treatment plan

Hi, could anyone tell me if this amount of chemo sounds right as all posts I read are more, I have stage 2b nsclc adenocarcinoma, plan is 6 weeks radiaton with...

Hi, could anyone tell me if this amount of chemo sounds right as all posts I rea...

•1 day ago

Want to take advantage of all our features? Just log in!

or

Spiculated nodule found on right lung on post chemotherapy scan after lobectomy on left lung in December 2022.

Hello everyone, Has anyone undergone a lobectomy and four cycles of chemo to find that there is another suspicious nodule on the opposite lung. If so,what...

Hello everyone, Has anyone undergone a lobectomy and four cycles of chemo to fi...

•3 days ago

Any tips pls ..? Dad's really tired of the immuno he's on and the chest therapy he does (to release mucous build up)

Dad feels very tired at the mo.He's in-between immuno sessions & doing daily chest therapy (himself) to release the mucous build up. When he doesn't do it, it...

Dad feels very tired at the mo.He's in-between immuno sessions & doing daily che...

•4 days ago

Spirometry test

Sorry for what is a bit of a stupid, long and rambling post, I had lung function test back in April, stupidly didn't know you were not supposed to smoke before...

Sorry for what is a bit of a stupid, long and rambling post, I had lung function...

•6 days ago

Thoughts on bilobectomy

Hi, I'm new to this and wondering if anyone has had anything similar. I was diagnosed with t2b n1 m0 adenocarcinoma lung cancer, the affected lymph node looks...

Hi, I'm new to this and wondering if anyone has had anything similar. I was diag...

•9 days ago

CBD; worth a try for pain relief..?

Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's...

Hello all, hope you're all reasonably well! As have posted here before, Dad is ...

•11 days ago

ASK THE NURSE CLOSED BANK HOLIDAY MONDAY 29TH MAY 2023

Our Ask the nurse helpline support 0800 358 7200 will be closed on MONDAY 29th MAY 2023 and will return on Tuesday 30th May 2023. You can email ask the...

Our Ask the nurse helpline support 0800 358 7200 will be closed on MONDAY 29th M...

RoyCastleHelpline

Partner•15 days ago

Be the first to reply

PET SUV 5 years s/p resection

Has anyone had a PET scan (5 years s/p RL lobectomy, R UL wedge for stage 1 adenocarcinoma) light up near suture site upper lobe (SUV 2.0) and it NOT be a...

Has anyone had a PET scan (5 years s/p RL lobectomy, R UL wedge for stage 1 aden...

•18 days ago

Severe reaction to immunotherapy

Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well...

Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab an...

•20 days ago

COVID booster

Has anybody had their booster this spring for COVID I don’t know what brand it is and also I’m not sure if I can have this particular one while I’m having...

Has anybody had their booster this spring for COVID I don’t know what brand it i...

•23 days ago

Lung Cancer Research

Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a...

Are you interested in being part of research but there is no clinical trial open...

YourHealthCompanion

•24 days ago

Be the first to reply

blip in treatment continued

not sure what happened? Continuing We are both now in a place of extreme anxiety and trying to cling onto vague hope If it fails then it will be a more...

not sure what happened? Continuing We are both now in a place of extreme anxi...

•24 days ago

Blip in Immunitherapy ?

wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months...

wonder if anyone has experience of a blip in immunotherapy treatment? My husba...

•24 days ago

results - post op lobectomy

hi 👋🏽 What does mean please? appear polytypic. AE1/AE3 is negative. The lymph node shows prominent sinus histiocytosis. Features are consistent with a...

hi 👋🏽 What does mean please? appear polytypic. AE1/AE3 is negative. The lym...

•25 days ago

Genetics - Children of Lung Cancer Patients

Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two...

Hi all - I am a young mom who just underwent a lung wedge resection. I will be m...

•25 days ago

LUNG CANCER SUPPORT GROUPS

We are looking at starting up a new round of groups and we would love feedback on what is of interest.. The groups run if there are enough people...

We are looking at starting up a new round of groups and we would love feedback o...

ConnectRoyCastle

Administrator•26 days ago

Post segmentectomy an update.

Hi everyone, I was lucky enough to stumble upon this forum a few days before my surgery on may 1st. I received a lot of support for which i am very...

Hi everyone, I was lucky enough to stumble upon this forum a few days before my...

•26 days ago

Diagnosed 5 months post Operation with Fluid on the lung. Is this normal & will it clear up? Should I be concerned?

Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up...

Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a l...

•26 days ago

scans

Does anyone know if an mri is carried out after a metastatic adenocarcinoma diagnosis to check the spread of the disease?

Does anyone know if an mri is carried out after a metastatic adenocarcinoma diag...

•27 days ago

post lobectomy indigestion

my VATS lobectomy went well and I’ve been recovering ok but past two days had dreadful indigestion. Was already on lansoprazole and my husband got me rennies...

my VATS lobectomy went well and I’ve been recovering ok but past two days had dr...

•28 days ago

"Hazy" CT scan

Hi,Has anyone had this? My oncologist said there was no sign of anything nasty on my recent quarterly scan. But there was this haze. She checked I felt ok (I...

Hi,Has anyone had this? My oncologist said there was no sign of anything nasty o...

•29 days ago

Lung Biopsy

I have to have a lung biopsy & am scared to death. My father died of lung cancer & I fear I am filling in his footsteps. Anxiety is killing me right now over...

I have to have a lung biopsy & am scared to death. My father died of lung cancer...

•1 month ago

help to prepare

Hi all, unfortunately my dad has been given the news that there isn't long left, we are devastated and I'm finding it hard to think straight. I was wondering...

Hi all, unfortunately my dad has been given the news that there isn't long left,...

•1 month ago

ASK THE NURSE CLOSED BANK HOLIDAY MONDAY 8TH MAY 2023

Our Ask the nurse helpline support 0800 358 7200 will be closed on MONDAY 8th MAY 2023 and will return on Tuesday 9th May 2023. You can email ask the...

Our Ask the nurse helpline support 0800 358 7200 will be closed on MONDAY 8th MA...

RoyCastleHelpline

Partner•1 month ago

Be the first to reply

Post lobectomy hoarse voice

hi my husband is two weeks post surgery (upper right lobectomy) and has intermittent hoarse voice. I am presuming this is nothing to be concerned about but...

hi my husband is two weeks post surgery (upper right lobectomy) and has interm...

•1 month ago

Your Health Companion

Your Health Companion allows you to keep a record in one place, across the time of your treatment, health and how your cancer treatment is affecting you day to...

Your Health Companion allows you to keep a record in one place, across the time ...

YourHealthCompanion

•1 month ago

Be the first to reply

Appetite Help Please

Hi I am currently undergoing chemotherapy for adenocarcinoma (surgery not an option) final round is 8th May then onto immunotherapy. I have lost a lot of...

Hi I am currently undergoing chemotherapy for adenocarcinoma (surgery not an opt...

•1 month ago

ASK THE NURSE CLOSED BANK HOLIDAY MONDAY 1ST MAY 2023

Our Ask the nurse helpline support 0800 358 7200 will be closed on MONDAY 1ST MAY 2023 and will return on Tuesday 2nd May 2023. You can email ask the nurse...

Our Ask the nurse helpline support 0800 358 7200 will be closed on MONDAY 1ST MA...

RoyCastleHelpline

Partner•1 month ago

Be the first to reply

Write a post or ask a question