Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,786 members • 3,468 posts

All posts for July 2023

SUPPORT GROUPS!

We are starting our next round of online support groups this week! If any of the groups sound like they would suit you then please get in touch. All the groups...

We are starting our next round of online support groups this week! If any of the...

ConnectRoyCastle

Administrator•9 months ago

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Post segmentectomy pathology report

Hi everyone, Hopefully i am at the right place to share my concern regarding my pathology report following surgery. The report mention a negative margin, lymph...

Hi everyone, Hopefully i am at the right place to share my concern regarding my ...

•9 months ago

Problematic mucous & dry cough ..

Hello, Dad's cough is now pretty mucousy, and dry at the same time. Both are frustrating/aggravating for him, in different ways. For the mucous part - we try...

Hello, Dad's cough is now pretty mucousy, and dry at the same time. Both are fru...

•9 months ago

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Final diagnosis uncertain - either cured or stage 4

Hello all, I hope you are as well as you can be. I am wondering if anyone has ever been in my situation. This is quite long - sorry. I have metastatic...

Hello all, I hope you are as well as you can be. I am wondering if anyone has ...

•9 months ago

Anyone from India here with non small cell lung cancer ?

Anyone from India here with non small cell lung cancer ?

Anyone from India here with non small cell lung cancer ?

•9 months ago

Tagrisso vs Erlotinib

Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has recommended Erlotinib ( NHS treatment). We understand that his diagnosis T4 N2 M0...

Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has reco...

•9 months ago

Clinical trials as a treatment option

When my mother was diagnosed with stage 3 cancer, I looked for clinical trials she could enter. I have worked in drug development for 12 years and yet it took...

When my mother was diagnosed with stage 3 cancer, I looked for clinical trials s...

•9 months ago

Pain in chest - any advice pls?

Hello, I've written about my Dad, so just the short version this time. He's got stage 4 lung cancer, and 15 months in, it's tough. He's definitely feeling...

Hello, I've written about my Dad, so just the short version this time. He's go...

•10 months ago

Lorlatinib

hello I have been living with ALK positive lung cancer for 6 and half years. I had surgery at the beginning to remove a 7cm tumour from the bottom of my...

hello I have been living with ALK positive lung cancer for 6 and half years. I...

•10 months ago

Another nodule immediately after chemotherapy.

Hello everyone, I had an upper left lobectomy in November 2022. In January 2023 I had a CT scan pre chemo which showed a nodule on the right lung of 6mm. The...

Hello everyone, I had an upper left lobectomy in November 2022. In January 2023...

•10 months ago

Lobectomy query

Hello, My Dad had a VATs Lobectomy earlier this week. He is doing well physically and is home. However, he is experiencing strange feelings in his chest...

Hello, My Dad had a VATs Lobectomy earlier this week. He is doing well physica...

•10 months ago

Post cancer

It's a little over 12 months since I completed 20 fractions of radical radiotherapy and I'm now being regularly monitored. My last scan shows progressive...

It's a little over 12 months since I completed 20 fractions of radical radiother...

•10 months ago

PATIENT EXPERIENCE OF RET FUSION POSITIVE TREATMENT

Selpercatinib (Retsevmo®) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, as a single treatment, taken orally,...

Selpercatinib (Retsevmo®) will shortly be assessed by the Scottish Medicines C...

RoyCastleHelpline

Partner•10 months ago

NEW SUPPORT GROUP DATES!!!

Our next round of support group dates are here! The Roy Castle Lung Cancer Connect support sessions are all held over Zoom and last for one hour. This...

Our next round of support group dates are here! The Roy Castle Lung Cancer Conne...

ConnectRoyCastle

Administrator•10 months ago

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Lung cancer and Keytruda

I was diagnosed with adenicarcinoma Stage 4, T1B, N3, M1B in January 2023 and offered Pembrolizumab (Keytruda) having a PD-LI expression of 50%. I have had 4...

I was diagnosed with adenicarcinoma Stage 4, T1B, N3, M1B in January 2023 and of...

•10 months ago

More NHS incompetency

I ordered a repeat prescription on 28th June, both with the GP and my regular pharmacist. As of today, I have still not received it and other prescription were...

I ordered a repeat prescription on 28th June, both with the GP and my regular ph...

•10 months ago

Dry mouth

Hi, re- Stage3 Please, does anyone have any tips for very dry mouth when waking during early hours, literally lips sticking to teeth! Not happening during...

Hi, re- Stage3 Please, does anyone have any tips for very dry mouth when wak...

•10 months ago

Writing platform specifically designed for terminally ill. Would you use it ?

Hey there ! While going through all posts from people suffering from cancer thought to do something for those who are terminally ill and are going through...

Hey there ! While going through all posts from people suffering from cancer tho...

•10 months ago