Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

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LUNG CANCER SURGERY SUPPORT

OUR SURGERY SUPPORT GROUP STARTS TONIGHT AT 7PM If you have undergone or are about to undergo surgery for lung cancer then...

OUR SURGERY SUPPORT GROUP STARTS TONIGHT AT 7PM If you have undergone or are ...

ConnectRoyCastle

Administrator•5 months ago

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Another 'alternative' therapy: phenothiazines (Phenergan)

2 years ago, when I was diagnosed with Stage 4 adenocarcinoma, a friend pointed me towards...

2 years ago, when I was diagnosed with Stage 4 adenocarcinoma, a friend pointed ...

pt45

•2 years ago

5 Replies

radiotherapy

could anyone set my mind at rest as regards the side effects of radiotherapy as i am due to start a course shortly. Thanks

could anyone set my mind at rest as regards the side effects of radiotherapy as ...

arthurpops

•2 years ago

6 Replies

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PET scan results

I have been told the multi-discipline team are reviewing the results this week and that I will receive a phone call to discuss next stage. I had expected to...

I have been told the multi-discipline team are reviewing the results this week a...

Antrobus2021

•2 years ago

25 Replies

Stage 4 lung cancer and secondary bone cancer

Hi, I am new here. Three weeks ago I fractured my femur for no apparent reason, no fall etc. During subsequent scans and xray a mass was found in my lung plus...

Hi, I am new here. Three weeks ago I fractured my femur for no apparent reason,...

Antrobus2021

•3 years ago

31 Replies

Do you want to join our new virtual support sessions?

Hello all In the last year we have expanded our virtual support services. As part of our Lung Cancer Connect services we are providing sessions for groups of...

Hello all In the last year we have expanded our virtual support services. As par...

LorraineD

Partner•3 years ago

3 Replies

Can I help ?

Been through surgery, 4 Chemotherapy treatments and 10 Radiotherapy to my brain. If I can help anyone with my experiences I am only too willing to help.

Been through surgery, 4 Chemotherapy treatments and 10 Radiotherapy to my brai...

Lambrettaman

•3 years ago

3 Replies

Post op back home after segmentectomy

The strong painkillers post surgery sent me loopy. I imagined I’d got Covid, would be isolated & may never see family again. I’m now down to just 4 hourly...

The strong painkillers post surgery sent me loopy. I imagined I’d got Covid, wou...

MsPJ

•3 years ago

3 Replies

Anxious

I’m due to have my PET scan next Tuesday and I’m starting to get anxious about what it will reveal? I know there is a 2cm mass, just terrified more will show...

I’m due to have my PET scan next Tuesday and I’m starting to get anxious about w...

Kbucie

•4 years ago

7 Replies

Preparing for adjuvant chemo stage 3a lung cancer

Pet CT scan showed avid 4.5cm tumour in upper right lung and 2 lymph nodes hot. I've had mediastinoscopy to diagnose non small cell lung cancer in a...

Pet CT scan showed avid 4.5cm tumour in upper right lung and 2 lymph nodes hot. ...

Qwirkle

•4 years ago

3 Replies

Chemo induced kidney problems

Hi, I have had 4 rounds of pemetrexed and Carboplatin together with Keytruda immuno therapy. I was doing really well - and feel really well, but recent blood...

Hi, I have had 4 rounds of pemetrexed and Carboplatin together with Keytruda imm...

magstherunner

•4 years ago

4 Replies

Lung cancer chemo resistant

Thanks for letting me join. I had 4 rounds of carboplatin with keytruda and 1 infusion of keytruda alone. Had a scan and my cancer is resistant to the chemo....

Thanks for letting me join. I had 4 rounds of carboplatin with keytruda and 1 in...

Bakert

•4 years ago

3 Replies

One step foward ,two steps back ....never ending

Why can’t something just go right for me ..it’s one step forward and two back ,every time I get bit of good news ,it never fails ,I end up poorly again ..was...

Why can’t something just go right for me ..it’s one step forward and two back ,e...

Sannyboop

•4 years ago

3 Replies

Social distancing whilst having treatment

Stage 4 lung cancer. Hello I am having chemotherapy and immunatherapy for my cancer, cycle 1 was given at the chemo unit in the main hospital, however cycle 2...

Stage 4 lung cancer. Hello I am having chemotherapy and immunatherapy for my ca...

Bailey19260

•4 years ago

2 Replies

Trying to keep busy

I personally have problems getting motivated. I am watching too much rubbish on the tele, eating too many crisps and ice cream. I am about to run out of...

I personally have problems getting motivated. I am watching too much rubbish on ...

nikkidolls

•4 years ago

3 Replies

trying to find alternative to steroids

hi lm trying to come of steroids and on to hydrocortisone , my condition is autoimmunaity, secondary to tissue connective disease , has anyone had experience...

hi lm trying to come of steroids and on to hydrocortisone , my condition is auto...

rodders1941

•4 years ago

2 Replies

Don't know what to do!

My wife finished Radiotherapy for S.C.L.C 2 weeks ago. She had 8 shots to the head and 20 to her lung. Over the last 2 weeks she has stopped eating due to pain...

My wife finished Radiotherapy for S.C.L.C 2 weeks ago. She had 8 shots to the he...

Babydolltina

•4 years ago

7 Replies

Missed diagnosis for lung cancer.

I have been looking through previous posts for lung cancer and the treatment and diagnosis for lung cancer and a couple of people wrote about the appalling...

I have been looking through previous posts for lung cancer and the treatment and...

Danni54

•5 years ago

6 Replies

Do you want to share your experience of diagnosis and treatment with NICE?

Hello all We have been approached by NICE, a body of NHS England looking for some feedback on those who have been through treatment in the last 3 years. Below...

Hello all We have been approached by NICE, a body of NHS England looking for som...

LorraineD

Partner•5 years ago

2 Replies

C T Scan

Well following a diagnosis of NSC lung cancer in April, a left lung pneumonectomy in July and course of chemotherapy I am going to hospital today for my first...

Well following a diagnosis of NSC lung cancer in April, a left lung pneumonectom...

Colin57

•5 years ago

18 Replies

Compassionate/ named patient access

Does anyone have any experience regarding gaining access to Lorlatinib or Entrectinib on compassionate / named patient basis? Unable to fulfil criteria for...

Does anyone have any experience regarding gaining access to Lorlatinib or Entrec...

PBD13

•6 years ago

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Lung Removed

Hi I’m Colin, And I was diagnosed with lung cancer on the 25/04/18. Following tests I had my entire left lung removed on 04/07/18 . As you can see it’s early...

Hi I’m Colin, And I was diagnosed with lung cancer on the 25/04/18. Following t...

Colin57

•6 years ago

6 Replies

Mesothelioma

I am 66 and after a number of tests which included a PET scan, I have recently been diagnosed with Mesothelioma. My Consultant believes the best way forward is...

I am 66 and after a number of tests which included a PET scan, I have recently b...

Grahsking

•6 years ago

2 Replies

Targeted therapy

Hello All I am hoping someone can help me. I am having a biopsy for recurrent lung cancer next week but as I had the EGFR mutation in my original tumour, the...

Hello All I am hoping someone can help me. I am having a biopsy for recurrent l...

LadySG

•6 years ago

14 Replies

Any help on trials please

Hi diagnosed stage 4 nsclc in February 17..have received cisplatin pematrexted then pembrolizumab now on Docetaxel and Nintedanib...if scan shows progresion...

Hi diagnosed stage 4 nsclc in February 17..have received cisplatin pematrexted t...

Wiseowl1

•6 years ago

2 Replies

Interesting Article about drug developments for ALK and EGFR

https://www.fool.com/investing/2018/04/04/pfizer-has-big-plans-in-treating-lung-cancer.aspx

https://www.fool.com/investing/2018/04/04/pfizer-has-big-plans-in-treating-lung...

Bow-19

•6 years ago

5 Replies

After effects of Carboplatin

My mom was diagnosed with Small Cell Lung Cancer back in January this year. She has had 6 sessions of chemotherapy in total (Carboplatin). She had chemo...

My mom was diagnosed with Small Cell Lung Cancer back in January this year. She...

karenmarriott99

•6 years ago

9 Replies

Latest part of the lung cancer journey .

Last week got admitted to hospital with another seizure caused ? By brachicardia pulse dropped to 35bpm due to ? Cardiac tumour .Anyway good result I have been...

Last week got admitted to hospital with another seizure caused ? By brachicardia...

Hidden

•7 years ago

3 Replies

Delayed reaction to brain Stereotactic treatment

Hi has anyone else had a delayed response to Stereotactic brain met treatment,I was treated in May and slow but doable recovery ,however this weak my left leg...

Hi has anyone else had a delayed response to Stereotactic brain met treatment,I ...

Hidden

•7 years ago

1 Reply

Palliative chemo - pemotrexid and cisplatin

Hi, I've been reading posts on here for a week or two, since my mum was diagnosed with terminal non-small cell adenocarcinoma (both lungs and 2 spinal mets T5...

Hi, I've been reading posts on here for a week or two, since my mum was diagnose...

Esme85

•7 years ago

23 Replies

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Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

Treatment posts

LUNG CANCER SURGERY SUPPORT

Another 'alternative' therapy: phenothiazines (Phenergan)

radiotherapy

PET scan results

Stage 4 lung cancer and secondary bone cancer

Do you want to join our new virtual support sessions?

Can I help ?

Post op back home after segmentectomy

Anxious

Preparing for adjuvant chemo stage 3a lung cancer

Chemo induced kidney problems

Lung cancer chemo resistant

One step foward ,two steps back ....never ending

Social distancing whilst having treatment

Trying to keep busy

trying to find alternative to steroids

Don't know what to do!

Missed diagnosis for lung cancer.

Do you want to share your experience of diagnosis and treatment with NICE?

C T Scan

Compassionate/ named patient access

Lung Removed

Mesothelioma

Targeted therapy

Any help on trials please

Interesting Article about drug developments for ALK and EGFR

After effects of Carboplatin

Latest part of the lung cancer journey .

Delayed reaction to brain Stereotactic treatment

Palliative chemo - pemotrexid and cisplatin

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