Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,779 members • 3,464 posts

All posts for April 2019

PET scan

Hi all Hopefully you can help. Do you know if you only get sent for a PET scan after a CT scan if your consultant thinks your cancer has spread? The CT scan...

Hi all Hopefully you can help. Do you know if you only get sent for a PET scan ...

Daisy_Chain_12345

•5 years ago

Being on gifitinib drug

Being on gifitinib On a our annual 4 weekly blood tests for to see if my wife is ok to continue the drug I had said that her cough had got worst and was their...

Being on gifitinib On a our annual 4 weekly blood tests for to see if my wife is...

•5 years ago

lung cancer - please help

Hi We have very recently been given the news that our mum has lung cancer. She is 60y/o and fit and healthy non smoker and probably looks like she’s 50! We...

Hi We have very recently been given the news that our mum has lung cancer. She ...

Daisy_Chain_12345

•5 years ago

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Scar pain

Just a quick line to see if anyone has had any experience of this. some of you will have read in my past posts that I had a left lung pneumonectomy last july...

Just a quick line to see if anyone has had any experience of this. some of you ...

•5 years ago

Next patient information day in Leicester on 16th May

Venue: College Court Conference Center and Hotel, Knighton Road, LE2 3UF Please phone to book your free place on 0333 323 7200 (option 2)

Venue: College Court Conference Center and Hotel, Knighton Road, LE2 3UF ...

Partner•5 years ago

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Just need hope

Hi everyone my first post my dad 74 been diagnosed 3b lung cancer that has spread to few lymph nodes, he is fit for his age but has always suffered with chest...

Hi everyone my first post my dad 74 been diagnosed 3b lung cancer that has sprea...

•5 years ago

Taxol Blues

What the hell do I do for feet and leg ain, I took taxol and carb Wednesday and body aches are killing me and I need advice please

What the hell do I do for feet and leg ain, I took taxol and carb Wednesday and ...

•5 years ago

Severe nausea after radiotherapy

My radiotherapy treatment for an Oesophagas tumour was completed about 4/5 weeks ago and now I have continual nausea which is seriously affecting my appetite....

My radiotherapy treatment for an Oesophagas tumour was completed about 4/5 week...

•5 years ago

Biopsy Day

So mums had her biopsy and now back on the ward recovering. X-ray in a few hours to make sure everything ok then 🤞 she can come home soon. The nurse who...

So mums had her biopsy and now back on the ward recovering. X-ray in a few hours...

•5 years ago

Waiting on scan results

My mum was recently diagnosed with nsclc which has spread to her brain, she has had 2 rounds of chemotherapy and had a mri scan last week to see if she is...

My mum was recently diagnosed with nsclc which has spread to her brain, she has ...

LemonDropsDreamToo

•5 years ago

Understanding

Can some please tell me what T1c N2 M0 means? We know it’s small cell lung cancer, just want to know what this is? Thank you.

Can some please tell me what T1c N2 M0 means? We know it’s small cell lung canc...

•5 years ago

Newly diagnosed

Hi, I would like to thank everyone who has replied to my post, it makes a difference being able to speak with people who have been through what I will be going...

Hi, I would like to thank everyone who has replied to my post, it makes a differ...

•5 years ago

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Silent Reflux after lung surgery?

Has anyone heard that about 48% of people having lung cancer surgery often have silent reflux afterwards? Almost 9 weeks after my lobectomy I have noisy...

Has anyone heard that about 48% of people having lung cancer surgery often have ...

•5 years ago

Newly diagnosed

Hi, I have recently been diagnosed with lung cancer, which I have been told is operable. But at pet scan another area was found in lower aspect of same lung. I...

Hi, I have recently been diagnosed with lung cancer, which I have been told is o...

•5 years ago

Voice

I had lobectomy 7 months ago by vats. I feel well but still have a horrible voice at times. I dont seem to be able to sing and reach notes anymore. Has anyone...

I had lobectomy 7 months ago by vats. I feel well but still have a horrible voic...

jckjanetrosalin

•5 years ago

Medication confusion

Hi, I am on Levothyroxine, losartan and from yesterday B12. I would like to know when I should take these medications and how far apart from food that...

Hi, I am on Levothyroxine, losartan and from yesterday B12. I would like to kno...

•5 years ago

Husband's NSCLC now spread to liver

Just been told by the oncologist that the pembrolizumab isn't working. Tumours in the lungs are a bit bigger, the pleura wall is thickened by cancer and there...

Just been told by the oncologist that the pembrolizumab isn't working. Tumours i...

•5 years ago

Travel insurance

Just accepted a policy for one trip to Spain, end of month. Insurewith. Com Thought was very reasonable at 156 plus 300 excess. For couple. Thanks for...

Just accepted a policy for one trip to Spain, end of month. Insurewith. Com Th...

•5 years ago

Anyone with NSCLC and Brain Metastasis

Hi, I haven't posted for a few weeks I think I got so desperate for answers I run out of steam, for those who dont know my story my mum was diagnosed with...

Hi, I haven't posted for a few weeks I think I got so desperate for answers I r...

LemonDropsDreamToo

•5 years ago

Insurance advice please

Good afternoon, my name is Kevin. just about to renew travel insurance for two trips to Spain, my present policy does not cover my lung cancer which has spread...

Good afternoon, my name is Kevin. just about to renew travel insurance for two t...

•5 years ago

Small cell lung cancer

Are there any small cell LG stage 3a survivors out there? I’m still trying to get my head around my mum’s diagnosis. Are we now on borrowed time? Thank you....

Are there any small cell LG stage 3a survivors out there? I’m still trying to ge...

•5 years ago

Small Cell stage 3a Lung Cancer

Hello everyone, We had the news yesterday that my mother has stage 3a, small cell lung cancer. Small tomour on her left lung and also lymph nodes have it....

Hello everyone, We had the news yesterday that my mother has stage 3a, small ce...

•5 years ago

My first post, Lung cancer spread, given ave of a year to live, and now cancer is inactive, just over six months later, believe u can win!

Hi everyone, I had difficulty breathing in September 2018 and went to A/E, I was given an xray and they found a blood clot on each lung, they kept me in and...

Hi everyone, I had difficulty breathing in September 2018 and went to A/E, I was...

•5 years ago

Love of my life

It is just coming upto 1year since I lost my husband after almost 53 amazing years of marriage .He died from malignant pleural effusion, secondary to lung...

It is just coming upto 1year since I lost my husband after almost 53 amazing ye...

•5 years ago

Anyone else on maintenance pemetrexed and keytrunda

Anyone else on maintenance pemetrexed and keytrunda following 4 cycles of pemetrexed and keytrunda and carboplatin ,if so what is QOL like ? I have just got...

Anyone else on maintenance pemetrexed and keytrunda following 4 cycles of pemetr...

•5 years ago