Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,785 members • 3,467 posts

All posts for June 2019

Has anybody else had problems with removal of stitches following lobectomy

Hi everybody. Hope everybody is managing to find some time to relax and enjoy the good weather this weekend. A little sunshine is almost always cheering. I...

Hi everybody. Hope everybody is managing to find some time to relax and enjoy th...

SunshineAhead

•5 years ago

7 Replies

Squamous Cell Stage II B Lung Cancer- Be Your Own Advocate

Hi All My name is Kathy - I believe my age is irrelevant at this time . I was diagnosed just about a month ago, after what seemed an eternity but in fact it's...

Hi All My name is Kathy - I believe my age is irrelevant at this time . I was d...

SunshineAhead

•5 years ago

5 Replies

Answering my own question

I did some research since my last post so N1 means it's in the lymph nodes and M1a that it has spread nearby. As I'm having a CT scan on the abdomen and pelvis...

I did some research since my last post so N1 means it's in the lymph nodes and M...

Aamar

•5 years ago

6 Replies

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Anyone had surgery on nerve sheath bundle near spine ?

Awaiting more tests doctors think I have nerve sheath bundle but is near spine , awaiting mri and tests on my neck . Has anyone else had surgery on...

Awaiting more tests doctors think I have nerve sheath bundle but is near spine ,...

Shirleywarner

•5 years ago

2 Replies

Advice on Lung nodule

I've finally got results back from my CT scan and all that was found was a 2mm lung nodule, which my doctor tells me is nothing to worry about & cant be the...

I've finally got results back from my CT scan and all that was found was a 2mm l...

Redd2

•5 years ago

7 Replies

Swelling after vats upper right Lobectomy

Hi folks Alison again- just over a week ago I had the above procedure and came home last Friday. I followed all instructions given and even managed two short...

Hi folks Alison again- just over a week ago I had the above procedure and came h...

AlisonPK

•5 years ago

8 Replies

Update on diagnosis

Hi all Just spoke to my wonderful nurse specialist so I'm a bit better informed now. I have T4 stage in lower right lung with local secondary in left lung....

Hi all Just spoke to my wonderful nurse specialist so I'm a bit better informed ...

Aamar

•5 years ago

5 Replies

Oncologica?

Hi everyone, I've been doing some research on Oncologica - https://www.oncologica.com/ and their OncoFocus tests "...The Oncofocus test detects DNA mutations...

Hi everyone, I've been doing some research on Oncologica - https://www.oncologic...

GaryNR14

•5 years ago

4 Replies

Just received Adenocarcinoma diagnosis

Hi all you good people. I received my diagnosis on Friday. Waiting for guided CT biopsy to determine treatment plan From my research I think this might mean...

Hi all you good people. I received my diagnosis on Friday. Waiting for guided C...

Aamar

•5 years ago

15 Replies

understanding staging

got a letter from my consultants sec with my staging it was pT1c pno can anyone translate this please.what does the c after the pT1 mean? thank you.

got a letter from my consultants sec with my staging it was pT1c pno can anyone ...

dogsbody321

•5 years ago

5 Replies

Apk

Day 2 after upper right lobe Lobectomy . Still got drain in and catheter and feeling in a wee bit of pain. Slept all night in same position . Fingers crossed...

Day 2 after upper right lobe Lobectomy . Still got drain in and catheter and fee...

AlisonPK

•5 years ago

4 Replies

question.

what does no mo mean after you have had lung cancer treatment ?

dogsbody321

•5 years ago

5 Replies

Do you have any views of this or other Roy Castle Lung Cancer Foundation services?

Hello all This summer we are planning to run a campaign highlighting the work the charity has been involved in over the last 25 years. If you have found this...

Hello all This summer we are planning to run a campaign highlighting the work th...

LorraineD

Partner•5 years ago

2 Replies

Maintenance treatment

Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI...

Hi, My dad was just told that his lung cancer is shrinking again and no more met...

Ina3

•5 years ago

5 Replies

LDH markers

My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the...

My husband was on immunotherapy for lung cancer which had spread to lymph nodes ...

Goingcuckoo

•5 years ago

1 Reply

Secondary

Hello everyone, You may recall I wrote and shared of my pneumonectomy on 4th July 2018. I learnt yesterday that my cancer is back s in nodes in/around my...

Hello everyone, You may recall I wrote and shared of my pneumonectomy on 4th Jul...

Colin57

•5 years ago

4 Replies

Any experiences with "alternative" therapies?

Hi everyone, I've been doing some research and wanted to know if anyone had been trying any "alternative" or non-prescribed medications/foods to help with...

Hi everyone, I've been doing some research and wanted to know if anyone had been...

GaryNR14

•5 years ago

12 Replies

CT Scan 5 months after lobectomy.

Hi again people, hope all is well. I just have a quick question please. Quick background in case unfamiliar, my tumour was found on the 31st January this...

Hi again people, hope all is well. I just have a quick question please. Quick ...

lucanus15

•5 years ago

6 Replies

Lobectomy in3 days

This past year I’ve had a malignant melanoma, breast cancer and now lung cancer- all right side of body and all unconnected. Lung cancer was picked up at a...

This past year I’ve had a malignant melanoma, breast cancer and now lung cancer-...

AlisonPK

•5 years ago

15 Replies

Back pains

I had a lower left lung lobectomy 11 weeks ago with no real complication. I have now started chemo and had my first cycle 2 weeks ago. All was ok with that...

I had a lower left lung lobectomy 11 weeks ago with no real complication. I have...

Happy64

•5 years ago

2 Replies

license suspended

had upper left lung lobe nsclc 8 weeks ago surgeon said he fixed it discharged me will have ct scan soon routine.dvla have suspended my pcv license for a year...

had upper left lung lobe nsclc 8 weeks ago surgeon said he fixed it discharged m...

dogsbody321

•5 years ago

12 Replies

Post op complications

Hi, it's been 7 weeks since I had a left upper lobectomy. After operation I felt fine, managed to get out and about, still some pain but manageable. Then 2...

Hi, it's been 7 weeks since I had a left upper lobectomy. After operation I felt...

Kenzie123

•5 years ago

5 Replies

Good news - stage IIIb NSCLC Adeno

Hi I just wanted to share some good news. My recent scans have come back all clear again! I had an MRI head and paid for a private PET scan for body. I was...

Hi I just wanted to share some good news. My recent scans have come back all cl...

Janey_H

•5 years ago

33 Replies

Life Insurance

Has anyone else with Stage 4 lung cancer and bone mets had difficulty in obtaining a payout from their life insurers under the terminal illness clause of their...

Has anyone else with Stage 4 lung cancer and bone mets had difficulty in obtaini...

Manninmaid

•5 years ago

4 Replies

Standardized dose for Pembrolizumab.

When I had my Pembrolizumab yesterday I was advised that there is a new protocol and the amount given is now a standardized dose rather than based on an...

When I had my Pembrolizumab yesterday I was advised that there is a new protocol...

Manninmaid

•5 years ago

8 Replies

How to manage the psychological downside of diagnosis & treatment?

Hi all, I'm sure this is a subject you've all experienced, how do you manage to cope with the dark days when you receive crap news or feel the side effects of...

Hi all, I'm sure this is a subject you've all experienced, how do you manage to ...

GaryNR14

•5 years ago

11 Replies

SCLC good news, then kick in the teeth!

My wife was diagnosed with Advanced SCLC in March 2019 in her left lung and attached to her heart. After 2 cycles of Carboplatin and Etopiside she was scanned...

My wife was diagnosed with Advanced SCLC in March 2019 in her left lung and atta...

Babydolltina

•5 years ago

1 Reply

Entrectinib and ROS1

Is there anyone either ROS1 or on the Entrectinib trial - or both. It would be good to compare notes.

Is there anyone either ROS1 or on the Entrectinib trial - or both. It would be g...

WDebens

•5 years ago

5 Replies

Ending Nivolumab

I have almost completed my two year allocation of Nivolumab treatment. Is there anyone who is now being treated with Nivolumab for a third year? I am to...

I have almost completed my two year allocation of Nivolumab treatment. Is th...

foodbankcupar

•5 years ago

8 Replies

Chemotherapy side effects

Hello once again. I'm due for my second perfusion of Cisplatin and Alimta (for stage IIa Non-small) this coming Monday. I suppose I will be able to discuss...

Hello once again. I'm due for my second perfusion of Cisplatin and Alimta (for ...

lucanus15

•5 years ago

3 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for June 2019

Has anybody else had problems with removal of stitches following lobectomy

Squamous Cell Stage II B Lung Cancer- Be Your Own Advocate

Answering my own question

Anyone had surgery on nerve sheath bundle near spine ?

Advice on Lung nodule

Swelling after vats upper right Lobectomy

Update on diagnosis

Oncologica?

Just received Adenocarcinoma diagnosis

understanding staging

Apk

question.

Do you have any views of this or other Roy Castle Lung Cancer Foundation services?

Maintenance treatment

LDH markers

Secondary

Any experiences with "alternative" therapies?

CT Scan 5 months after lobectomy.

Lobectomy in3 days

Back pains

license suspended

Post op complications

Good news - stage IIIb NSCLC Adeno

Life Insurance

Standardized dose for Pembrolizumab.

How to manage the psychological downside of diagnosis & treatment?

SCLC good news, then kick in the teeth!

Entrectinib and ROS1

Ending Nivolumab

Chemotherapy side effects

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