Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

6,049 members•3,603 posts

All posts for March 2020

Surgery completed Friday

Hi everyone, I’ve been posting and receiving support and advise since being diagnosed stage 3A adenocarcinoma 7 months ago. After chemoradiation treatment and...

Hi everyone, I’ve been posting and receiving support and advise since being diag...

•5 years ago

Seeking info

Hi everyone - I completed my last cycle of chemo on 11 November 2019 and although I had some hair loss it was not that significant as I am fortunate to have...

Hi everyone - I completed my last cycle of chemo on 11 November 2019 and althoug...

•5 years ago

Does anyone have any similar symptoms

My husband has stage 4 cancer of lungs and adrenal gland, but they say this is not the primary site and more tests are needed. We were told he had stage 3 last...

My husband has stage 4 cancer of lungs and adrenal gland, but they say this is n...

•5 years ago

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End of the road 2

It worked so I have clearly been forgetting to press the post button! I received the news on Thurs that the 6 months of immunotherapy I've had hasn't worked -...

It worked so I have clearly been forgetting to press the post button! I received...

•5 years ago

End of the road?

Hi everyone I've posted a couple of messages here in the past few months but they don't seem to go anywhere so this is a test message. If it comes up I'll...

Hi everyone I've posted a couple of messages here in the past few months but the...

•5 years ago

High risk category? Letter received?

Hello everyone, I hope you are all keeping well and are coping with this situation we find ourselves in. I am on targeted therapy Ceritinib which as far as I...

Hello everyone, I hope you are all keeping well and are coping with this situati...

•5 years ago

COVI-19 Corona Virus vs Cancer

Is everybody else here aware of the worryingly decreased cancer treatment being offered to patients (throughout England NHS Authorities at least as far as I...

Is everybody else here aware of the worryingly decreased cancer treatment being ...

•5 years ago

Beware this email

Warning just received email alegedly from this site. You maybe elegable for phone consultation and get 227 dollars for doing so!! As have suitable type of...

Warning just received email alegedly from this site. You maybe elegable for phon...

•5 years ago

Seeking info

Hi I have just been diagnosed with stage 1lepidic cell adenocarcinoma of rt lower lung, I have been offered a lobectomy for treatment but first I am trying to...

Hi I have just been diagnosed with stage 1lepidic cell adenocarcinoma of rt lowe...

•5 years ago

New Gov Guidelines

Hi my husband had CLL(chronic leukaemia) and has received his hi- lighted letter warning him that he is in the top 5 vulnerable people. I however did not...

Hi my husband had CLL(chronic leukaemia) and has received his hi- lighted letter...

•5 years ago

Coronavirus...advice for a family member

Hello all, I dunno about you but I feel like we’ve all had enough on our plate without a global pandemic! Strength to you all during this horrible time. So my...

Hello all, I dunno about you but I feel like we’ve all had enough on our plate w...

•5 years ago

trying to find alternative to steroids

hi lm trying to come of steroids and on to hydrocortisone , my condition is autoimmunaity, secondary to tissue connective disease , has anyone had experience...

hi lm trying to come of steroids and on to hydrocortisone , my condition is auto...

•5 years ago

Keytuda,once two years of treatment is completed how long does it keep working for?

I had lung cancer diagnosis 2015 upper lobectomy ,adjuvant chemo as belt and braces .In 2017 had cardiac and brain mets had brain stereotactic radiotherapy...

I had lung cancer diagnosis 2015 upper lobectomy ,adjuvant chemo as belt and bra...

•5 years ago

What support would be useful just now?

Hello all I hope you are coping okay with the current strange impact of corona virus. As a charity we are trying to adapt to offer support during this time...

Hello all I hope you are coping okay with the current strange impact of corona v...

Partner•5 years ago

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Coronavirus

We are aware that some people are finding the current guidelines a bit difficult to interpret. We do know that covid 19 is primarily affecting the respiratory...

We are aware that some people are finding the current guidelines a bit difficult...

Partner•5 years ago

Terrified. Now have liver mets.

After lung cancer and 3 clear years and brain mets that were successfully treated with Cyberknife, I was told yesterday i have liver mets. My chemo starts...

After lung cancer and 3 clear years and brain mets that were successfully treate...

•5 years ago

Lung resection - am I a 'vulnerable person' when it comes to coronavirus?

I had a lung resection four years ago, recovered well and am now fit and healthy. I'm under 70, no health conditions, but I was advised to have flu jabs, so...

I had a lung resection four years ago, recovered well and am now fit and healthy...

•5 years ago

Heartbroken

2 months after diagnosis my best friend my hero my big brother has died 😢 He never got the chance to have treatment. Life is so unfair. I'm devastated 😢

2 months after diagnosis my best friend my hero my big brother has died 😢 He n...

•5 years ago

Port a Cath getting stuck.

Hello people, hope you are all faring as well as possible. I have a question for those familiar with Port a Caths. I had mine implanted last May and have had...

Hello people, hope you are all faring as well as possible. I have a question for...

•5 years ago

New to Cancer

Hi, this is new to me, as was Lung Cancer, I have had my surgery and now recovering at home, had 10 days in hospital recovering and now been home for a month....

Hi, this is new to me, as was Lung Cancer, I have had my surgery and now recover...

•5 years ago

Anyone know

If you have a rare blood type can you revive immune therapy?

If you have a rare blood type can you revive immune therapy?

•5 years ago

Maintenance after 4 sessions of chemo/immunotherapy

We have been told just before going into the 4th session of chemo that Maintenance is the next thing to go on What if the Tumour has gone or shrunk completely...

We have been told just before going into the 4th session of chemo that Maintenan...

•5 years ago

Radiotherapy

Radiotherapy. I would appreciate hearing experience of this treatment and it's effects. Thank you.

Radiotherapy. I would appreciate hearing experience of this treatment and it's e...

•5 years ago