Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for April 2017

Friend's Mum recently diagnosed, so much confusion and not much support

A dear friend of mine mum recently diagnosed and I am concerned as she is that there has been so support for her mum or her with regards to the shocking news...

A dear friend of mine mum recently diagnosed and I am concerned as she is that t...

Hidden

•8 years ago

6 Replies

Searching For 'Jaynair' on the forum

Hello everyone, just Jules here I was wondering how 'Jaynair' got along yesterday - i think she was going to get some results through on that date. - does...

Hello everyone, just Jules here I was wondering how 'Jaynair' got along yesterda...

Julesgettingthere

•8 years ago

11 Replies

Finding out you have cancer

I just have been told that I have Lung Cancer and am very unhappy how I was told. I was wondering when you were diagnosed who told you, how were you told and...

I just have been told that I have Lung Cancer and am very unhappy how I was told...

Chris333

•8 years ago

10 Replies

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Early days and really scared

Hi I heard last week that CT scan showed a 4cm mass upper anterior lung, probably lining and I had my PET scan this morning. I have to say I am so scared and...

Hi I heard last week that CT scan showed a 4cm mass upper anterior lung, probabl...

Hidden

•8 years ago

12 Replies

Brain met

Hi unfortunately I had a seizure whilst bathing Sunday night, luckily help quickly at hand, got to hospital quickly unluckily I now have a diagnosis of...

Hi unfortunately I had a seizure whilst bathing Sunday night, luckily help quick...

Hidden

•8 years ago

10 Replies

Small cell lung cancer and possible preventative whole brain radiotherapy for someone who has lupus

Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as...

Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 ...

Kellymw

•8 years ago

4 Replies

nivolumab plus ipilimumab compared to pembrolizumab

Hi everyone, Jules here. I have been sent some information regarding our fears that mums trial will not go ahead due to costs (using nivolumab and ipilimumab....

Hi everyone, Jules here. I have been sent some information regarding our fears t...

Julesgettingthere

•8 years ago

2 Replies

Anyone in the Dundee area? see event details, should be a great day and we will also be present.

Transforming Cancer Care Tayside (TCAT) Event Thursday 27th April 2017 1 Shore Terrace, Dundee,...

Transforming Cancer Ca...

NicF4

Partner•8 years ago

2 Replies

Gabapentin

Just wondered if everyone after a lobectomy takes gabapentin and how long they have stayed on them for. Was reading something that made it sound like you could...

Just wondered if everyone after a lobectomy takes gabapentin and how long they h...

webbs8

•8 years ago

8 Replies

T4 n2 squarmus

Hi there I'm new to this feed but hoping someone can give me more Info. Mum had her pet scan tues but was diagnosed with lung cancer about 6 wks ago it seems...

Hi there I'm new to this feed but hoping someone can give me more Info. Mum had ...

Chel09

•8 years ago

6 Replies

Experiences with Chemo

hey there all you lovely people! My mum has had her 2nd lot of chemo (Cisplatin and Pemetrexed) and is doing very well on it. she has Lepto met which was...

hey there all you lovely people! My mum has had her 2nd lot of chemo (Cisplatin ...

juliepoolie01

•8 years ago

2 Replies

Are you interested in participating in a research project for a fee?

The charity has been approached by a market research company working for a pharma. They want to speak to 5 people with non-small cell lung cancer in the UK,...

The charity has been approached by a market research company working for a pharm...

LorraineD

Partner•8 years ago

8 Replies

Should i change the channel ?

Hi there, Jules here - Wanted to tell you about something that happened, and ask what you think mum REALLY wanted. Mum and me settle in for the night (alone,...

Hi there, Jules here - Wanted to tell you about something that happened, and ask...

Julesgettingthere

•8 years ago

7 Replies

lobectomy

Hello everyone - Jules here. Thank you so very much to all those wonderful people who responded to this post. The stories are all different, but all give me...

Hello everyone - Jules here. Thank you so very much to all those wonderful peopl...

Julesgettingthere

•8 years ago

4 Replies

GemCarbo Side Effects

Hi all, I had my right upper lobe removed in February. I've recovered well and am due to start chemo with GemCarbon on Friday, the first of four cycles. I...

Hi all, I had my right upper lobe removed in February. I've recovered well and ...

SAH1

•8 years ago

5 Replies

Lung Cancer - did anyone here win the fight ?

Hello again, Jules here, on behalf of mum. I read some posts here today which make my heart sink, my mums journey has only just begun. One of you wonderful...

Hello again, Jules here, on behalf of mum. I read some posts here today which ma...

Julesgettingthere

•8 years ago

39 Replies

Adjuvent chemo

Hi. I had surgery for NSCLC three weeks ago and they removed the right upper lobe. The pathology report showed that the tumour was 44mm largest dimension and...

Hi. I had surgery for NSCLC three weeks ago and they removed the right upper lob...

seasidebob

•8 years ago

10 Replies

Lost the battle

Sadly. My lovely. Man lost his battle. With sclc on the 31st march after 6months wot i can only call Torture. Had 6sessions of chemo then was d to have...

Sadly. My lovely. Man lost his battle. With sclc on the 31st march after 6months...

Brogan-12

•8 years ago

15 Replies

What else could it be?

My husband has a large mass on his lungs which has not been proven to be cancer however they have said it is if proven stage 4 T3 N1 M1 a this was on the...

My husband has a large mass on his lungs which has not been proven to be cancer...

missjackiel

•8 years ago

6 Replies

Struggling with fatigue

Husband has stage 4 just had 1st chemo 3 days ago really struggling with tiredness in bed nearly 24/7 when will he start to have a bit more energy really...

Husband has stage 4 just had 1st chemo 3 days ago really struggling with tiredne...

Nanna2u

•8 years ago

14 Replies

Afatanib side affects

My husband aged 69 was diagnosed with stage 4 lung cancer in January. He has been taking Afatanib for 2 months but the side affects of diorhea and peeling skin...

My husband aged 69 was diagnosed with stage 4 lung cancer in January. He has bee...

CaroleH1949

•8 years ago

8 Replies

Unable to have bronschoscopy?

My mum was diagnosed with t3n2m0 lung cancer 3weeks ago. She is awaiting a hospital appointment in a weeks time to see if she is strong enough to undergo a...

My mum was diagnosed with t3n2m0 lung cancer 3weeks ago. She is awaiting a hospi...

Jomc1970

•8 years ago

2 Replies

New chemo

I am about to have my first chemo tomz & am terrified to say the least. Stage 3a lung cancer . I'm scared for me, my kids & husband

I am about to have my first chemo tomz & am terrified to say the least. Stage 3a...

Vivienneann

•8 years ago

8 Replies

Can you help with this research project?

King's College London and Cicely Saunders International invite you to join a research study to help develop a new rehabilitation service. If you think you can...

King's College London and Cicely Saunders International invite you to join a res...

NicF4

Partner•8 years ago

Be the first to reply

Cyberknife targeted radiotherapy for stage 3 lung cancer.

Hi all My husband was told that he can't have radiotherapy and when we asked about cyberknife they said the same thing. His tumours are in two places (one...

Hi all My husband was told that he can't have radiotherapy and when we asked abo...

NTu21

•8 years ago

3 Replies

Tiredness

Hi, I hope everyone is as well as possible on this lovely sunny morning. I wonder if anyone has tiredness caused by the Immunotherapy Pembrolizumab? If so...

Hi, I hope everyone is as well as possible on this lovely sunny morning. I wond...

tilstongal

•8 years ago

1 Reply

Health insurance for holidays

Hi - I am Stage IV with ALK Mutation and taking crizotinib. But since starting I have had two tumours in brain, one operated on 9 weeks ago and gamma knife...

Hi - I am Stage IV with ALK Mutation and taking crizotinib. But since starting ...

AWibberley

•8 years ago

8 Replies

fit-to-fly' test which simulates flying conditions

Last week i had a fit-to-fly' test which simulates flying conditions to see whether or not supplemental oxygen will be needed, i passed the test with a...

Last week i had a fit-to-fly' test which simulates flying conditions to see whet...

Guy59

•8 years ago

5 Replies

SCLC Immunotherapy

My Mum is to take part in an immunotherapy trial as maintenance therapy. Has anybody else on the forum been offered or is taking part in this trial. Thanks...

My Mum is to take part in an immunotherapy trial as maintenance therapy. Has an...

sparkpin

•8 years ago

5 Replies

Radiotherapy for stage 3 lung cancer.

Hi there My husband was refused radiotherapy; they are saying it's because the tumours are way apart; one in one lung and the other is in a lymph node. I'm...

Hi there My husband was refused radiotherapy; they are saying it's because the t...

NTu21

•8 years ago

8 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for April 2017

Friend's Mum recently diagnosed, so much confusion and not much support

Searching For 'Jaynair' on the forum

Finding out you have cancer

Early days and really scared

Brain met

Small cell lung cancer and possible preventative whole brain radiotherapy for someone who has lupus

nivolumab plus ipilimumab compared to pembrolizumab

Anyone in the Dundee area? see event details, should be a great day and we will also be present.

Gabapentin

T4 n2 squarmus

Experiences with Chemo

Are you interested in participating in a research project for a fee?

Should i change the channel ?

lobectomy

GemCarbo Side Effects

Lung Cancer - did anyone here win the fight ?

Adjuvent chemo

Lost the battle

What else could it be?

Struggling with fatigue

Afatanib side affects

Unable to have bronschoscopy?

New chemo

Can you help with this research project?

Cyberknife targeted radiotherapy for stage 3 lung cancer.

Tiredness

Health insurance for holidays

fit-to-fly' test which simulates flying conditions

SCLC Immunotherapy

Radiotherapy for stage 3 lung cancer.

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