Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,777 members • 3,464 posts

All posts for June 2022

Should I ask for a new assessment - second installment

Hi again everyone My cancer nurse got me a new appointment with my oncologist who I saw this morning. I wasn't expecting much, after the Respiratory consultant...

Hi again everyone My cancer nurse got me a new appointment with my oncologist wh...

ginkgo

•2 years ago

4 Replies

Sharing a video - ASCO 2022 highlights

Hi everyone The Lung Cancer Research Foundation ran a session yesterday to share the highlights of the major developments in lung cancer treatments presented...

Hi everyone The Lung Cancer Research Foundation ran a session yesterday to share...

sassassas

•2 years ago

3 Replies

Let down...again !

When I wrote my last post I was so full of hope and felt happy again. I had forgotten what that was like! However, my original Dr. has overruled my new Dr....

When I wrote my last post I was so full of hope and felt happy again. I had for...

Danni54

•2 years ago

13 Replies

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NSCLC with bone mets. What's the usual prognosis?

Hi, I'm new here. I was recently diagnosed with nsclc stage 4 with bone mets. The primary is in my right lung and the bone mets are in both shoulders, I'm...

Hi, I'm new here. I was recently diagnosed with nsclc stage 4 with bone mets. Th...

Nopinkforus

•2 years ago

11 Replies

Gymbuddie

Hi All. I am new to this website. I am writing to introduce myself. I was diagnosed on 1st March 2022 with primary lung cancer an secondary bone, liver,...

Hi All. I am new to this website. I am writing to introduce myself. I was dia...

Gymbuddie

•2 years ago

8 Replies

Advice for my brother, terminal diagnosis

Hello everyone, hope you’re all keeping ok? I’ve found support on here for myself so reasurring in the past but today I am asking for my brother who was...

Hello everyone, hope you’re all keeping ok? I’ve found support on here for mys...

Mogs2

•2 years ago

2 Replies

Should I ask for a new assessment

I was diagnosed with terminal squamous cell lung cancer last October. My upper left lung had collapsed with a 10cm tumour and the tumour was blocking the lower...

I was diagnosed with terminal squamous cell lung cancer last October. My upper l...

ginkgo

•2 years ago

12 Replies

Will I walk again.

I'm sorry if I've already asked this question. About 6 months into being diagnosed with lung cancer,brain mets and 1 vertebrae affected I struggled to walk and...

I'm sorry if I've already asked this question. About 6 months into being diagnos...

Tike3

•2 years ago

8 Replies

Stage 4 NSCLC Scan Results

My brother who is 49 had 4 sessions of chemo and immunotherapy and his first scan showed a reduction in all his tumours. Following that he was told he would be...

My brother who is 49 had 4 sessions of chemo and immunotherapy and his first sca...

kbatt

•2 years ago

1 Reply

physio

Hi, my dad has had most of 1 of his lung removed around xmas time. Unfortunately, his cancer has spread to his vertebrae and they are unable to cure it. He is...

Hi, my dad has had most of 1 of his lung removed around xmas time. Unfortunately...

seagulls123

•2 years ago

1 Reply

Weight loss

Hi everybody- hope you’ve all had a good weekend. We had the appointment with my brothers oncologist- he’s a lovely man. We have a lot of drugs to combat the...

Hi everybody- hope you’ve all had a good weekend. We had the appointment with my...

Brianderrick12

•2 years ago

1 Reply

Lung and myeloma

Good day all When I was diagnosed I also had lots of pain on my chest and shoulder all was on the right side I started taking a Product called STC30 with in a...

Good day all When I was diagnosed I also had lots of pain on my chest and shoul...

1973Ren

•2 years ago

1 Reply

Anyone there on OSIMERTINIB tablets?

Kasuku. Started on OSIMERTINIB ( Tagrisso ). I was recently diagnosed with stage 4 NSCLC in May 2022 with Mets to diaphram and pleural both lungs. Checking...

Kasuku. Started on OSIMERTINIB ( Tagrisso ). I was recently diagnosed with stage...

Kasuku

•2 years ago

9 Replies

Neck and Shoulder pain

I have NSCLC lung cancer stage 4 developed terrible shoulder and neck pain, don't know if related. On gabapentin and Sevredol but not having much effect. Any...

I have NSCLC lung cancer stage 4 developed terrible shoulder and neck pain, don'...

Tike3

•2 years ago

9 Replies

Lung Cancer diagnosis update

Hi everyone, Went for my appointment yesterday but was a bit disappointed coz my CT scan staging where not there. So have to wait until the doctor gets the...

Hi everyone, Went for my appointment yesterday but was a bit disappointed coz my...

Pipido36

•2 years ago

2 Replies

5 Year Survival Rate

Hi Just curious, I get quite upset about this 5 year survival rate. I've read it numerous times. Then yesterday even my oncologist said it. I have NSCLC lung...

Hi Just curious, I get quite upset about this 5 year survival rate. I've read it...

Tike3

•2 years ago

50 Replies

My brother

Hi me again - my brother has started treatment- 2nd chemo & immunotherapy yesterday - he’s doing ok ish but his cough is getting worse & he’s exceptionally...

Hi me again - my brother has started treatment- 2nd chemo & immunotherapy yester...

Brianderrick12

•2 years ago

2 Replies

travel insurance

Hi all, my dad has lung CA which has spread to vertebrae. It's incurable. He finished 4th round chemo I would like to know is it possible to take him on...

Hi all, my dad has lung CA which has spread to vertebrae. It's incurable. He fin...

seagulls123

•2 years ago

6 Replies

Dental

Iv just broken my tooth and Iv read that I need to check with oncologist before I get dental work done Has anybody been to dentist while on tagrisso ? Thanks

Iv just broken my tooth and Iv read that I need to check with oncologist before ...

Rusty821

•2 years ago

9 Replies

Lung Cancer diagnosis

Hi everyone, Just want to ask for information on how to cope with a lung cancer diagnosis. The nodules where discovered in 2018 after going for a CT scan for...

Hi everyone, Just want to ask for information on how to cope with a lung cancer ...

Pipido36

•2 years ago

8 Replies

Immunotherapy and the 2 year limit

There are many people on here worried about what happens when they or their loved ones 2 years are up with their immunotherapy treatment. I was the same. My...

There are many people on here worried about what happens when they or their love...

nlg1405

•2 years ago

13 Replies

Muscle Spasms

I had what I thought was a pulled muscle and they xrayed at Christie's, this lasted couple of days it's turned into agony. It starts like a wave that builds...

I had what I thought was a pulled muscle and they xrayed at Christie's, this la...

Tike3

•2 years ago

4 Replies

Any help please

Hi all My father just recently been diagnosed with lung cancer, waiting for biopsy staging he’s in pain, low mood and feels depressed I’ve asked him today does...

Hi all My father just recently been diagnosed with lung cancer, waiting for biop...

Newbie270

•2 years ago

16 Replies

The oncologist wants to do a PET and CT scan the same day. Is it necessary to do both?

The oncologist wants to do a CT and PET scan on the same day this month. My husband is now stage IV NSCLC and had both these tests done in February. They have...

The oncologist wants to do a CT and PET scan on the same day this month. My husb...

Keepingstrong

•2 years ago

15 Replies

Two and a half weeks post upper right lobectomy.

Hello all, I’m finding lack of pain control in the middle of the night is preventing me from getting a full night’s sleep. I’m fine during the day although the...

Hello all, I’m finding lack of pain control in the middle of the night is preven...

Kanafapot

•2 years ago

49 Replies

Lung and Meyloma Cancer stage 4

I have just been diagnosed with lung cr and Meyloma they have not started treatment as yet the oncologist is still long for what treatment I will need im...

I have just been diagnosed with lung cr and Meyloma they have not started treatm...

1973Ren

•2 years ago

1 Reply

Anyone ALK positive?

Hi everyone, My dad has recently been diagnosed with multiple brain mets (at least 5 in the head) with recurrence in his lungs and lymph nodes. That being...

Hi everyone, My dad has recently been diagnosed with multiple brain mets (at lea...

HopefulAnnie101

•2 years ago

12 Replies

full body scan

what does a full body scan show up i have had a partial chemo course before my oncology doctor stopped it as i was feeling very ill i was also having...

what does a full body scan show up i have had a partial chemo course before my o...

CLOCKpicture46

•2 years ago

2 Replies

Will my left leg ever work again

Diagnosed in August NSCLC Stage 4 about 4 months after noticed difficulty walking on left leg, just after diagnosed with a few small brain mets which were...

Diagnosed in August NSCLC Stage 4 about 4 months after noticed difficulty walkin...

Tike3

•2 years ago

48 Replies

Growth on right upper lobe

Hello everyone I'm new to this forum but not yo health unlocked .I found out today that I have a 2 cm growth on my right upper lung just by chance after a MRI...

Hello everyone I'm new to this forum but not yo health unlocked .I found out tod...

Treeclimber62

•2 years ago

18 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for June 2022

Should I ask for a new assessment - second installment

Sharing a video - ASCO 2022 highlights

Let down...again !

NSCLC with bone mets. What's the usual prognosis?

Gymbuddie

Advice for my brother, terminal diagnosis

Should I ask for a new assessment

Will I walk again.

Stage 4 NSCLC Scan Results

physio

Weight loss

Lung and myeloma

Anyone there on OSIMERTINIB tablets?

Neck and Shoulder pain

Lung Cancer diagnosis update

5 Year Survival Rate

My brother

travel insurance

Dental

Lung Cancer diagnosis

Immunotherapy and the 2 year limit

Muscle Spasms

Any help please

The oncologist wants to do a PET and CT scan the same day. Is it necessary to do both?

Two and a half weeks post upper right lobectomy.

Lung and Meyloma Cancer stage 4

Anyone ALK positive?

full body scan

Will my left leg ever work again

Growth on right upper lobe

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