Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

6,062 members•3,606 posts

All posts for January 2025

Afatinib 40mg and swollen lips

Hi all, i have been taken off a target therapy drug called Osimertinib as my cancer has built up a resistance to it after 41/5 years. They are now giving me...

Hi all, i have been taken off a target therapy drug called Osimertinib as my can...

•3 months ago

PATIENT EXPERIENCE OF OSIMERTINIB (TAGRISSO) OR LIVING WITH EGFR POSITIVE NON -SMALL CELL LUNG CANCER

Osimertinib (Tagrisso) in combination with pemetrexed and platinum-based chemotherapy will shortly be assessed by the Scottish Medicines Consortium (SMC)...

Osimertinib (Tagrisso) in combination with pemetrexed and platinum-based chemoth...

RoyCastleHelpline

Partner•3 months ago

Cold weather payment

Hi, Not necessarily health related but wondered if anyone knows the answer. My mum has terminal cancer, in receipt of attendance allowance, graded high. In...

Hi, Not necessarily health related but wondered if anyone knows the answer. My ...

•3 months ago

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COUGH!

Two years since the big op for colorectal cancer, metastasized to liver and lungs. Nothing has developed, beyond miniscule growth, tho my lungs have the...

Two years since the big op for colorectal cancer, metastasized to liver and lung...

•3 months ago

Good news

Hi all I just had a call saying lymph nodes were not cancerous - such relief, but I feel drained of all energy. Did anyone else react that way? Sandra

Hi all I just had a call saying lymph nodes were not cancerous - such relief, b...

•3 months ago

I’m pre chemotherapy

I will be starting chemotherapy hopefully within the next couple of weeks. Just wondered from all those out there whilst I know the treatment sounds daunting,...

I will be starting chemotherapy hopefully within the next couple of weeks. Just ...

•3 months ago

Pain on movement or always present?

Hi, all. Is your pain always there or does it usually occur with movement, in certain positions etc? Please let me know your experiences. Thanks in...

Hi, all. Is your pain always there or does it usually occur with movement, in...

•3 months ago

Tingling Ribs

I’ve recently started getting a tingling sensation in my ribs whilst sitting, towards the top of them, on the sides I’ve not been diagnosed for anything. ....

I’ve recently started getting a tingling sensation in my ribs whilst sitting, to...

•3 months ago

Results received

further to my previous post, I’ve had my results and the cancer has returned to my lung but, i was given the positive news that I’ve been referred to The...

further to my previous post, I’ve had my results and the cancer has returned to ...

•3 months ago

ONLINE SUPPORT!

Our 2025 support sessions are starting back, and this is your sign to get involved. Online support groups can sometimes be off-putting, we like to...

Our 2025 support sessions are starting back, and this is your sign to get inv...

ConnectRoyCastle

Administrator•3 months ago

4th Line Chemotherapy

Happy New Year everyone- I’m supporting my brother - he was diagnosed at stage 4 - he’s entering his fourth year since diagnosis & has had various treatments-...

Happy New Year everyone- I’m supporting my brother - he was diagnosed at stage 4...

•3 months ago

PATIENT EXPERIENCE OF ALECTINIB HYDROCHLORIDE (ALECENSA)/ ALK POSITIVE NON SMALL CELL LUNG CANCER

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland The indication this medicine...

Alectinib hydrochloride (Alecensa) will shortly be assessed by the Scottish Medi...

RoyCastleHelpline

Partner•3 months ago

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10 months now

Is it just me or do people genuinely feel like enough is enough? It's no longer a case of having strength to carry on rather than do i want to carry on...

Is it just me or do people genuinely feel like enough is enough? It's no longer ...

•3 months ago

How big must a tumour be before decision is taken to treat it.

Left lung lower lobe lesion has grown slowly over a few years and has been classified as a cancerous tumour because of how it presents on scansI have...

Left lung lower lobe lesion has grown slowly over a few years and has been class...

•3 months ago