Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

5,952 members•3,549 posts

All posts for May 2020

A little hello

Hi, my mum was diagnosed with lung cancer in February. I believe it's small cell, she has a large tumour in her right lung and smaller tumours in her lungs...

Hi, my mum was diagnosed with lung cancer in February. I believe it's small cel...

Marla222

•4 years ago

5 Replies

NEW Live Chat Hour on Tuesday 2nd June at 2pm

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesday 2nd June at 2pm. This service is available to those with lung cancer,...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesd...

RoyCastleHelpline

Partner•4 years ago

Be the first to reply

Live Chat * Thread Now Closed* 2-3pm 28/05/2020

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

RoyCastleHelpline

Partner•4 years ago

1 Reply

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Removing 2 lower lobes in 3 weeks time

Morning everyone, Got the news yesterday that I'm to get the two lower lobes of my right lung removed (with associated tumor) in a few weeks. Best course of...

Morning everyone, Got the news yesterday that I'm to get the two lower lobes of...

Ian_cee

•4 years ago

9 Replies

Help and advice please...

My partner had pneumonia back in Feb this year, 2 months later was diagnosed with ITP, she had a ct scan that has found a 6cm lesion/nodule on her lung and...

My partner had pneumonia back in Feb this year, 2 months later was diagnosed wit...

Bacc1234

•4 years ago

2 Replies

My Mum part 4

Hello I have now found out the names of my mum’s treatment: chemotherapy drugs are carboplatin and pemetrexed, the immunotherapy is pebrolizumab. This seems to...

Hello I have now found out the names of my mum’s treatment: chemotherapy drugs a...

Leccilats

•4 years ago

12 Replies

Manage side effects of whole brain radiation

Any advice on how to manage side effects during or after WBRT?

Ina3

•5 years ago

1 Reply

Struggling to understand a staging...

I am sure I will find out the answer tomorrow when I receive a call from my oncologist but I am hoping someone will be able to help me tonight so I can...

I am sure I will find out the answer tomorrow when I receive a call from my onco...

Nickyc1805

•5 years ago

21 Replies

Leptomeningeal mets

Hi everyone. Wanted to find out any success stories on stage IV with Leptomeningeal mets. My dad who was doing very good , being on Keytruda for 18 months ,...

Hi everyone. Wanted to find out any success stories on stage IV with Leptomening...

Ina3

•5 years ago

6 Replies

Looking for some answers about adenocarcinoma at a young age...

I have been diagnosed with multi focal adenocarcinoma of the lungs after multiple chest infections in the past. I am completely broken and confused, not to...

I have been diagnosed with multi focal adenocarcinoma of the lungs after multipl...

Nickyc1805

•5 years ago

16 Replies

Live Chat now open 19/05/2020 2pm-3pm Now Closed

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

RoyCastleHelpline

Partner•5 years ago

1 Reply

Ceritinib hard capsule discontinued

Hi everyone. I just wondered if there is anyone else out there who are now having to take Ceritinib as a film coated tablet? The capsule has been discontinued...

Hi everyone. I just wondered if there is anyone else out there who are now havin...

BellaBe

•5 years ago

6 Replies

New to all this and scared

Hello everyone - new on this site, and new to everything!! Was diagnosed about three weeks ago with inoperable lung cancer (lower right lobe). Unfortunately...

Hello everyone - new on this site, and new to everything!! Was diagnosed about ...

Nerja-123

•5 years ago

15 Replies

Partner just diagnosed... trying to keep it together

My first post on here, and not asking questions or looking for answers... just an outlet for me. My partner was hospitalised in Feb for sudden liver issues,...

My first post on here, and not asking questions or looking for answers... just a...

Kayben21

•5 years ago

16 Replies

CRUK experience during covid-19 survey

Hello all I hope you are doing well. We have been contacted by CRUK. They want to hear from patients affected by cancer about the challenges of day to day...

Hello all I hope you are doing well. We have been contacted by CRUK. They want ...

LorraineD

Partner•5 years ago

Be the first to reply

Lobectomy

Hi, I have just heard from Harefield hosp & I am being admitted for surgery next Wednesday, taking into account all the upheaval from the covid carnage, I am...

Hi, I have just heard from Harefield hosp & I am being admitted for surgery next...

Blackkeys

•5 years ago

18 Replies

Breathlessness years after surgery.

Hi, I had a lower right lobe lobectomy 8 years ago for Adenocarcinoma , I actually had 3 ops in 6 weeks (Firstly a wedge ressection, then the lobectomy and 2...

Hi, I had a lower right lobe lobectomy 8 years ago for Adenocarcinoma , I actual...

rammie6

•5 years ago

8 Replies

ITN Media request for 5 News on 14/5/2020

Have you or your family member had treatment delayed because of Coronovirus? If you would be interested in talking to ITN about the treatment delay for a...

Have you or your family member had treatment delayed because of Coronovirus? If ...

RoyCastleHelpline

Partner•5 years ago

1 Reply

NEW Live Chat Hour on Tuesday 19th May at 2PM

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesday 19th May at 2pm. This service is available to those with lung cancer,...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Tuesd...

RoyCastleHelpline

Partner•5 years ago

1 Reply

Live Chat Hour Now Open 13/05/2020 2pm Now Closed

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions....

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' liv...

RoyCastleHelpline

Partner•5 years ago

1 Reply

Lobectomy

Hi everyone. I had an upper left lobectomy a week ago today and am wondering what sort of level of exercise I should be doing. I know I should be walking but...

Hi everyone. I had an upper left lobectomy a week ago today and am wondering wha...

Martinet

•5 years ago

12 Replies

Live Chat Today 13th May at 2pm Thread now Closed

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Wednesday 13th May at 2pm. This service is available to those with lung cancer,...

Our 'Ask the Nurse' service at Roy Castle are starting a live chat hour on Wedne...

RoyCastleHelpline

Partner•5 years ago

1 Reply

My Mum part 3

Hello My Mum had her first treatment last Tuesday. She’s stage 3b with NSCLC adenocarcinoma and is having chemo and immunotherapy at the same time. She hasn’t...

Hello My Mum had her first treatment last Tuesday. She’s stage 3b with NSCLC ad...

Leccilats

•5 years ago

2 Replies

lung cancer

hi, just joined this site, i have been seen by the oncologist, due to severe copd im not a candidate for lung surgery, radiotherapy for 4 weeks has been...

hi, just joined this site, i have been seen by the oncologist, due to severe cop...

classic4

•5 years ago

6 Replies

Newbie

I’m new here I have only jus been told today that I have lung cancer I’m awaiting to see an oncologist on Thursday, to say my head is all over he place is an...

I’m new here I have only jus been told today that I have lung cancer I’m awaitin...

Hidden

•5 years ago

7 Replies

Tarceva hair tinning

Hi all I’m one of the lucky ones on Tarceva since February for lung cancer if any of you kind people could let me know as my hair has started to fall out in...

Hi all I’m one of the lucky ones on Tarceva since February for lung cancer if an...

Charliek1

•5 years ago

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Lung cancer patient on Tarceva

Hi all I’m new to this got told I had lung cancer at the end of January started on Tarceva in February and delighted with the treatment and feeling very...

Hi all I’m new to this got told I had lung cancer at the end of January started ...

Charliek1

•5 years ago

4 Replies

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for May 2020

A little hello

NEW Live Chat Hour on Tuesday 2nd June at 2pm

Live Chat * Thread Now Closed* 2-3pm 28/05/2020

Removing 2 lower lobes in 3 weeks time

Help and advice please...

My Mum part 4

Manage side effects of whole brain radiation

Struggling to understand a staging...

Leptomeningeal mets

Looking for some answers about adenocarcinoma at a young age...

Live Chat now open 19/05/2020 2pm-3pm Now Closed

Ceritinib hard capsule discontinued

New to all this and scared

Partner just diagnosed... trying to keep it together

CRUK experience during covid-19 survey

Lobectomy

Breathlessness years after surgery.

ITN Media request for 5 News on 14/5/2020

NEW Live Chat Hour on Tuesday 19th May at 2PM

Live Chat Hour Now Open 13/05/2020 2pm Now Closed

Lobectomy

Live Chat Today 13th May at 2pm Thread now Closed

My Mum part 3

lung cancer

Newbie

Tarceva hair tinning

Lung cancer patient on Tarceva

Search posts

Pinned Posts

Latest poll

Do you have experience of small cell lung cancer? Would you accept a brief spell in hospital to monitor side effects for a new treatment?

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Archive

Posts - The Roy Castle Lung Cancer Foundation | HealthUnlocked

The Roy Castle Lung Cancer Foundation

All posts for May 2020

A little hello

*NEW* Live Chat Hour on Tuesday 2nd June at 2pm

Live Chat * Thread Now Closed* 2-3pm 28/05/2020

Removing 2 lower lobes in 3 weeks time

Help and advice please...

My Mum part 4

Manage side effects of whole brain radiation

Struggling to understand a staging...

Leptomeningeal mets

Looking for some answers about adenocarcinoma at a young age...

Live Chat now open 19/05/2020 2pm-3pm *Now Closed*

Ceritinib hard capsule discontinued

New to all this and scared

Partner just diagnosed... trying to keep it together

CRUK experience during covid-19 survey

Lobectomy

Breathlessness years after surgery.

ITN Media request for 5 News on 14/5/2020

*NEW* Live Chat Hour on Tuesday 19th May at 2PM

Live Chat Hour Now Open 13/05/2020 2pm *Now Closed*

Lobectomy

Live Chat Today 13th May at 2pm *Thread now Closed*

My Mum part 3

lung cancer

Newbie

Tarceva hair tinning

Lung cancer patient on Tarceva

Search posts

Pinned Posts

Latest poll

Do you have experience of small cell lung cancer? Would you accept a brief spell in hospital to monitor side effects for a new treatment?

Topics

Archive

NEW Live Chat Hour on Tuesday 2nd June at 2pm

Live Chat now open 19/05/2020 2pm-3pm Now Closed

NEW Live Chat Hour on Tuesday 19th May at 2PM

Live Chat Hour Now Open 13/05/2020 2pm Now Closed

Live Chat Today 13th May at 2pm Thread now Closed