Restless leg syndrome

[AIN46]

Hi there

Just wanted to ask if any of you guys suffer with restless legs and is it related to Behcets syndrome. What are you taking for the restless legs

[sam0511]

Oh yes - awful. I don't think there is anything you can take but I think I have got to the bottom of why it happens. There are certain foods which contain salycilates, so I would look closely at your diet. I have found my main triggers are food and drink high in sugar. Wine, beers, cider etc and chocolate The way I did it was remove all from my diet - It did make a difference, and I had no restless legs. I had a glass of wine a couple of weeks back and I noticed the difference. I hope this helps.

[jzeis]

There's one medical journal article on restless legs syndrome (RLS) in BD. RLS shows up a lot more often in people who have BD than it does in healthy people (non-BDers), but the people who did the study in 2011 don't know why. Here's the basic info:

"109 BD patients were included in the analysis. The prevalence of RLS was significantly higher in patients with BD [32 out of 109 BDers had it (29.4%) than in people without BD (only 5 out of 104 healthy people had RLS; 4.8%)]. No significant differences were found between BD patients with and without RLS with regard to the clinical features of BD. RLS severity positively correlated with age in BD patients.

If you want to see the full article on "Restless Legs Syndrome in Behcet's Disease," it's available for free here:

journals.sagepub.com/doi/pd...

Hope that helps,

Joanne Z.

[Lovingdragonflies]

I do yes. I’m not sure if Related to Behcet’s. For me the thing that stopped was gabapentin. It was immediate results. Helped my sleeping as a result. They did tests and found I was moving my legs constantly. Now I don’t. Of course my husband could tell them that...😉

[AusBehcets]

I found from 23andme that I had the genetic tendency to RLS. I’ve also had a bad reaction to trial of Metformin where I got all night restless legs & all night insomnia!

[GrandmaDylan]

I was anaemic and my follate was incredibly low at 14. I was advised to take iron and no more restless legs!