life with seizers garden1

[garden1]

does anyone elseout there suffer with seizes since they have been troubled with betchets i stillhave found no help or answers with the medical profesion as like manyother problems with betchets you freel very alone

[ambersorganics]

Me too. I do empathize, I am going through the process of just trying to work out things have got so much worst since I had surgery for kidney cancer a year ago, they are just disrupting everything even though they happen at night mostly and are classed as "tonic" type seizures. Are you taking anything? What type are yours? I really feel for you I feel your despair as I also have felt that isolation from the condition. I was told it is caused by "Aseptic Meningitis? - Brain inflammatory responses to the behcets. I was actually looking up information just as I saw your post. I am sure someone here will have some ideas of who or what to turn to there is a wealth of information on this site. You are not alone, I will keep you in my prayers and keep seeking until I find something useful to pass on.

[gillianTS]

Hi garden1

The following link is from a thread on the Behcet's group from 2016 it might be of some help to you:

healthunlocked.com/behcetsu...

Hope you get some help from here.

Gillian x

[Hidden]

Know how you feel! So different after having them and just been ditched by my specialist. Getting irregular period not feeling great hope it is just one of 🌸