Liverpool CofE

[Mylifewithbehcets]

Hiya everyone I've just joined here but had Behçets a loooooooong time. Diagnosed 6 yr ago. Have Pots disease and Recently also diagnosed with fibromyalgia at the Liverpool CoE. Just wondered if anyone else is attending there. My visit was really good they were fab there. X

[seabird100]

Hi

My daughter had her first visit there this year. I was really impressed by the care she received & feel confident that she will get the best care. She's at the start of this journey and this forum has been really helpful too.

[UKADMIN Partner Behcet's Syndrome Society]

Hello MylifewithBehcets and welcome to BSS Health Unlocked. So pleased you had a good visit to Liverpool CoE. Did you know there is a Support Group in Liverpool too? Let me know if you would like to get in touch with them [e-mail] all the best.

[Mylifewithbehcets in reply to UKADMIN]

Thank you very much for your reply and advice, I actually live in Newcastle upon Tyne x

[UKADMIN Partner Behcet's Syndrome Society]

Ah. Let me know if you every want to try and get people together in the NE?

[RuthieN]

My Daughter attends the Paediatric satalite clinic within Alderhey! Next visit end of May. The joined up approach to care is brilliant with all the consultants together in one appointment, making informed decisions, involving us in and providing clear care plans with a named point of contact! It's superb - Prof. Moots is awesome!

[B130859]

I attend At Liverpool and see Professer Moots fantastic team x

[Mylifewithbehcets in reply to B130859]

Absolutely x