Behcet's Syndrome Society
3,849 members3,295 posts

out of hospital new treatment plan

hi all out of hospital now iwas in for 10 days now been put on metotrixate and been put back on coloccine as well I was on colocinne for 3years with no effects on my condition I'm coming to the end of my lastest ulcer flare up only had about 4/5 ulcer free weeks this year my arthritis flare up is realy bad hands swollen and getting spaims in my back neck and shoulders along with a lot of stiffness does any one else have these conditions getting out of bed and chairs are a nightmare got a weird way of managing but it works I'm hoping my new meds help I'm also getting put on something called T N F is any one else on this and has it worked I would be gratefull for any replies to this thanks in advance bob

4 Replies

I was put on methotrexate back in October, and this has had no real effect on my symptoms to start with. The consultant then upped my dosage and I seem to have calmed down a lot now, currently just have a few ulcers.

I am currently on 20mg of methotrexate. Let is know how it goes.


Have no advice to give, just wishing you better health onwards. x

1 like

Hi Bob, sorry to hear you are suffering. I have had rheumatoid arthritis since I was 14 years old. I'm now 31 and have been recently diagnosed with Behcets disease. For my arthritis I was on methotrexate for many years, it did make me feel quite sick but this was only on the day/day after I took it, however, taking folic acid can help if you have this side effect. It controlled my arthritis very well. During a particularly bad flare I was put on humira as well which is an anti TNF drug (assume this is what you meant by TNF?) which also worked very well, I had no side effects with this one. The only reason I stopped the methotrexate was because my husband and I wanted to try for a baby and you have to be off of the drug for at least 6 months prior. Unfortunately as this Behcets has reared its ugly head that's now on hold and I may have to go back on it, but even though it made me feel a little sick the pros outweighed the cons so have no reservations taking it again to get myself better. Hang on in there - methotrexate can take up to 12 weeks to get properly into your system. I was taking 20mg weekly. Hope this helps answer your question. If there's anything else I can answer please feel free to ask. Wish you better soon. Jo

1 like

Guide to treatments here:

Good luck


You may also like...