I was finally diagnosed with Behcets a year ago. Treatment working, no more migraines, eyesight stable. I have recently just had a flare after doing so physical activity. Only half an hour for three days, enough to make me sweat a little. Didn't think I had overdone it. I was obviously mid-flare, as I had been feeling very tired, a bit down, overthinking things. It was after a couple of days of mild physical activity that I realised something was wrong. All the joints in my hands hurt, like knives being stuck into them. I also ached all over, and not the type of ache you would associate with aching muscles. I had no energy. This went on for a couple of days, until extreme tiredness overcame me. Slept for 24 hours and after I felt much better. Just taking paracetomol every so often and pain in hand has gone. I have reached the point now where, whilst I don't crave attention or sympathy, but no-one understands when I am having a flare and feel under the weather. At least with a migraine they could see I was ill. I feel I have to point out when I am feeling bad, when I have no energy or when I have no emotional energy to deal with situations. My self confidence has never been high anyway. I have had to give up a training business that I built from scratch. Stop doing physical activities that I enjoyed like jogging. I have gained weight from taking steroids, which means I don't feel comfortable going out much anymore. For one I don't feel nice in anything I wear, and whilst people - read women - don't say anything to me, I know there will be comments on the way I look when I have gone but also I used to like getting dressed up and going out, that was part of it for me. I don't see the point anymore. I feel it is affecting my marriage in many ways. I don't want to appear a victim and I don't talk about it to anyone really. It is different to being diagnosed with any well known condition, there is always someone to empathise. With behcets there is usually no-one else who has it let alone heard of it. If I do mention it, I then have the performance of trying to explain. The glazed look after a few minutes on their face just isn't worth it so I don't bother trying anymore. I am not after sympathy for myself, I am learning to live with it, but if anyone else feels the same - show this post to your loved ones if you can't find the words or it is too difficult to explain yourself, as I find.