I can't begin to explain the past year I have has. Now only one part of my body remains "untouched". My eyes. I always say to my self if it goes to my eyes I'm gonna end it all. I am having the worst flare up anyone can imagine. I know there are a lot of sufferers out there, even you would be amazed at what I have to deal with be cause of this f...ing disease. I'll post some photos at the end of the post. The reason I'm writing this is to let go of anger and vent. I'm sorry if I sound like a mad miserable man. The truth is I'm someone who people fall in love with the second they meet me. I'm the guy who walks in the room and everyone's face lights up. Or at least I used to be. Now I get the tilted to the side (head of concern). I have always been the life of the party the ONE!!
I HATE YOU BEHCETS!!!!!!!!!
You need to get the hell out of me and burn inside one of the doctors who mistreated me!!
I want my life back. I want my looks back. I am so hot!! I remember looking in the mirror and being flabbergasted at how strikingly handsome I was. Now all I see is soars and scars. I was diagnosed 1 year ago by a neurologist who couldn't believe I had been to multiple dermatologists and a bunch of other doctors who kept misdiagnosing me and treating me for MRSA, herpes syphilis and whatever else they could pull out of a hat. I'm taking methotrexate, prednisone and Colchis and my tell count is 1700 and at 62%. And if the hiding out in my apartment weren't painful enough I have neuro behcets, behcets arthritis , behcets,meningitis , the worse is the sleep walking. I keep hurting myself in my sleep I've had so many head injuries in the past few months my skull must be cracked on every side. I wake up screaming as if someone were digging a nice into the heart of my central nervous system. As my neighbor put it " it sounds if like someone's being gutted rob"". The embarrassment and pain I feel when people look at me on the street is what's gonna be my final breaking point. I have to zoom by people on the street so they don't have even a second trouble focus in on one of my lesions. And when they do see one they give me that look. I'm sure you know it.