Hi all. I'm newly diagnosed but have been sick for many many years. About to start Humira at the end of July if the application gets accepted by the hospital to sponsor me - otherwise it is $2000 a month. I have been on mtx and cyclosporine concurrently and they have done nothing. Prednisolone is the only thing that reduces some of the symptoms but we all know that is not sustainable. I am in the middle of a huge flare at the moment and am having trouble coping mentally. I have two busy children and a part time job (I run a psychiatrist practice 3 days a week). I have been off work for a couple of weeks already and have the next three off too. Bed rest seems to do diddly squat. Joint pain is intolerable but the fatigue is worse. I am now getting weird heart palpitations and breathlessness. I am now down to 20mg pred as I have to taper off it before I start Humira - I have to have a TB test and some flu shots prior and it is not ideal being on pred when I do that. I am terrified to come off the pred. I have had so much time off work I cannot afford to have any more. I have no paid sick leave left. Has anyone got any strategies how to naturally or unnaturally get this flare to abate?
Sorry for the long post.