ADVICE PLEASE MY 4 YEAR OLD DAUGHTER

[deet1]

my daughter is 4 years old and has been suffering for headaches for bout 6months recently however she has had terrible fatigue and sleeps all the time and has developed ulcers in her mouth and lips! gp is stumped and has refered us to a pedeatric doctor and has given us yet another anti-biotic, which is her 4th anti-biotic within 6 months and does not help atol, can anyone help with what this might be i just no somthing is not right.

[Hidden]

Hello and welcome to the site. May I ask what led you to post your question here? Does your daughter have a diagnosis?

[tamirra]

To be honest i would get the referal and take it from there, a mum always knows when something just is not right, or take her to the ER x

[deet1]

I have taken her to a&e and they were also in their own words stumped to what might be wrong however did check for diatbietes which was negative and because she sees the pediatic doctor this week they were happy to let her home for more tests to be done then, i have posted this question because here because i wanted to get perhaps so idea of what might be wrong befor i see the doctor on friday as i dont want to be blind sided or to be told again that they just dont kno whats wrong?

[deet1]

sory i have just realized that i have put this question on bs page, it wasnt ment to be on this pasific page, i was looking at symptoms and bs was somthing i had considered however?

[Hidden]

Hi again, it's good that you have been looking for answers yourself, particularly with conditions like BD which are so rare.

I suggest you put together a brief history - ie starting with when you first noticed something was wrong, eg ' headaches started 6 months ago, saw GP, was prescribed x (name the medication if you can), no different/worse/better, ulcers appeared 2 months later (describe them if you can) and now has constant fatigue...' Note any tests she has had, and the results if you know them. If you are able to take any photographs of your daughter's visible symptoms that can sometimes help as she may not have the ulcers at the time of the appointment or they may not be as bad as they have been before. Note a few questions you would like to ask.

If you think some of her symptoms fit the BD criteria, you could print off the relevant fact sheets and take them with you. There are many auto immune diseases and cross overs of symptoms, but this could be a starting point. You don't have to bombard the Specialist, but you could have a bullet point sheet and a few questions as a guide to refer to, or give the doc a copy and go through it together, and have all the other information to hand. Take another adult with you if you can, it helps to remember what was said and talk it over with another person afterwards and if things need to be discussed that you would prefer your daughter not to hear, the other person could take her out for a while. If a particular treatment or test is suggested/offered, such as more anti-biotics, make sure you are clear why, and what they are expected to do. Ask for a copy of the clinic letter when it is written. Make some notes of your own after the appointment. This will help with future appointments.

As Tamirra says, mums know best - if you are very worried about your daughter or there are any sudden or severe changes in her health then take her to A&E, but meanwhile, prepare as much as you can for this appointment and hopefully you will get some answers and appropriate treatment for your daughter.